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A Day in the Life – Rally for Medical Research, 2013

Written By Marcy Shugert, California

The Rally for Medical Research met on September 17-18, 2013 to ask Congress to stop the sequestration of National Institutes of Health (NIH); and I was one of the people chosen to go - it was an unforgettable experience! From beginning to end, I was under the feverish rush of the politics of Washington, D.C., and I loved every aspect of it. I am a stroke survivor, and have been involved with many aspects of the American Heart Association/American Stroke Association (AHA/ASA). I am very grateful to be an advocate, and that the AHA/ASA gave me the opportunity to meet my Representatives and Senators. It was, without a doubt, a chance of a lifetime.

The reason that we met on the Hill to help stop the sequestration of the NIH, and to add our personal story as to why the decision affects us. My reasons were two-fold; when I was having my stroke, I didn't know that people my age, at 33 could have the symptoms I was experiencing; had I known, I would have called the paramedics and would have gotten treatment much sooner. Secondly, if I had known about tPA, or tissue plasminogen activator, then I would have asked for it in the hospital. tPA is a clot-busting drug that has the potential to save many people’s lives who are experiencing a stroke.

Therefore, I am an advocate through the AHA/ASA, and speak whenever I can about how I was healthy, ran, had normal blood pressure and cholesterol, did not have strokes in my family, and ate well. Yet, I was stressed and didn't do a good job of compartmentalizing my time. I then asked the Senators/Representatives to consider the sequestration to end because, as the AHA/ASA believes, we need more research on stroke.  The young researchers we have invested NIH dollars into thus far will either leave the profession, or go overseas where they have more funding if NIH is not supported.

I met with staff from Senator Boxer, Senator Feinstein, Representative Issa, and Representative Calvert’s offices.  I also had the chance to meet my Representative, Scott Peters in person.  The meetings were 30-45 minutes long, and every person listened to what I had to say.

Overall, it was an excellent experience just being in the heart (pun intended of course) of our capital and speaking to the Members of Congress about making decisions for our future! Thank you AHA/ASA for making it possible for me to speak and be a part of our nation’s government for one day – I am inspired to do even more now that I have got a voice – both literally and figuratively. Here’s to more advocacy to everyone, in small and big places alike!

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California: World Stroke Day is October 29th

Guest Blogger: Josh Brown, Grassroots Advocacy Director

October 29th is World Stroke Day, a day to raise awareness about stroke, America’s fourth leading cause of death.  World Stroke Day is a global campaign aimed at reducing the incidence of stroke around the world by educating communities on the facts and myths about stroke.  In the United States, stroke affects nearly 800,000 people each year and is the leading cause of long-term disability.

A stroke occurs when blood supply to the brain is disrupted causing brain cells to die.  Stroke can happen at any time and to anyone at any age.  Take Marisol Ferrante for example. She was happily at work when she suddenly experienced a massive headache that later evolved into a stroke. Marisol is one example of the thousands of individuals affected by stroke each year.

The American Heart & Stroke Association recommends that you think F.A.S.T. to spot the signs of stroke. Knowing the noticeable symptoms of stroke is important because the sooner a stroke victim gets to the hospital, the higher the chance of survival and decreases the likelihood of long-term damage.

F.A.S.T. stands for:

Face Drooping Does one side of the face droop or is it numb? Ask the person to smile.

Arm Weakness Is one arm weak or numb? Ask the person to raise both arms. Does one arm drift downward?

Speech Difficulty Is speech slurred, are they unable to speak, or are they hard to understand? Ask the person to repeat a simple sentence, like "the sky is blue." Is the sentence repeated correctly?

Time to call 911 If the person shows any of these symptoms, even if the symptoms go away, call 9-1-1 and get them to the hospital immediately.

To learn more about the F.A.S.T. stroke warning signs and other sudden symptoms of a stroke, visit www.strokeassociation.org

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Nevada Legislative Update

By Christopher Roller

The 77th session of the Nevada Legislature adjourned on June 3rd.  It was a very successful session for the priorities of the American Heart Association.  We had established four priority bills heading into the session, and all four passed.  Three of those four were signed into law by Governor Sandoval.  SB167, the STEMI hospital recognition bill, passed and was signed by the Governor on May 24th.  Two of our priority bills were uncertain to pass and took right up until the end of session.  SB92, the newborn heart defect screening bill, signed by Governor Sandoval on June 3rd, and AB414, the CPR in schools bill, signed on June 5th.    Both took tremendous effort on the part of our staff and advocates, and would not have passed without the incredible contributions from you, our You’re the Cure networkers!  Please take a moment to respond to the “action alerts” thanking our legislative champions and Governor Sandoval for their support.  A fourth priority, the “menu labeling” bill passed the legislature, but unfortunately was vetoed by the Governor.  As you know, passing a bill and creating or changing a law is not an easy undertaking, so to see three out of four priorities make it through this difficult process is a testament to the dedication and perseverance of our advocates.  We will work in the coming months to implement these laws and ensure that they are effective in saving lives and contributing to our mission of building healthier lives and communities free of cardiovascular disease and stroke.  Thank you!

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