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Advocate Spotlight: Jessica and Mason, Delaware

by Melissa B. on Tuesday, September 17, 2013

Jessica and Mason Delaware

Dear Mason,
The day you were born was the greatest day of our lives. We were so happy you were now a part of our family, but at the age of three weeks we were told you had a heart condition called Truncus Arterious and that you would need surgery to fix this problem. Mommy and Daddy weren’t prepared for this at all, but we knew that by going to A.I. DuPont, you would be in great hands. We weren’t exactly sure what was going to happen or what the future was going to bring for you and our family, but we trusted the doctors at DuPont to make your heart better

You had that first surgery in the summertime, and although you may not have been aware of what was going on around you, Daddy and I sure were. Believe me when I say that dropping you off at the operating room was one of the hardest things we had to do.Once that initial surgery was over, it was time for you to recover and time for us to reflect on what just happened and what lie ahead. We quickly found out that it would be a lifelong process for you — as well as for Mommy and Daddy. You would have to follow up with the cardiologist every 3-6 months, get an echocardiogram, numerous EKGs and then we’d all have to prepare for the next surgery. We were told that your defect was one that requires multiple surgeries, due to the fact that the artificial valve and conduit they implanted would not grow as you grow and develop.

Once that initial surgery was over, it was time for you to recover and time for us to reflect on what just happened and what lie ahead. We quickly found out that it would be a lifelong process for you — as well as for Mommy and Daddy. You would have to follow up with the cardiologist every 3-6 months, get an echocardiogram, numerous EKGs and then we’d all have to prepare for the next surgery. We were told that your defect was one that requires multiple surgeries, due to the fact that the artificial valve and conduit they implanted would not grow as you grow and develop.

It’s now six years later and what joy you have brought to our lives. We endured your second surgery in 2010 and you were a trooper. We are so proud of you and how well you did through the recovery. Mommy and Daddy — along with Mom-Mom, Pop-Pop and many other friends and family — are volunteering for the American Heart Association, in order to advance the research in the cause of congenital heart defects, the new and upcoming advances in the surgical process to possibly make things a little easier and also to help with the awareness and support for parents with children who have congenital heart disease. We also volunteer in honor of your Pop-Pop, who had a quadruple bypass, and your Uncle Sammy, who had Enlarged Heart Syndrome.

We look forward to many years and milestones throughout your life and hope that by participating and being a part of the American Heart Association, we can give parents of children with heart defects more hope.

Love,

Mommy, Daddy, Alexiana, Mom-Mom and Pop-Pop

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  • The gifts  of our children and what technology helps us do through human hands is truly miraculous.

    — Jennifer H.

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