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Christian's Story

by Grace H. on Monday, July 14, 2014

Written by Aimee Lybbert, Christian's mom

When our son Christian was born he appeared perfectly healthy. He passed all the standard newborn screening with flying colors. Every medical professional assured us he was fine. But in reality our son had a broken heart.


Our first thought after learning about Christian's heart defect two weeks after his birth was, why didn't the ultrasound show us that he had major congenital heart defects? We later learned that up to 25% of major heart defects are not detected during ultrasounds. 

We also later learned that although our hospital did a pulse oximetry test just after birth, they did not do another test when Christian was 24 hours old. It was not a hospital requirement.  When we asked our local hospital why the test wasn't done we were told that the cost of false positives were too high and they didn't want to scare parents and do unnecessary testing.  Congenital heart defects are the single most common birth defect.


Screening for Critical Congenital Heart Defects or pulse ox testing can detect seven different critical congenital defects.  Our son Christian has three of the seven critical congenital heart defects that it can detect. 

Today Christian is 16 months old. He's had two open chest heart surgeries and he will need at least two more. He will never be completely fixed or healed but with the help of his diligent medical specialists, he is thriving despite it all.  If he had received that second pulse ox test at 24 hours Christian would not have gone into full heart failure before his heart defects were detected. He would not have had to go into his first heart surgery with a weakened heart and an overtaxed body. 

I was honored to provide written testimony to the Washington State Board of Health in support of requiring pulse oximetry testing for all newborns, so that other families don’t have to experience what we went through. We're lucky that Christian made it, but not all Washington babies are as lucky.

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