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Come and help grow Grassroots at our fall Heart Walks!

Heart Walk is a wonderful opportunity to help make walkers aware of our important advocacy efforts and engage them in the You're the Cure grassroots network. We need your help manning our You're the Cure booths at these events! Take a look at the full list of Heart Walk events below and let us know if you can help.

RSVP to come work a booth with us! 

Charleston Heart Walk: Saturday, September 27 at Liberty Square, 340 Concord St, Charleston, downtown next to the SC Aquarium
Pee Dee (Florence) Heart Walk: Saturday, October 18 at Florence-Darlington Technical College
Waccamaw (Myrtle Beach) Heart Walk: Saturday, October 18 at Broadway at the Beach, 1325 Celebrity Cir

Volunteer to help grow grassroots at a Heart Walk near you! Send a quick email to let me know you plan to come help us recruit!

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What Is Your Why?

As you may know, the American Heart Association has kicked off our new "Life is Why" campaign. We know there are many reasons "why" you are passionate, and we’d like to know what the reasons are behind your "why!"

We are running a social media campaign focused on this question throughout the Mid-Atlantic Affiliate, and would love for you to include your story via Facebook (#lifeiswhy), Instagram (@heartmaa) or Twitter (@midatlnticheart). We want to hear and see the motivation for your passion, so please join us by sharing your Why today!

What’s OUR Why?

At the August Mid-Atlantic Affiliate’s All Staff meeting, your Government Relations team was awarded the "Greatest Health Impact" award.  What does this mean? It means that your Government Relations team has most positively impacted the lives of the residents of our Affiliate through our accomplishment of passing public policy (like the Pulse Oximetry bill in North Carolina, or CPR in Schools legislation in Virginia and Maryland) and improving the health of our local communities. 

Cathleen Grzesiek, Vice President of Government Relations for the Mid-Atlantic Affiliate, said "This award is a testament to the hard work and dedication of our government relations directors, grassroots directors, and all of our volunteers over the past year.  Our policy success couldn’t happen without each of them, and together, we are making a huge impact on health across the Mid-Atlantic.  Our team embodies the idea that ‘making a difference is why.’"

We could not have done this without the help of you, our You’re the Cure family!

While at times the policy process can be labored, this just proves that your resolute determination and passion have made a true difference all across the Mid-Atlantic Affiliate.

So today, it is with pleasure that we share that YOU are our why, and we hope that you will share your why with us!

You are invaluable to us, and we are thankful for you and for the great impact you have made on the health of your local and regional communities.

Thank you!

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We've Come So Far Because of You, South Carolina!

The 2014 Legislative Session in South Carolina was a lively one, allowing us to advance some vital pieces of legislation while providing us room to continue in 2015.

Senate Bill 1094: School Nutrition Guidelines
This would have required stronger nutritional guidelines for competitive foods sold on school grounds during afterschool hours. Competitive foods include foods sold in vending machines, snack stores, and a la carte items in school cafeterias. The bill received a favorable report with amendments from the Senate Education Committee, but no action was taken by the full Senate once the bill was placed on the Senate calendar.

Senate Bill 160: CPR in Schools
This would have required all high school students to be proficient in hands-only CPR and AED awareness as part of the already required high school health education class. The bill received a favorable report with amendments from the House Education Committee, but no action was taken by the full House once the bill was placed on the House calendar.

This issue continues to be vital to residents of South Carolina, even during the summer months when the legislature is not in session. Please email your elected officials today and let them know you support CPR in schools.

Tobacco Control Funding
We advocated during the appropriations process for an additional $8 million in tobacco control funding from the Tobacco Master Settlement Agreement. We were able to protect the $5 million in funding for tobacco control received yearly from cigarette tax revenue.

Smoke-Free Victories
Three more communities across the state adopted smoke-free ordinances, joining 55 other South Carolina municipalities, for a total of 58 cities/counties, covering 39% of the state's population!

As part of the You're the Cure team, you've helped us make GREAT strides this year toward improving the lives of South Carolina citizens. We will be revisiting each of these issues in 2015 and have no doubt we will see major victories in the Palmetto State!

From the bottom of our hearts, thank you for all you do. You are our hero.

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Mary Kay Ballasiotes

Mary Kay Ballasiotes, Mid-Atlantic Affiliate

Mary Kay Ballasiotes has been advocating for children for over 15 years.  Her daughter, Michelle had a stroke before she was born and that moment changed both of their lives forever. Mary Kay’s advocacy days started in 2002 in Chicago where she founded the Childhood Stroke & Hemiplegia Connections of Illinois, simply because there was a need for it.  Before long, Mary Kay and her daughter were fixtures at Lobby Day.  At National Lobby Day, May 2006, Mary Kay spoke with the Vice President of the American Stroke Association (ASA) and told him about her daughter having a stroke before birth.  She learned that the VP had never heard of pediatric stroke. From that day on Mary Kay made it her mission to collaborate with the American Heart Association (AHA) and the ASA about pediatric stroke, and to raise awareness about it.

Over the years, Mary Kay and Michelle attended heart walks, lobby days, and were very vocal about pediatric stroke in each state they have lived in: Illinois, Georgia, and now North Carolina. Most recently, Mary Kay co-produced a pediatric stroke awareness video with the American Heart Association/American Stroke Association.  The video was created to raise awareness that strokes can happen in babies, children and even before birth. Join us here  to watch this impactful video.   

Making a difference in people’s lives is the most rewarding element of being part of advocacy.  Mary Kay and Michelle have attended many lobby days over the years, both national and state.  The experience never gets old to Mary Kay.  She loves seeing how her passion and effort can make a difference, and strongly feels that one person can make a difference!  In August 2010, Mary Kay and her family moved to North Carolina where she soon started working with Betsy Vetter, the AHA Director of Government Relations in the Mid-Atlantic Affiliate.  Mary Kay readily admits her love of working with Betsy.  She is one of the reasons Mary Kay is still volunteering and advocating with AHA.  Mary Kay feeds off Betsy’s passion and enthusiasm and feels that Betsy has a gift for working with volunteers and government officials.

Mary Kay is very proud of her daughter Michelle and the hard work that she has been doing right alongside her mother. While back in Chicago in 2007, Michelle was chosen to be one of the 12 “Faces of Cardiovascular Disease.”  Her image was captured on one of many large posters that were circulated around the United States for Heart Walks.  These posters are still being used today.  Because of Mary Kay and Michelle’s hard work, they were both featured in an ABC news article once again shedding light on pediatric stroke. In 2009, Michelle was honored with the Stroke Hero of the Year and received the National Youth Advocate of the Year award.

Mary Kay’s calling is to advocate for children. She feels that things happen for a reason. The stroke that Michelle suffered enabled both Michelle and Mary Kay to reach other families and make a difference in their lives and in the area of pediatric stroke.  Mary Kay does not have much free time, but when she does, she enjoys going out to lunch with friends and reading. 

One great memory Mary Kay has included that of her son, Alex.  While driving back from picking Alex up at college, he remarked how much he admires the work that she has done over the years.  The example that Mary Kay has provided has empowered him to pay it forward by getting involved in politics and leadership roles.   May Kay continues to advocate for children and wants everyone to know that one person can make a difference.

 

 

 Advocate interview provided by Blog Contributor Amanda Orfitelli.

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Help You're the Cure by Having a Party?!

Huh?!  I can help You’re the Cure by having a party?  You sure can, and it’s fun to do!    

Tupperware might have started the trend, but many since have figured out the beauty of sharing a message with a group of friends to help get something done.  One of the ways we get advocacy done is with ‘house parties.’  

Growing the You’re the Cure network is our how we have power to leverage, to get our bills passed – bills that help people live longer healthier lives.  A house party is a fun way you can pull your friends and family into the fold, helping them understand the importance of our work, and inviting them to help the cause by joining the network.  And unlike Tupperware, it won’t cost them a penny. 

Here’s how simple it can be:

  • Let us know what you want to do so we can provide support! If you don’t already have our contact information, find your AHA advocacy contacts here.  
  • Pick a date and invite your contacts.  Include information about why working with us is important to you.  Many now use online event-planning tools like Eventbrite, to make sending invitation and tracking RSVPs easier than pie.  Facebook is a good distribution vehicle too.  Or maybe phone calls or written invitations are more your cup of tea.  You decide what works best for you.
  • Plan a few healthy snacks….yeah they should be healthy!  You are representing the American Heart Association and American Stroke Association, after all.  We have lots of free healthy recipes online, and you can keep it very simple.  
  • At the event, mingle with your guests, have fun, and make a short pitch asking them to join the effort.  We have guides and sign-up sheets you can use to make it easy.
  • Take pics for sharing, and be sure to thank everyone!
  • Let us know how it went, and return sign-ups so we can get them entered in the network!

Here’s what Larry and Karen Calhoun, a North Carolina couple who do house parties annually, say: 

“We do a party for You’re the Cure and the Heart Walk every year, and it’s become something we really look forward to. We cook a heart healthy Cajun meal and thus our team name, the Cardiac Cajuns. The American Heart Association has helped us get organized and given support by providing information and visual displays about YTC, heart disease, and the work of AHA.  We really enjoy getting our friends together and love knowing we’re helping build the grassroots network in the process.”

You can put your own twist on the idea to ‘make it your own.’  We even heard of someone who did a mobile house party, going around to their friends’ houses to do individual sign-ups! 

Host the Ultimate House Party: a party that can save lives!   Will you do one?

 

 Guests mingle and chat at a 'House Party' at Larry and Karen Calhoun's

 

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Be One In A Million

Million Hearts is an answer. Heart disease and stroke are the first and fourth leading causes of death in the United States. Heart disease is responsible for 1 of every 4 deaths in the country and the #1 killer of women.  But effective community CVD prevention interventions have been underutilized due to a lack of a coordinated national effort.  We must do something to change this, but what could be big enough?

Million Hearts is a national initiative by the US Department of Health and Human Services (HHS) that has set an ambitious goal to prevent one million heart attacks and strokes by 2017.

Million Hearts aims to prevent heart disease and stroke by:

  • Improving access to effective care.
  • Improving the quality of care.
  • Focusing clinical attention on the prevention of heart attack and stroke.
  • Activating the public to lead a heart-healthy lifestyle.
  • Improving the prescription and adherence to appropriate medications.

Each year there are approximately 2 million heart attacks and strokes in the United States. The campaign is expected to produce a 10 percent reduction in the rate of acute cardiovascular events each year for 5 years resulting in one million heart attack and strokes prevented.

The AHA applauds the launch of Million Hearts and is grateful for the opportunities we have been provided to help inform, shape, and support the initiative. We look forward to joining and partnering with the HHS in implementing this initiative, which has the potential to advance the mission and work of the AHA dramatically and to help us achieve our ambitious 2020 Health Impact Goal.

This initiative will focus, coordinate, and enhance cardiovascular disease prevention activities across the public and private sectors in an unprecedented effort to prevent one million heart attacks and strokes by 2017 and demonstrate to all that improving the health system can save lives.

Will you be one in a million?  Be one who makes the commitment to lead a heart-healthy lifestyle….do your part to live a life free of heart disease and stroke. 

Watch your inbox for our action requests to support You’re the Cure policy efforts around healthy living and prevention.  Open and click to help more of the million get there!

 

Thanks to volunteer writer/YTC advocate Karen Wiggins, for help developing this blog post.

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The FDA and New Tobacco Products

The FDA is accepting comments on its proposed deeming rules to cover new tobacco products. The rule proposed by the Food and Drug Administration (FDA) is to regulate electronic cigarettes, cigars and other tobacco products.  The AHA believes it is a good first step, but it doesn't go far enough to protect young people.  So, we are asking our advocates to submit comments to the FDA urging them to strengthen the regulation.

We know that the FDA pays close attention to the number of comments it receives. Their decision to extend the comment period (despite the objections of the public health community) was directly linked to the thousands of requests they received to delay the comment period. 

So, have you sent the FDA your comments?  This is a great opportunity to let the FDA know what you are seeing in your communities.  We have made it easy for you to submit, simply click here:  http://bit.ly/1l3kxzi.

A 2013 study in the journal Pediatrics reported youth exposure to television advertising for electronic cigarettes increased by 256 percent from 2011 to 2013, exposing 24 million U.S. kids to these ads. The researchers predicted that “if current trends in e-cigarette television advertising continue, awareness and use of e-cigarettes are likely to increase among youth and young adults.”  The study showed that the North Carolina Triad area had the most e-cigarette television ad exposure in the United States, as measured by target ratings points compiled by research firm Nielsen. There were 770 e-cigarette television ads in the Triad during the study's time period. 

With bright, colorful packaging and fruit and candy flavorings that appeal to children, it’s no surprise there has been a rapid increase in youth use of cigars and e-cigarettes. Help us tell FDA that stronger regulations are needed to protect our children from the harmful effects of tobacco.  Let the FDA know what you are seeing – tell them your story.  http://bit.ly/1l3kxzi

Do you need more information?  Please contact Betsy Vetter, Sr. Director of Government Relations (betsy.vetter@heart.org). 

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Teaching Gardens = Learning Laboratories for Kids

Studies show that when kids grow their own fruits and vegetables, they’re more likely to eat them. That’s the idea behind the American Heart Association Teaching Gardens.  While 1/3 of American children are classified as overweight or obese, AHA Teaching Gardens is fighting this unhealthy trend by giving children access to healthy fruits and vegetables and instilling a life time appreciation for healthy foods.

Aimed at first through fifth graders, we teach children how to plant seeds, nurture growing plants, harvest produce and ultimately understand the value of good eating habits. Garden-themed lessons teach nutrition, math, science and other subjects all while having fun in the fresh air and working with your hands.

Over 270 gardens are currently in use nationwide reaching and teaching thousands of students, with more gardens being added every day.  You can find an American Heart Association Teaching Garden in your area here or email teachinggardens@heart.org to find how you can get involved.

               

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Amy Edmunds

Amy Edmunds, South Carolina

Opening doors has been the most rewarding aspect of my volunteer experience. Since experiencing ischemic stroke in 2002, I have been an actively engaged volunteer throughout the Mid-Atlantic Affiliate.

Undoubtedly, the first door to open was my own! It has been an amazing transition to evolve from volunteer to spokesperson. But You're the Cure's comprehensive advocacy training helped hone my message and presentation to enable me to comfortably address the Rally for Medical Research last year to urge Congress to restore National Institutes of Health (NIH) funding. And, it was a treat to meet with AHA's CEO Nancy Brown and NIH's Executive Director Dr. Francis Collins!

Please, join me at hour 1, minute 15 to hear my message.

(Please visit the site to view this video)

For me, You're the Cure has afforded the opportunity to champion issues related to stroke among young adults from a local to national platform. Over the years, I have not only participated in numerous local Heart Walks, HeartBalls, and Go Red For Women events but also statewide lobby initiatives, national taskforces and Lobby Days. And, yes... even to the White House as a briefing attendee.??

So, go ahead and open the door to opportunity... for yourself as well as for those you love!

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Tell Us Who You Really Are!

Tailor your experience with us! Your profile on the You’re the Cure website is vital for us to convey our policy needs. Keeping our advocates informed and up-to-date on policy issues is the best way to guarantee that our advocacy partnership stays strong and when we need to make a move, we can reach you on the issues you are interested in.

When it comes to your personal advocate profile, we want to make sure you receive the information that you prefer and feel passionately about. It’s important that we know what policies most interest you.

CLICK HERE so we can make sure that you are presented with advocacy opportunities that truly speak to you.

It takes just a few moments to update your profile and interests, and those moments go a long way in ensuring that you hear the most current news and get action opportunities on issues that strike close to your heart.

As always, we thank you and appreciate you for what you have done, what you are doing now, and what you will do as a You’re the Cure advocate in the future.

Thank you for making a difference.

 

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