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Lori Valencia Greene, Maryland

Lori Valencia Greene is a woman of many hats: mother, daughter, friend, student, and an advocate for change in her community. She was surprised at the young age of 47 to also find herself a stroke survivor!

Lori has always had a desire to make a difference. Because of this she volunteered in her native District of Columbia since she was a teenager.

Lori first became involved with advocacy work in 1985 when she took a job as a legislative assistant on the Hill where she worked for 10 years, including two stints as Legislative Director. She fell in love with the work and eventually took jobs lobbying for Planned Parenthood Federation of America, the National Black Women's Health Project, and the American Psychological Society (APA). While working for the APA, Lori was an advocate for a bill that would eliminate race and ethnic health disparities. One of her proudest moments was seeing this bill turned into law. She says, “I like advocacy work because I feel like I am making a difference, particularly when I am advocate for people who can't advocate for themselves.”

Lori’s stroke experience brought her many challenges, but it also gave her a new drive for advocacy work. “After going through the whole process I realized that there is still a lot of work to be done. I had great care, but there were things that could have been improved and there is still a lot that isn't known about why people have strokes.” After her stroke, Lori stumbled on the American Heart Association web page where she happily signed up for advocacy volunteer work, and has been an active advocate for You're the Cure ever since. She is currently serving on an advisory committee for You’re the Cure.

Of all of the experiences that Lori has had, she says she is most gratified by her advocacy work. Lori’s advice to advocates is to have passion and patience. “Don't give up. Just don't give up. Its' easy to give up, but don't do it. The people you are advocating for need you.”

Are you passionate about advocacy? Tell us your story HERE.

When I had a stroke four years ago, I was a healthy, happy student at the University of Maine. One minute I'm sitting in class, and the next my face started seizing up.  And then I couldn't understand what people were saying. Concerned family members took me to the ER, where I was accused of faking my symptoms in order to escape my finals. Fortunately, my brother spoke up for me, attracting the attention of another clinician who recognized what was happening.  I was incredibly fortunate to have made a full recovery, but I am also aware every day of how easily things could have gone the other way. 

Having a stroke changed my life. I was able to access the vital services and medical care that I so desperately needed, but I know there are so many families who don't have the financial resources to aid in recovery.  And so many people suffer permanent disability from strokes just because no one around them knew what was happening.  Despite the setbacks of a second stroke and brain surgery, I recently graduated from Columbia University with my Masters Degree in Public Health. My survival has given me a new purpose in life.  I want to use my public health education to make sure every stroke victim is as fortunate as I have been.

Our world is full of the unexpected, and the American Heart Association's mission helps to minimize some of those unanticipated setbacks from heart disease and stroke. I cannot thank you all enough for allowing me the opportunity to support the fight to raise awareness, reduce stroke, and save lives.

We recently had the pleasure of meeting an amazing new advocate!  Steve Goulet is a cardiac arrest survivor - and now he's on a personal mission to save lives with CPR.  Check out his incredible story in The Providence Journal:

Photo credit: The Providence Journal

http://www.providencejournal.com/article/20150604/NEWS/150609610 

A story of revival: Woonsocket EMT's cardiac arrest becomes mission to save lives with CPR

After a long day of work at his garage in 2006, Steven Goulet sat down at the bar with his buddy and ordered a cold beer.

He didn't have so much as a sip. 

The moment the drink arrived, his eyes rolled back and he slumped over, his head hitting the bar. 

Goulet doesn’t remember any of what happened next — not the nurse who rushed to his side, not the frantic chest compressions she and others performed, not the 22 minutes that passed before his pulse could be restored. At 27, he was in full cardiac arrest.

Even if Goulet survived, the doctors told his family as he lay comatose in the hospital, he’d probably be severely brain damaged.

But when Goulet finally came to, not only was he his old self, but he quickly learned that CPR had likely saved him. It was a life-changing experience.

Since then, Goulet, eager to save other people's lives, has become an EMT and performed CPR on countless patients.  He's also sought to encourage everyday people to learn basic CPR skills.

“It’s amazing,” he says after recounting what happened to him in the bar nine years ago. “If nobody knew how to do CPR, I would have never made it.”

Nurse wouldn't give up

Born and raised in Blackstone, Mass., owned a car repair business in his hometown before his life would forever change. It meant working long hours. When his friend stopped by the garage close to 11 p.m., he was surprised to see Goulet still at work. 

“He said, let’s go grab a beer,” Goulet said. 

On reflection, Goulet said he was fortunate he hadn’t been left alone — and even more fortunate that a nurse was at the bar when they got to the Millerville Club. When his buddy yelled for help, she began CPR and, when she tired, got others in the bar to help take turns. 

Again and again they checked for a pulse. Nothing. It went on for about 15 minutes. 

“People said, ‘Stop, stop. He’s going to be brain dead,'" he later learned. But, he said, “She just kept going.” 

Town paramedics arrived after about 15 minutes. It was another seven minutes before they restored his pulse. Brain damage can occur after as little as three minutes without a pulse and death in as little as four to six minutes, according to the National Library of Medicine. 

Goulet initially went to Landmark Hospital in Woonsocket before being transferred to Rhode Island Hospital. Meanwhile, an emergency room physician at Landmark, who after going home puzzled over what caused Goulet’s cardiac arrest, stumbled upon something in a medical text that he thought was the answer.

It was Brugada syndrome, an electrical disorder in the heart that can cause lethal arrhythmias and is sometimes genetic. He called doctors at Rhode Island Hospital and, although Goulet had no family history of Brugada, his suspicions were later confirmed. 

Surgeons implanted a defibrillator in Goulet's chest to shock his heart when the abnormal ventricular rhythms occurred. But because they were happening so frequently, he later began taking a medication that dramatically reduced the need for those shocks.

A new life

Returning to running his garage was too stressful. So Goulet, who is married with children, set out to find a new career. After learning that his condition prevented him from becoming a truck driver, he began taking EMT courses, inspired by his own experience. 

“That’s why I wanted to be an EMT. I felt like I’d have more compassion for people and what they were going through,” Goulet says. “If that happened to someone else, I wanted to help them the way people were able to help me."

Eventually, he earned an “EMT-Cardiac” license. After volunteering and working part-time for the Chepachet Fire Department, he took a full-time job in Woonsocket with Medtech Ambulance. 

Coincidentally, on Goulet's first day on the job, he was assigned to ride with Michael Marcoux, who was the leader of the team of paramedics that helped save his life. As a deputy fire chief with the Blackstone Fire Department, Marcoux joined two other EMTs in taking over resuscitation efforts from the nurse, bar customers and a police officer who arrived moments earlier. 

“It was an awesome team effort,” says Marcoux. When it comes to cardiac arrest, “very, very seldom do you have an outcome like Steven.” 

Since becoming an EMT, and joining a busy ambulance service, Goulet figures he’s administered CPR hundreds of times. 

“I’ve saved lives and gotten them to the hospital. Even if I hadn’t gotten a pulse back … [the emergency room] had a viable patient to work with,” he says. “ It’s a passion now. I’ve never been happier than what I’m doing now.”