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  • Blog Post: Share your Story: Alli Sidel

    Alli Sidel Michigan Hi! My name is Alli. I was born on May 12th, 2012 in seemingly perfect health. My parents and big sister Emma were so excited to meet me. On July 20th, 2012 my family took me to our family doctor for my regular 2-month well baby visit, and while there – my doctor heard...
  • Blog Post: Share Your Story: Stephani Remetta

    Stephani Remetta Indianapolis, IN Stephani was born with a congenital heart defect that went undiagnosed until she was 27. Told she had a heart murmur, the more serious condition was finally diagnosed after the birth of her son. The diagnosis, accompanied by the news that she would not be able to...
  • Blog Post: Meet Doug Chew!

    My name is Doug Chew and I'm a survivor and an advocate for the American Heart Association's "You're the Cure" community. I'm writing a blog about myself and my work as an advocate with the hope that something I say or do will save a life. I'm also hoping that you'll...
  • Blog Post: Share Your Story: Angie Eoff

    Angie Eoff Saint Louis Park, MN At the age of 25 I was diagnosed with Idiopathic Cardiomyopathy, a rare but serious condition that causes the heart muscle to become inflamed and to work less efficiently. Over the next 6 years, I was implanted with an ICD twice and gave birth to a son in 2007. I was...
  • Blog Post: My Story: Jimmy Leiter

    Jimmy Leiter Deerfield, IL I was getting ready to play football during my senior year of high school. I had to see my family doctor to get my physical done, and because of a heart murmur and some other heart issues from when I was younger, the doctor insisted I get an echo. He told me that he wouldn't...
  • Blog Post: Share Your Story: Jolene Tesch

    Jolene Tesch Shakopa, MN A poet once wrote of a dear friend’s death, “…‘tis better to have loved and lost than never to have loved at all.” On August 11, 2010 I truly understood the depth of this quote. The life-long pain of loss can be eased by the memories you shared...
  • Blog Post: Kansas Hospitals Not Required to Administer Lifesaving Pulse Ox Test to Newborns

    A simple test could save a child’s life, but hospitals in Kansas are not required to offer it. This inexpensive, easy, lifesaving test to detect critical congenital heart defects, known as pulse oximetry, is required in more than 30 states across the country including Missouri. The Kansas Department...
  • Blog Post: A big win for Wisconsin!

    On Monday March 3rd, Governor Scott Walker signed Senate Bill 523 into law. This bill gives the Department of Health Services (DHS) the authority it needs to add congenital heart defect screenings to the list of screenings that all newborns receive before they leave the hospital. The American Heart Association...
  • Blog Post: If We Can Save a Child's Life With a Simple Test, Shouldn't We?

    Recently the New York Times published an article talking about Pulse Ox titled “ The Simple Test That Saved My Baby ” stating that “The new screening is recommended by the United States Department of Health and Human Services, the American Heart Association and the American Academy...
  • Blog Post: It's Official: Pulse Ox Screening Required for All Illinois Newborns

    Governor Quinn signed HB 2661, our bill requiring that all newborns in Illinois be screened for critical congenital heart defects via a quick, cheap, and non-invasive pulse oximetry test! This bill ultimately took just over a year to pass, beginning with the terrific work of our dedicated volunteers...
  • Blog Post: Share Your Story: Sara Chrzanowski

    Sara Chrzanowski Marengo, IL When I was 6 months old it was discovered I had a heart murmur. A catheterization was done to determine the issues. The defect was not determined to be severe enough to repair it at that time. Shortly after I moved to Illinois from Michigan with my family. My heart was...
  • Blog Post: My Story - Lynn Paulson

    Lynn Paulson South Dakota For two years, I played a dangerous game with my heart. I kept experiencing a racing heart and shortness of breath episodes that lasted a few minutes at a time. With my busy work and travel schedule, I just chalked it up to normal anxiety and stress, but when my symptoms...
  • Blog Post: Pulse Ox screening in the news

    Check out this recent article from the Milwaukee Journal Sentinel about the efforts to ensure that all babies in Wisconsin are screened for congenital heart defects before they leave the hospital. The article leads off with a story from one of our You're the Cure advocates: Hope Patchak thought...
  • Blog Post: You're Invited! Governor to Hold Ceremonial Signing of Pulse Oximetry Legislation

    This is the day we have been working towards and waiting for - Governor Branstad will hold a ceremonial signing of the pulse oximetry legislation on Wednesday, July 17th, which will mandate pulse oximetry screenings for all newborns in Iowa. YOU'RE INVITED - Governor's Signing of Pulse Ox...
  • Blog Post: Share Your Story: Mandy Forkner

    Mandy Forkner Iowa As a mother, I'm thrilled that the State of Iowa just passed pulse oximetry legislation that requires all newborn babies to be screened for critical congenital heart defects prior to leaving the hospital! Congenital heart defects are the number one birth defect. Take it from...
  • Blog Post: Governor Nixon Signs Chloe's Law!

    Governor Nixon signed Chloe's Law (HB 230) on Tuesday morning, July 9th at St. Louis Children's Hospital, mandating pulse oximetry screenings for all newborns in Missouri! For over a year, we have been working to pass legislation that would require all newborn babies to be given a pulse oximetry...
  • Blog Post: Share Your Story: Austin Redd

    Austin Redd Missouri I left for school the morning of May 13, 2010 just like any other morning...but that day would end up very different than the rest. I collapsed at school because of what we now know was an undetected birth defect. I had no warning signs before my collapse. Due to the quick...
  • Blog Post: My Story - Jeremy Aylward

    Jeremy Aylward South Dakota My journey began when I was in the seventh grade. I was diagnosed with bicuspid aortic valve stenosis and insufficiency with ascending aorta dilatation and left ventricular hypertrophy. At the age of 18, I underwent my first open-heart surgery, a total aortic valve replacement...
  • Blog Post: AHA Letter to the Editor

    Below is a letter to the editor written by Lynne Braun, our State Advocacy Committee Chair and submitted to newpapers across Illinois. The letter recently ran in the Chicago Sun Times among other publications throughout the state. Editor: Contrary to recent headlines, lead-stories, and popular belief...
  • Blog Post: Our Story - Ethan and Polly Rames

    Ethan and Polly Rames South Dakota Our 3rd son, Ethan, was born with a congenital heart defect known as Transposition of the Great Vessels. We were fortunate that the excellent staff at our local hospital discovered his condition prior to his birth so that we could prepare for the most difficult experience...
  • Blog Post: My Story - Michelle Tipton

    Michelle Tipton North Dakota I lost my teen age son to a congenital heart defect. On March 25 th , 1999, I was the mother of two boys, Shannon, 17 and Dustin, 12. Around noon, I received a phone call from Shannon’s high school. He did not make it to school that day. My father found Shannon dead...
  • Blog Post: Critical Congenital Heart Defect bill HB 2661 passes the legislature and heads to Governor for signature!

    We are very excited to announce that the Pulse Ox bill, HB 2661, has passed the legislature and is headed to the Governor's desk for his signature. Thanks to so many of you who went above and beyond by submitting witness slips and You’re the Cure action alerts throughout the spring, our...
  • Blog Post: Illinois Pulse Ox Bill is One Step Closer to becoming a Law

    We have exciting news to share from Springfield on HB 2661, the pulse ox bill - last week the bill passage out of the Senate Public Health Committee 9-0! Now the bill moves forward to be voted on by the entire Senate. We need your help to urge your Senator to vote YES and pass this bill successfully...
  • Blog Post: House Passes Pulse Ox with 88-4 Vote!

    Guess What? The House just passed Pulse Ox with a vote of 88-4! Thank you to everyone for keeping the momentum going! They heard us loud and clear…but even though we are very close to ensuring that all Iowa babies are screened for congenital heart defects, it’s not a done deal yet. We...
  • Blog Post: The Ultimate Mother's Day Gift

    Guest Blogger Kelly Manz describes why having Chloe’s Law finally reach the Governor’s desk is the ultimate Mother’s Day gift! When I began this journey in 2009, I had no idea what I was getting myself into. I was on a mission and I jumped in head first! I started with baby steps...