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Share Your Story: Kristy Sidlar

Kristy Sidlar Michigan

So there I was on the side of the road by myself, lying next to my bicycle. I was fading in and out of consciousness, honestly wondering if these were going to be my last moments. My plans to compete in the triathlon I was training for were far from my mind. What I was thinking was, “Why is this happening? Why today?” It was my 31st birthday.

After about 40 minutes of my heart racing at 280 beats per minute, another cyclist finally rode by and called 911. Paramedics arrived and used an automatic external defibrillator (yep…the shock paddles) to normalize my heartbeat. I was rushed to the hospital where doctors spent 10 days trying to find a diagnosis for my erratic and very fast heat beat. The doctors said, “We can’t fix you, but we can save your life.”

They planned to do a relatively standard procedure called radiofrequency ablation but once they “got in” they realized my heart was riddled with cells that conduct extra impulses, causing rapid heartbeat. The best option available to me at that point wasn’t the ablation; they decided to install an implantable cardioverter defibrillator (ICD). It’s a device about the size of a pager that is essentially a set of shock paddles inside my chest. And they prescribed a bunch of meds to get my heart rate under control.

I can hardly believe it’s been almost 15 years since I was diagnosed with Arrhythmogenic Right Ventricular Dysplasia. At the time I wasn’t really worried about the surgery or the shocks from the ICD. What really tore me up was when the doctors told me I wouldn’t be able to train again. I was a bit of a fitness-crazed young woman, and I couldn’t imagine living without this part of my life.

 I didn’t listen at first. I couldn’t let it go. Finally, after I went flying off a treadmill and into the mirror at the gym when my ICD went off during a running workout, I realized that it just wasn’t worth it anymore. Now I walk, workout at a moderate pace on the elliptical and do yoga. My big mindset shift was: “I don’t have to be competitive. I need to do what keeps me healthy.”

 For 13 years now I have been a volunteer and spokesperson for the American Heart Association. These are my two core messages:

 • You don’t have to be old or fat or eat fried food to be at risk for heart disease.

 • Be proactive with your doctors.

Too often people (women in particular) get dismissed by doctors saying that their irregular heartbeats or high blood pressure are stress related or caused by other factors like pregnancy. Maybe they are…but maybe they AREN’T! My experience with this was a six-month-long pursuit for answers after a fainting episode in my late twenties. I was told I was dehydrated. I was told I hadn’t eaten enough, I was told it was the caffeine. Finally, doctors ran the right tests and determined I had a problem with my right ventricle and they treated me accordingly.

Living a heart healthy life can be both easy and hard. It’s taking those first few steps that are the hard part, but healthy habits can become so easy to live by. Please check out the many resources at heart.org to see how you can know your risks, know your numbers and take the right steps to great heart health. And pass this information on to your friends and family. Every little bit of education helps…everyone!

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Trick or Treat?

Candy Corn, Gummy Bears, Peanut Butter Cups, Swedish Fish, Candy Bar, Bubblegum and Cotton Candy… These may sound like treats the neighborhood kids are hoping to pick up when they go trick-or-treating later this month, but they’re actually the tricks used by companies to hook our kids on nicotine. These are flavors of e-cigarette liquid available for purchase today.

With alluring flavors like those and a dramatic increase in youth exposure to e-cigarette advertising, the rising popularity of e-cigarettes among youth shouldn’t come as a surprise. Still, it raises concerns. Strong regulations are needed to keep these tobacco products out of the hands of children. We’ve asked the Food and Drug Administration (FDA) to prohibit the marketing and sale of e-cigarettes to minors, and we’re still waiting for them to act.

Meanwhile, CDC launched this week their #20Million Memorial. 20 million people have died from smoking-related illnesses since the 1964 Surgeon General’s report on smoking and health. Has smoking affected you and your family? Check out this moving online memorial, then share your story or honor loved ones lost too soon with the hashtag #20Million.  

AHA staff and volunteers across the country are preparing to fight the tobacco epidemic in upcoming state legislative sessions. They’ll ask for state funding for tobacco prevention programs and for increased tobacco taxes, a proven deterrent for youth smoking.

This Halloween, don’t let our kids continue to get tricked by the tobacco companies. Help end the tobacco epidemic for good. To amplify our message with lawmakers, ask friends and family members to join us, then watch your inbox for opportunities to act!  

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October is Sudden Cardiac Awareness Month

Do you know the difference between a heart attack and sudden cardiac arrest? 

People often use these terms interchangeably, but they are not synonyms. A heart attack is when blood flow to the heart is blocked, and sudden cardiac arrest is when the heart malfunctions and suddenly stops beating unexpectedly. A heart attack is a “circulation” problem and sudden cardiac arrest is an “electrical” problem.  Click here to learn more about the differences!

Do you know why it is important for schools to be prepared for sudden cardiac arrest?

"Perhaps you know of an athlete who collapsed on the athletic field from a sudden cardiac arrest.  Or maybe it was a student in the classroom.  Or an adult spectator.  Or a coach.  Most often the person was thought to be healthy, with nothing to suggest an underlying cardiac problem.  Afterwards families and the community search for clues as to what the trigger was.  Often there were no warning signs, even in retrospect, and a medical explanation may be lacking as to why the heart rhythm suddenly became ineffective."

Click here to read full article written by Dr. Monica Gobel, who is a member of the Michigan Advocacy Committee for the American Heart Association.

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The State of Obesity: Michigan's Report

In recognition of Childhood Obesity Awareness month, we are pleased to be able to provide our advocates with the most recent statistics on childhood obesity in our state and across the nation. The State of Obesity report (formerly F as in Fat), a project of the Trust for America’s Health and the Robert Wood Johnson Foundation, provides a close-up look at our progress toward reducing childhood obesity, and the work that lies ahead of us to ensure our kids are growing up healthy and strong.  You can read the full report by clicking here to visit www.stateofobesity.org

For the past 11 years, this report has raised awareness about the serious nature of obesity, and encouraged the creation of a national obesity prevention strategy.  The American Heart Association has worked alongside our partners at the Trust and RWJ Foundation, and others, to develop effective approaches for reversing the obesity epidemic at the state and federal level.

Michigan is ranked 11th among all states and the District of Columbia.  Click here to see our state report.

The report also highlights the various policy objectives that are important in our fight to reduce obesity:  physical activity before, during and after school, school nutrition, access to healthy and affordable food, food and beverage marketing, etc.  Reducing obesity in our communities will take dedication, focus, innovation and cooperation.  Please join us in this fight!  See how you can take action at www.yourethecure.org

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What is Pediatric Cardiomyopathy?

Did you know that one in every 100,000 children in the U.S. under the age of 18 is diagnosed with a diseased state of the heart known as cardiomyopathy?  While it is a relatively rare condition in kids, it poses serious health risks, making early diagnosis important.  As the heart weakens due to abnormities of the muscle fibers, it loses the ability to pump blood effectively and heart failure or irregular heartbeats (arrhythmias or dysrhythmia) may occur.

That’s why we’re proud to team up with the Children’s Cardiomyopathy Foundation this month- Pediatric Cardiomyopathy Awareness Month- to make more parents aware of this condition (signs and symptoms) and to spread the word about the policy changes we can all support to protect our youngest hearts.
 
As a You’re the Cure advocate, you know how important medical research is to improving the prevention, diagnosis, and treatment of heart disease.  And pediatric cardiomyopathy is no exception.  However, a serious lack of research on this condition leaves many unanswered questions about its causes.  On behalf of all young pediatric cardiomyopathy patients, join us in calling on Congress to prioritize our nation’s investment in medical research.
  
Additionally, we must speak-up to better equip schools to respond quickly to medical emergencies, such as cardiac arrest caused by pediatric cardiomyopathy.  State laws, like the one passed in Massachusetts, require schools to develop emergency medical response plans that can include:

  • A method to establish a rapid communication system linking all parts of the school campus with Emergency Medical Services
  • Protocols for activating EMS and additional emergency personnel in the event of a medical emergency
  • A determination of EMS response time to any location on campus
  • A method for providing training in CPR and First Aid to teachers, athletic coaches, trainers and others – which may include High School students
  • A listing of the location of AEDs and the school personnel trained to use the AED

CPR high school graduation requirements are another important measure to ensure bystanders, particularly in the school setting, are prepared to respond to a cardiac emergency.  19 states have already passed these life-saving laws and we’re on a mission to ensure every student in every state graduates ‘CPR Smart’.
   
With increased awareness and research of pediatric cardiomyopathy and policy changes to ensure communities and schools are able to respond to cardiac emergencies, we can protect more young hearts.

Have you or a loved one been diagnosed with cardiomyopathy?  Join our new Support Network today to connect with others who share the heart condition.   

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Get connected! Join us on social media today!

Did you know that the American Heart Association has a great online presence on Facebook and Twitter?  You can check out all the wonderful updates, pictures, and postings by getting connected with us online.  Click below to join the page that is in your area and be sure to share and like our posts!

 

Facebook pages:

Mid-Michigan:  https://www.facebook.com/AHAMidMichigan

Southeast Michigan:  https://www.facebook.com/AHASEMI

Southwestern Michigan:  https://www.facebook.com/AHASWMichigan

West Michigan:  https://www.facebook.com/AHAWestMI

You're the Cure:  https://www.facebook.com/yourethecure

 

Statewide Twitter:

Mid-Michigan:  @AHAMidMichigan

West Michigan & Southwestern Michigan:  @AHA_WestMI_SWMI

American Heart Association Advocacy:  @AmHeartAdvocacy

 

 

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Mark Your Calendar for the EmpowerMEnt Challenge!

We’re gearing up for National Childhood Obesity Awareness Month and we want you to be in on all of the action!  Throughout September, we’re encouraging families across the country to take control of their healthy by participating in the EmpowerMEnt Challenge.  Each week, families and kids will pursue a different goal, including eating more fruits and veggies, limiting sugary drinks, reducing sodium intake, and increasing physical activity.  Each goal is fun, simple, won’t break the bank and can be done as a family.  And by the end of the month, families will be a step ahead on the road to a heart-healthy life. 

So mark your calendar for the challenge kick-off on September 1st!  Complimentary templates and activities, broken down into the themed weeks, are now available on www.heart.org/healthierkids.  In addition, you're invited to join our EmpowerMEnt Challenge Facebook group, where you can make the commitment to take the challenge and share your progress with others.  

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E-Cigarettes in the news

Have you been reading a lot about the e-cigarette bills in the news lately?  If you need to catch up, here's a sample of what's out there:

Battle Creek Enquirer: Snyder should veto e-cigarette legislation

Detroit Free Press: Michigan bills that would ban minors from buying e-cigs cause concern

Check these out and then be sure to send a message to the Governor asking him to veto these bills.  Click here to visit our Action Alert and send your message today!   

The American Heart Association oppose these bills because they create a separate category for e-cigarettes and other vapor devices whether they contain tobacco or nicotine or not.  If these products are explicitly separated from other tobacco products and are considered a special class of products within state law, they could be exempt from current and future tobacco control laws.

We continue to support House Bill 5393, sensible legislation that would also prohibit the sale of e-cigarettes to minors, but it would do so by treating them exactly like any other tobacco product.

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Teaching Gardens = Learning Laboratories for Kids

Studies show that when kids grow their own fruits and vegetables, they’re more likely to eat them. That’s the idea behind the American Heart Association Teaching Gardens.  While 1/3 of American children are classified as overweight or obese, AHA Teaching Gardens is fighting this unhealthy trend by giving children access to healthy fruits and vegetables and instilling a life time appreciation for healthy foods.

Aimed at first through fifth graders, we teach children how to plant seeds, nurture growing plants, harvest produce and ultimately understand the value of good eating habits. Garden-themed lessons teach nutrition, math, science and other subjects all while having fun in the fresh air and working with your hands.

Over 270 gardens are currently in use nationwide reaching and teaching thousands of students, with more gardens being added every day.  You can find an American Heart Association Teaching Garden in your area here or email teachinggardens@heart.org to find how you can get involved.

               

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One Million Milestone

Did you hear the big news?  We’ve reached an amazing milestone in our campaign to teach all students to be ‘CPR Smart’!  17 states now require CPR training as a graduation requirement, which adds up to over one million annual graduates who are prepared to save a life.  Congratulations to all of the You’re the Cure advocates and community partners who have spoken-up for training our next generation of life-savers.   

But with every advocacy celebration comes a new call to action.  33 states still need to pass legislation to make CPR a graduation requirement and you can help us get there!  Here are a couple simple things you can do right now to get the word out:

1) Watch Miss Teen International Haley Pontius share how a bad day can be turned into a day to remember when students know CPR.  And don’t forget to share this PSA on social media with the hashtag #CPRinSchools!

(Please visit the site to view this video)

2) Do you live in one of the 33 states that have not made CPR a graduation requirement yet?  Take our Be CPR Smart pledge to show your support and join the movement.  We’ll keep you updated on the progress being made in your state. 


 

 

We hope you’ll help keep the momentum going as we support many states working to pass this legislation into 2015.  Several states have already had success in securing funding for CPR training in schools, but now need to push for the legislature to pass the graduation requirement and in Illinois, the Governor recently signed legislation that requires schools to offer CPR & AED training to students. 

Bystander CPR can double or triple survival rates when given right away and with 424,000 people suffering out-of-hospital sudden cardiac arrest (SCA) each year, this law is critical to helping save lives.  Thank you for being part of our movement to train the next generation of life-savers!


PS- Inspired to be CPR smart too?  Take 60 seconds to learn how to save a life with Hands-Only CPR.

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