Ella Thomas Beames
My name is Ella Thomas Beames. I’m 11 years old. I live with my mom and dad and my dog, Lucky, that we adopted a year ago. He’s awesome. I’m a UofL fan and I love Jennifer Lawrence – she’s my idol.
Friday, September 2, 2011, started out like any other morning. But when I got to school everything changed. As I was walking into my classroom, I fainted. I’m told I turned blue because there was no oxygen going to my brain because my heart was beating too fast and wasn’t pumping the right amount of blood through my body with each heart beat. My principal, Deb Rivera, and my Librarian, Heidi Keairns, saved my life performing CPR on me. What I remember next was that I was sitting in a chair with oxygen and there were firemen all around me. Then my mom and dad got there. I remember everyone looking at me as they rolled the stretcher with me on it down the hallway through school. Then the ambulance took me to Kosair Children’s Hospital.
I remember my aunt and uncle came to see me in the ER and they started crying and so did I. I also got sick. I was just so scared. I didn’t know what was happening to me. I felt like a completely different person. They took me to do tests. When we were taken up to a room in the hospital, they did a brain test where they attached lots of cords to my head and they drew on me too. They used a strobe light and it made me feel kind of sick afterwards. Then the doctor came and told my mom and dad and my granny and me that I had Hypertrophic Cardiomyopathy. I didn’t know what it was but my mom was very upset. This is when part of the heart muscle thickens and can make pumping blood hard. It also can mean life-threatening arrhythmias – when your heart starts beating too fast and too irregularly. That’s what happened to me at school.
They told me I was going to have a pacemaker/defibrillator implanted in my chest. I was taken to the PICU. I had the nicest nurses who washed all the gunk out of my hair from the brain test and braided it. They were awesome. Then my friend Olivia cam to visit me along with my counselor and my old principal, Mrs. French. Over the next 4 days, about 45 people came to see me. Everyone in my class made me cards and we taped them on the wall of my half of the room. The surgery for the "device" went well. I got to go home just a couple days later. I had to sleep with my arm in a sling wrapped to my chest to the pacemaker leads would heal into my heart. I didn’t like it much, it felt very tight. But I had to do that for six weeks.
I had to quit playing soccer because I need to work at my own pace. But, I started a Drama Club at my school (we’re in our second year) and I’m in the scouts and I play violin. I also love to paint, draw and be creative. I’ve had to get used to being the "girl who fainted" at my school, but now it doesn’t bother me, because I’ve gotten to be a Heart Ambassador for helping my Coach at school, also, I feel strong because I’ve had to face my fears when my defibrillator fired four different times last April. My medicines are keeping my heart steady and my doctors tell me I’m doing great! My school has been doing Jump Rope for Heart for years, but this year I really wanted to get involved but I don’t jump rope, so I decided I could help by raising lots of money! We shared my personal page on my mom’s Facebook page and through that we raised more than $1,600.00! It makes me feel good.
I would tell other kids who learn they have a heart condition to be strong – it will be ok. Be comfortable to walk around the block with your pet. Like Lila in The Golden Compass said, "master your fear". And that’s my story.