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  • Blog Post: State Lobby Day: A Day to Remember

    We are excited that you are joining us May 10th for the 2016 NC AHA You’re the Cure at the Capitol State Lobby Day. To help you feel ready, we want to provide some important information about Lobby Day. Lobby Day Schedule : Registration check-in will open at 8:30 am at the Legislative...
  • Blog Post: Governor Haley Signs Lifesaving Hands-On CPR in Schools Bill into Law

    Governor Nikki Haley signed House Bill 3265 into law on Thursday, April 21, requiring all South Carolina students to learn hands-on cardiopulmonary resuscitation (CPR). This essential life skill will be incorporated into the already required high school health education curriculum and will ultimately...
  • Blog Post: We Want You... To Come To State Lobby Day

    Don’t worry! There is still time to register for NC AHA You're the Cure State Lobby Day on Tuesday, May 10, 2016. But if you haven't already signed up - don't delay! Sign up here . The event will begin promptly at 9am with an issues overview and advocacy training at the legislative...
  • Blog Post: Psst ... We Want To Tell You Something Big!

    Throughout the year, we reach out with a "THANK YOU!" message to our advocates because we want you to know that your efforts are making a difference and saving lives. We appreciate you every moment of every day. We value those times when you rush through dinner with your family to make to...
  • Blog Post: Your Advocacy Team is Hitting the Road in 2016!

    Mark your calendars to join us in 2016! The North Carolina AHA Government Relations Team: Betsy Vetter, Sarah Jacobson and Kim Chidester will be traveling across the state (from Asheville to Wilmington!) to offer two additional in-person Advocacy Training Sessions. In these workshops, we will offer...
  • Blog Post: You're the Cure Advocates Go Red!

    Go Red for Women is the American Heart Association’s campaign to raise awareness about women’s risk of cardiovascular disease and empower them to take control of their heart health.  It is a year-long campaign that culminates in February for Heart Month. All of the markets within the Mid...
  • Blog Post: State Advocacy Committee Meets

    On November 21, the North Carolina American Heart Association Advocacy Coordinating Committee met to celebrate achievements, bestow advocacy honors and discuss policy priorities. The committee had much to celebrate this year including the passage of stroke center designation rules, advancement of the...
  • Blog Post: Dana Powell

    Dana Powell, Mid-Atlantic Affiliate On January 1, 2012, our family began the year with the birth of our second son, Asa Heard Karchmer. Like all babies, Asa delivered love and wonder into our lives. But those dreams were abruptly shattered on day two of Asa’s life. We came home from Watauga...
  • Blog Post: Michele Coleman

    Michele Coleman, District of Columbia “This is not supposed to happen,” uttered Michele Coleman, remembering vividly the moment that cardiologists told her that her newborn baby was being rushed into open-heart surgery at seven days old. Little Dylan is Michele’s youngest of two...
  • Blog Post: Pulse Oximetry Screening Rules - Closer to Reality

    Many of you helped us in 2013 pass SB 98, Require Newborn Pulse Oximetry Screening. The Governor’s signature of the law was a big step forward to ensuring all newborns were screened but the work isn’t done yet. The law required rules to be written to implement screening all newborns with...
  • Blog Post: Pulse Oximetry Hearing Wows

    Everyone in the chamber for DC’s pulse ox hearing listened incredulously as parent after parent shared heart wrenching stories of newborns diagnosed with critical congenital heart disease (CCHD) and how use of a simple test called pulse oximetry saves lives. Every year, more than 6,000 babies are...
  • Blog Post: One Simple Test Could Save Your Baby’s Life

    Congenital heart defects claim the lives of more babies than any other birth defect. Fortunately, there is now a test that can help identify more than 90% of heart defects, catching these life-threatening defects before the baby even leaves the hospital. This life-saving test is called pulse oximetry...
  • Blog Post: Joye Mullis

    Joye Mullis, Mid-Atlantic Affiliate As with all children, my son’s story began well before his birth. I had a fairly easy pregnancy, tainted by a couple of scares early on, but then all appeared well at my 20-week ultrasound. I was healthy. Baby was healthy. Life was good. At 28 weeks...
  • Blog Post: Remembering the Heart of a Friend

    Last week, NC said good-bye to freshman lawmaker, Representative Jim Fulghum (R-Wake). He passed away on July 19 th after a short battle with cancer, at the age of 70. Representative Fulghum was a retired neurosurgeon and his medical experience was a true asset to the NC General Assembly. During his...
  • Blog Post: Look At All We've Done

    In the hustle and bustle of life, it seems there is always something that needs our attention. Maybe it’s a lunch appointment, a meeting after work – did you remember to call your mom to wish her a happy birthday? With so many things monopolizing our time, it begs the question: “Why...
  • Blog Post: Jodi Lemacks

    Jodi Lemacks, Virginia In June of 2003, my third child, Joshua, was born via c-section. Diagnosed with a Critical Congenital Birth Defect (CCHD) before birth, he was immediately whisked away to the hospital next door for his first of three open heart surgeries, without me even getting a glimpse of...
  • Blog Post: Celebrating Big Win for Babies

    These are exciting times in VA! Governor McAuliffe has signed House Bill 387 and Senate Bill 183 into law, and pulse oximetry screening of all newborns will soon be the standard of care in Virginia. This new statewide policy will guarantee that each newborn in Virginia is tested for Critical Congenital...
  • Blog Post: Heart of a Friend

    At our mid-December Advocacy Committee meeting, I got to do one of the best things about being a volunteer with the American Heart Association Advocacy Committee. I was privileged to present the AHA "Heart of a Friend" Award to North Carolina State Representative Jim Fulghum. Dr. Fulghum is...
  • Blog Post: Rep. Glazier Presented with “Heart of a Champion” Award

    Last week the American Heart Association honored Rep. Rick Glazier with the North Carolina Heart of a Champion Award, the highest honor bestowed by the American Heart Association on a legislator in North Carolina. Representative Glazier has been a consistent champion of all of the Heart Association’s...
  • Blog Post: “Heart of a Friend” Award and Eastern NC Advocacy Meeting

    Recently, NC AHA Advocacy Coordinating Committee Chair, Yolanda Dickerson and stroke advocate, Marie Welch joined a group of Eastern NC advocates and presented Senator Louis Pate (R-Wayne) with the 2013 NC AHA You’re the Cure “Heart of a Friend” award for his leadership and sponsorship...
  • Blog Post: From an ICU Incubator to Washington DC

    I'm Joye Mullis. Four and a half years ago, while sitting beside my infant son’s incubator in the Pediatric Cardiac Intensive Care Unit at Duke University Medical Center, I could have never imagined his story playing out quite like it has. Not only has Ethan endured multiple surgeries and procedures...
  • Blog Post: Policy Win for Babies!

    Maryland hospitals will be saving more babies through the use of pulse oximetry screening for newborns because of regulations You’re the Cure helped put in place this session. What, you say??!! You don’t remember getting alerts asking you to send letters to your legislators about that! ...
  • Blog Post: Looking Back at the 2013 Legislative Session

    The South Carolina General Assembly just adjourned its 2013 session, and it was an exciting cap off to an outstanding session. We achieved the final passage of S 341 which will require pulse ox screening for all newborns – the bill now heads to Gov. Haley for her signature. Staff, our bill sponsor...
  • Blog Post: The Jones Heart Beat, volume 6

    Lawmakers have been busy with the state budget and tax reform during the past few weeks. This week the House of Representatives passed their version of the state budget. We were disappointed that the House did not include any funding for tobacco use prevention programs, mirroring the Governor’s...
  • Blog Post: The Emerson Rose Act Needs Your Help!

    Tragically, Emerson Rose is no longer with us, but she is still having a significant impact on the lives of babies born in our state. Her parents, Jason and Susan Smith of Clemson, SC, are working closely with You're the Cure to pass a bill that will help protect other infants born with Congenital...