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You're Invited: Join Us to Learn More About Advocacy

We have a special opportunity from the NC Alliance for Health (NCAH), our statewide coalition advocating for obesity prevention and tobacco control policy change. The American Heart Association is a proud member of the NCAH.

NC Alliance for Health Healthy Food Access Training

You are invited to an interactive training on combating obesity and other chronic diseases by increasing access to healthy foods. There will be a discussion of food insecurity in North Carolina, and the many different ways people around the state are working to increase access to healthier foods.

You will how you can help make a difference. Attendees will have an opportunity to sharpen their advocacy skills, and learn tips to be more effective with media and decision-maker advocacy.

If you have questions or would like more information, please contact Sarah Jacobson at sarah@ncallianceforhealth.org.

Thursday, November 20, 2014
12:00 pm - 2:00 pm
Location: Forsyth County Health Department
799 N. Highland Avenue, Winston-Salem, NC 27101

Lunch will be served!

Register here by Thursday, November 6!

PS: Don't forget to post pictures of what you see in your food environment on your favorite social media with the hash tag #healthyonthegoNC!

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Vance Lobe - What the Affordable Care Act means for me

Vance Lobe

It’s been almost one year now since the Affordable Care Act (ACA) exchanges were implemented and I thought it was time to reflect on how this has affected my life. 

I am a two time heart attack survivor, starting with the first one about five and a half years ago.  I was gainfully employed at the time and had, what I thought, was good insurance through my employer.  I only learned after the attack that it wasn’t as good as I thought, as a lot of things slipped through the cracks.

I lost my job through layoffs just prior to the second attack and was fortunate to at least have the COBRA insurance, even though, it caused serious financial hardship, as I was unemployed and had a large financial obligations for this care. 

For a year and a half I was unemployed without any healthcare insurance, as I was “uninsurable” due to my pre-existing heart condition.

During this time, every time I felt a little pain or just not feeling right, I would think about what would happen to me if I had another heart attack without any insurance.  I couldn’t  even afford "well care" as I was still unemployed and I made too much on unemployment to take advantage of any subsidies for any of the medicines that I needed or any other assistance.

That all changed this past January when I was finally able to get insurance through ACA.  I am able to receive “well care” for almost nothing, receive my life prolonging medicines for free and I no longer stress about my health as I know the insurance will cover the balance of my care in case something else happens.  While I am once again employed, I have chosen to continue to stay in the program, as it’s a good plan for me.

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Year in Review: Look What YOU Have Done!

The American Heart Association’s commitment to building a culture of health is why we seek to advance science-based public policy initiatives at the local, state, and federal level. To be successful in this endeavor, we use a combination of legislative strategy, lobbying, and media advocacy, along with the passion and activism of the Association’s grassroots volunteer advocatesour You’re the Cure network. Check out our Year in Review and see what YOU did!

Over the course of the 2013-2014 year, You’re the Cure advocates across our five Great Rivers Affiliate states—Delaware, Kentucky, Ohio, Pennsylvania, and West Virginia—sent an impressive 42,511 emails in support of our policy issues to lawmakers. Additionally, advocates met face-to-face with their legislators, made phone calls, testified at legislative hearings, spoke with the media, wrote op-eds and letters to the editor in support of our policy issues for a record 5,423 "offline" actions in FY 13-14, an impressive 92% increase over the previous year! These personal, heartfelt activities put a face on our issues and make an enormous impact on elected leaders.

Your dedication to the mission of the American Heart Association puts the "YOU" in You’re the Cure. Your actions helped to advance important public policies that will improve the health of citizens across the Great Rivers Affiliate! Thank you and congratulations on that success!

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Joye Mullis

Joye Mullis, Mid-Atlantic Affiliate

As with all children, my son’s story began well before his birth.  I had a fairly easy pregnancy, tainted by a couple of scares early on, but then all appeared well at my 20-week ultrasound. 

I was healthy.  Baby was healthy.  Life was good.

At 28 weeks, I had a second ultrasound to check on the baby’s growth and that sent my husband, Jeramie, and me into a fast-moving downward spiral of more ultrasounds, stress tests, and worries.  By the time our son, Ethan, was born on March 8th, 2009, I’d had a total of five ultrasounds, all attempting to diagnose what would be two birth defects – one urological in nature and one orthopedic.

“But...” an OB assured us, “...all of his major organs are healthy and strong!”

However, about eight hours after Ethan’s birth we learned that the doctor was not completely right.  After struggling to nurse and being an overall quiet newborn - two major red flags that weren’t apparent to us first-time parents - it was discovered that Ethan had also been born with a critical congenital heart defect known as Pulmonary Atresia.

My post-partum nurse was bringing Ethan back to our room from his newborn screening when she noticed that “he just didn’t look right”.  She wheeled him back into the nursery, hooked him up to a pulse oximeter, and found that his oxygen saturation level was in the mid-60s.  That discovery began a flurry of activity, unbeknownst to us, which culminated in someone coming to our room hours later to tell us about the broken heart of our brand new son.

Ethan was rushed to Duke University Medical Center in Durham, North Carolina where he stayed for a total of nine and a half weeks, and where he underwent his first open-heart surgery at just three days old.  He had a handful of surgeries during that time – one of which was to implant a permanent pacemaker – and he also survived full cardiac and pulmonary arrest.

Over five and a half years, and three open heart surgeries later, Ethan is now thriving! His story is that of strength and resilience.  It's a story about rising above the brokenness and turning something so tragic into something so beautiful. It has taken a lot of work to get Ethan where he is today, and it all began with an observant nurse and a sticky light.  One simple test saved my son’s life and could do the same for countless others.

I’ve been known to say that the diagnosis of Ethan’s heart defect didn’t just break one heart – it broke three.  While Pulse Ox screening can’t take away the heartache of surgeries and complications, it can be the start of a lifetime of success for a baby born with a congenital heart defect.  It was for Ethan, and every baby born in North Carolina deserves that same start. 

   

 

 

 

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Sharing Your Story Can Save Lives!

There is nothing that brings about public and legislative support for an issue more than a real-life story from someone close to home.

Your personal stories can make our advocacy issues real by putting a face to a cause. Please share your stories about how sugary drinks or obesity have impacted you, your family, students or patients. Just email me at tina.zuk@heart.org if you have a story to share.

 Sometimes hearing just one story is all it takes to build a champion for an issue. Take, for instance Kristi Soule who shared her story at the Vermont Heart Walk.

 My life was forever changed on August 16, 2012. While out running a familiar 4 mile loop with my partner Luke, I suffered sudden cardiac arrest. I was 35 years young and there is no history of heart disease in my family. With years of CPR and AED training, Luke responded quickly. Drivers passing by retrieved an AED from a nearby business and Luke performed CPR until the emergency responders arrived. His efforts and the care I received from the medical professionals on site and at the hospital couldn't have occurred more perfectly. It was a miracle. Being with someone who knew CPR, and having an AED close by saved my life. Please help support our efforts to get more people CPR trained and make AEDs more accessible across Vermont.

 How could you say no? You wouldn't, I wouldn’t, and neither would a legislator.

 You have a story to tell, and your story can make a difference. Please help us save lives by telling your story. Email me today or give me a call at 802-578-3466 .

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Malenda McCalister, Kentucky

Malenda McCalister Kentucky

On September 18th, more than 300 advocates from over 100 organizations gathered on Capitol Hill to rally in support of ongoing funding for medical research, and You're the Cure advocate and heart disease survivor, Malenda McCalister, was excited to be among them.

In October 2008, at just 30-years-old, Malenda's life changed forever as she collapsed on the living room floor after giving birth to her son just 10 days earlier. She was rushed to the hospital cath lab where they  discovered she had suffered from a spontaneous coronary artery dissection (SCAD). She had a triple bypass and two stents placed, followed by 2 pacemaker/defibrillator surgeries and a lead revision surgery.

Today, Malenda (at right with singer/actress and congenital heart defect survivor, Laura Bell Bundy) is doing well, raising her two children alongside her husband, Jack, and speaking out wherever she can to raise awareness of SCAD and the need to listen to your body when you know something doesn't feel quite right. She was happy to share her story with her lawmakers on Capitol Hill to illustrate the need to adequately fund the type of research that ultimately saved her life.

Thank you Malenda, for taking time away from your family to share your story with lawmakers on Capitol Hill!

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FDA Announces Plan to Help Improve Health Equity for Women and Minorities

A new action plan released by the Food and Drug Administration (FDA) to increase the participation of women, minorities, and the elderly in research trials was welcomed today by four leading health organizations as taking an important step toward closing the health care disparities gap.  The groups called on the agency to implement the plan swiftly.

The American Heart Association, National Women’s Health Network, Society for Women’s Health Research, and WomenHeart: The National Coalition for Women with Heart Disease said the “FDA Action Plan to Enhance the Collection and Availability of Demographic Subgroup Data” will not only help boost representation of these population groups in clinical trials, but also will lead to more analyses on how medical drugs and devices affect women and men differently.

The groups particularly applaud the FDA for finalizing its guidance on the evaluation of sex-specific data in medical device studies and for establishing a steering committee and website to oversee and track progress on implementing the action plan. The groups, however, urged the FDA to do even more.  

The FDA’s Action Plan was required by the Food and Drug Administration Safety and Innovation Act (FDASIA), signed into law in July 2012.  The act directed the FDA to review medical product applications to determine the extent to which data on how new drugs and devices affect certain subpopulations is being collected, evaluated and released publicly. By taking the actions outlined in the plan, the FDA will emphasize the need to look for sex, race, ethnicity and age-based differences through medical research, allow subgroup-specific data to be more widely available for use in medical practice, and improve the participation of women and minorities in research trials.

“Guaranteeing greater diversity in research trials will help ensure that patients and their health care professionals have the most up-to-date information needed to make the best decisions about care and treatment,” said the four organizations. “By carrying out the actions recommended by the FDA plan, we can advance our nation’s efforts to achieve the high quality health care that women and minorities want and deserve.”

While the organizations applauded the FDA’s work to address the many issues they highlighted in testimony before the agency earlier this year, they called on the FDA to:

  • Establish and clearly spell out for application sponsors the consequences of not collecting or analyzing subgroup data;
  • Take action to address concerns related to the under-inclusion of women, minorities and the elderly in early phase trials; and
  • More aggressively move forward with additional, standardized subgroup information in the labeling of medical products.

“Gender, race and age play a decisive role in how heart disease, stroke and other forms of cardiovascular disease affect us. Yet, these key populations are often left out of the research necessary to better understand the diverse impact of these diseases,” said Nancy Brown, CEO of the American Heart Association. “That’s why the FDA must not allow this new plan to just gather dust on a shelf. It’s critical that these actions be carried out rapidly and aggressively, and we look forward to working with the FDA to implement this plan.” 

“Women and their health care providers need complete and accurate information about the medical products available to them, particularly the specific benefits a drug or device might offer and the risks it might pose to her because she is a woman,” said Cynthia Pearson, executive director of the National Women’s Health Network. “The current lack of information exposes women to harm that could be avoided by more inclusive requirements for clinical trials. While the FDA Action Plan is a step in the right direction, the agency must do more than remind and encourage industry to include women and minorities in trials and analyze the data. The FDA must require that companies do this to ensure that that the products women use are safe and effective for them.”

“The Society for Women’s Health Research is pleased that the FDA heard our call for the need to release demographic data and establish training for all reviewers to look for sex differences. One of SWHR’s key priorities for more than 20 years has been making sure this data is appropriately analyzed and reported by the FDA,” said Phyllis Greenberger, president and CEO of the Society for Women’s Health Research.  “Still, the Action Plan falls short in several important areas. The FDA should do more to prioritize finding out how medical products affect women and men differently and report that information to patients and health care providers, especially since there have been significant discoveries of sex differences from biomedical research in the last two decades.”

“Women and their health care providers are tired of waiting for access to data demonstrating whether drugs and devices are safe and effective for their use. The FDA has studied this problem for decades, yet
the problem has not been fixed,” said Lisa M. Tate, CEO of WomenHeart: The National Coalition for Women with Heart Disease. “Implementation and enforcement of these recommendations would go a long way toward assuring that providers can recommend appropriate treatments for 51 percent of the U.S. population, including the 43 million women living with or at risk for heart disease.”

In the coming months, the organizations will submit additional comments and recommendations about the FDA Action Plan and work with the agency and Congress to address continuing areas of concern vital
to the health of women, minorities and older Americans.

Read what FDA Commissioner Margaret Hamburg had to say about this important step.

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Rhode Island to Require Pulse Ox Screening for Newborns

Good news for Rhode Island's tiniest hearts!  The RI Department of Health recently finalized a regulation that adds critical congenital heart disease (CCHD) to the mandatory newborn screening panel in the Ocean State.  The new requirement will take effect on July 1, 2015.  Implementation is well underway – all birthing hospitals in RI have adopted pulse oximetry screening for CCHD as the standard of care.   

The Department of Health has been working with Rhode Island’s birthing hospitals over the past two years on this vital initiative.  We greatly appreciate the leadership of the Department and the many physicians, nurses and medical professionals who helped lay a strong foundation for this policy change.  

Special thanks to the many You’re the Cure advocates who supported this campaign – especially our Little Heart Heroes and families from Mended Little Hearts of Rhode Island!


 

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Research & Advocacy = Results

In the last decade, U.S. hospitalization and death rates for heart disease and stroke have dropped significantly!  That means our research and your advocacy are paying off!  Let's keep it going to reach the American Heart Association’s 2020 goal — to improve the heart health of all Americans by 20 percent while reducing deaths from cardiovascular diseases and stroke by 20 percent by 2020.  Learn more here:

http://blog.heart.org/study-finds-significant-drop-in-hospitalizations-deaths-from-heart-disease-stroke/

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Arkansas Leads the Way for Decreasing Uninsured Rate

A recent Gallup article indicated that Arkansas is leading the way for reducing the rate of the uninsured population.  Arkansas passed the “Private Option” allowing hundreds of thousands of Arkansas residents access to private health insurance.  Here is more from the Gallup story:
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WASHINGTON, D.C. -- Arkansas and Kentucky lead all other states in the sharpest reductions in their uninsured rate among adult residents since the healthcare law's requirement to have insurance took effect at the beginning of the year. Delaware, Washington, and Colorado round out the top five. All 10 states that report the largest declines in uninsured rates expanded Medicaid and established a state-based marketplace exchange or state-federal partnership.

Delaware, Washington, and Colorado round out the top five. All 10 states that report the largest declines in uninsured rates expanded Medicaid and established a state-based marketplace exchange or state-federal partnership.

As Gallup previously reported, the states that chose to expand Medicaid and set up their own health exchanges had a lower uninsured rate to begin with: 16.1% compared with 18.7% for the remaining states -- a difference of 2.6 percentage points. The already notable gap between the two groups of states widened through the first quarter to 4.3 points, as states that have implemented these core mechanisms of the Affordable Care Act reduced their uninsured rates three times more than states that did not implement these core mechanisms.

These data, collected as part of the Gallup-Healthways Well-Being Index, are based on respondents' self-reports of health insurance status based on the question, "Do you have health insurance coverage?"

Continue reading here:  http://www.gallup.com/poll/174290/arkansas-kentucky-report-sharpest-drops-uninsured-rate.aspx

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