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  • Blog Post: Remembering the Heart of a Friend

    Last week, NC said good-bye to freshman lawmaker, Representative Jim Fulghum (R-Wake). He passed away on July 19 th after a short battle with cancer, at the age of 70. Representative Fulghum was a retired neurosurgeon and his medical experience was a true asset to the NC General Assembly. During his...
  • Blog Post: Look At All We've Done

    In the hustle and bustle of life, it seems there is always something that needs our attention. Maybe it’s a lunch appointment, a meeting after work – did you remember to call your mom to wish her a happy birthday? With so many things monopolizing our time, it begs the question: “Why...
  • Blog Post: Jodi Lemacks

    Jodi Lemacks, Virginia In June of 2003, my third child, Joshua, was born via c-section. Diagnosed with a Critical Congenital Birth Defect (CCHD) before birth, he was immediately whisked away to the hospital next door for his first of three open heart surgeries, without me even getting a glimpse of...
  • Blog Post: Celebrating Big Win for Babies

    These are exciting times in VA! Governor McAuliffe has signed House Bill 387 and Senate Bill 183 into law, and pulse oximetry screening of all newborns will soon be the standard of care in Virginia. This new statewide policy will guarantee that each newborn in Virginia is tested for Critical Congenital...
  • Blog Post: Heart of a Friend

    At our mid-December Advocacy Committee meeting, I got to do one of the best things about being a volunteer with the American Heart Association Advocacy Committee. I was privileged to present the AHA "Heart of a Friend" Award to North Carolina State Representative Jim Fulghum. Dr. Fulghum is...
  • Blog Post: Rep. Glazier Presented with “Heart of a Champion” Award

    Last week the American Heart Association honored Rep. Rick Glazier with the North Carolina Heart of a Champion Award, the highest honor bestowed by the American Heart Association on a legislator in North Carolina. Representative Glazier has been a consistent champion of all of the Heart Association’s...
  • Blog Post: “Heart of a Friend” Award and Eastern NC Advocacy Meeting

    Recently, NC AHA Advocacy Coordinating Committee Chair, Yolanda Dickerson and stroke advocate, Marie Welch joined a group of Eastern NC advocates and presented Senator Louis Pate (R-Wayne) with the 2013 NC AHA You’re the Cure “Heart of a Friend” award for his leadership and sponsorship...
  • Blog Post: From an ICU Incubator to Washington DC

    I'm Joye Mullis. Four and a half years ago, while sitting beside my infant son’s incubator in the Pediatric Cardiac Intensive Care Unit at Duke University Medical Center, I could have never imagined his story playing out quite like it has. Not only has Ethan endured multiple surgeries and procedures...
  • Blog Post: Policy Win for Babies!

    Maryland hospitals will be saving more babies through the use of pulse oximetry screening for newborns because of regulations You’re the Cure helped put in place this session. What, you say??!! You don’t remember getting alerts asking you to send letters to your legislators about that! ...
  • Blog Post: Looking Back at the 2013 Legislative Session

    The South Carolina General Assembly just adjourned its 2013 session, and it was an exciting cap off to an outstanding session. We achieved the final passage of S 341 which will require pulse ox screening for all newborns – the bill now heads to Gov. Haley for her signature. Staff, our bill sponsor...
  • Blog Post: The Jones Heart Beat, volume 6

    Lawmakers have been busy with the state budget and tax reform during the past few weeks. This week the House of Representatives passed their version of the state budget. We were disappointed that the House did not include any funding for tobacco use prevention programs, mirroring the Governor’s...
  • Blog Post: The Emerson Rose Act Needs Your Help!

    Tragically, Emerson Rose is no longer with us, but she is still having a significant impact on the lives of babies born in our state. Her parents, Jason and Susan Smith of Clemson, SC, are working closely with You're the Cure to pass a bill that will help protect other infants born with Congenital...
  • Blog Post: The Jones Heart Beat, volume 5

    It has been a busy legislative session and intensity is building with each passing day. Last week we held our breath tight while we fought to keep our smoke-free law strong and we let out a sigh of relief when SB 703 didn’t make the crossover deadline. That said we have to remain vigilant that...
  • Blog Post: Policy Win for Babies: Governor McCrory Signs Senate Bill 98

    Governor Pat McCrory signed into law lifesaving legislation, Senate Bill 98, on May 8 th requiring screening for Critical Congenital Heart Disease (CCHD) via pulse oximetry. North Carolina YTC volunteers and CHD parents, Eric Sanchez (and daughter, Grace), Stephanie and Joel Linn, and Crystal Darak were...
  • Blog Post: The Jones Heart Beat, volume 4

    This week by unanimous vote , the NC House approved SB 98 Require Pulse Oximetry Newborn Screening and SB 456 Designate Primary Stroke Centers. The bills, having won the approval of the General Assembly have now been presented to the Governor, who has 10 days to decide to sign, veto or take no action...
  • Blog Post: The Jones Street Heart Beat, volume 3

    For this legislative update, we have some exciting news regarding one of our top federal legislative priorities, National Institutes of Health Funding. At the state level, we have been very busy seeing positive movement on our top issues. As always, thank you for your efforts and please stay tuned to...
  • Blog Post: Tabitha Haizlip

    Tabitha Haizlip, North Carolina On August 30 th 2012 our eight day old son, Broden, suddenly stopped feeding. This was unusual as he had been a big eater until that time. We made an appointment with the pediatrician to have him examined right away. While examining Broden the doctor discovered an unusually...
  • Blog Post: The Jones Street Heart Beat, volume 2

    It has been a busy start to the legislative session. Lawmakers hit the ground running and haven’t slowed down. Here is the latest news on our top priorities: Pulse Oximetry: HB 105/SB 98 Require Pulse Oximetry Newborn Screening was introduced on Valentine’s Day. HB 105 passed the NC House...
  • Blog Post: Help Save Babies with Congenital Heart Defects

    Congenital heart defects are the leading birth defects affecting newborns in the United States. While some families are lucky to have their babies screened and diagnosed before leaving the hospital, others will go home undiagnosed. Some of these babies won't live to see their first birthday, and...
  • Blog Post: Pulse Oximetry Bill Moves Forward

    We continue to work hard advocating for legislation that will require pulse oximetry screening for all newborn babies. House Bill 105 passed unanimously out of the NC House of Representatives this week on third reading. During the floor deliberations there was an amendment added to the bill that we believe...
  • Blog Post: The Jones Street Heart Beat, volume 1

    The General Assembly hit the ground running two weeks ago. As you have probably followed in the news, lawmakers have their sleeves rolled up and have been tackling some very difficult policy issues already. Here at the AHA, we have been advocating for our top policy issues and watching out for other...
  • Blog Post: Advocate Spotlight: Dana Powell

    Dana Powell, North Carolina On January 1, 2012, we launched the New Year with the birth of a beautiful baby boy, Asa Heard Karchmer. He brought hope, love and wonder into our lives. Those dreams and hopes were abruptly shattered on day two of Asa’s life. We came home from the hospital and very...
  • Blog Post: A Changed Perspective

    Perspectives tend to change when things happen to you or those you love . At 6 weeks, my daughter, Grace, had been tugging at her ear; her mother and I feared she was developing an ear infection. I wish that had been the case. The P.A. checked her ears, which were fine; however she discovered a disconcerting...
  • Blog Post: Sending CHD 'Somewhere Over the Rainbow'

    Every precious child on this 'Somewhere Over the Rainbow' video has survived a congenital heart defect (CHD). Click and listen to grateful Dads sing with their children. Help us get this issue 'over the rainbow' this year: Tell your legislators CHD screening using pulse oximetry should...
  • Blog Post: Born with Only Half a Heart

    Congenital Heart Defect ...words I had never heard before I was 20 weeks pregnant with my daughter. Gretta Joy is a 5 year old survivor of Hypoplastic Right Heart Syndrome. What is that you ask? It is a critical heart defect (CHD) she was born with that requires a series of surgeries as a child. Basically...