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Staying Active in the Heat of Summer

If you’re like me, summer is the best time of the year.  Ample sunshine, longer days, vacations, sporting and music events galore, what’s not to love about summer?  But now that we’ve hit August, being active in the sweltering heat can be more challenging. 

 

Here are some of tips to staying cool while it’s hot outside:

  • Timing is key: Try to avoid exercising outside in the early afternoon. It’s usually hottest between noon and 3 pm (or 7pm if you’re inland).
  • Hydrate: Drink water before, during and after physical activity, even if you don’t feel thirsty.
  • Dress for success: Wear lightweight, light-colored, loose-fitting clothes. Moisture-wicking fabric can also be a big help.
  • Listen to your body: Take frequent breaks in the shade, and allow yourself time to adapt to the heat -- some experts say that this can take about 4-14 days. You may not be able to work out as long or as hard as usual when it’s very hot. When it’s too hot, do something active indoors.      
  • Doctor’s orders: Check with your healthcare professional before starting an exercise routine or moving your workout outdoors if you have cardiovascular disease, diabetes, other chronic disease or any medical concerns. Healthcare professionals also recommend that certain medications like beta blockers, ace receptor blockers, ace inhibitors, calcium channel blockers and diuretics can exaggerate the body’s response to heat.
  • Buddy up: If you can, work out with a partner for safety ... and fun!

 

For more tips and tricks, visit here.  

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Advocate Spotlight: Cindy Peterman

After 35 years of smoking, bouts with bronchitis and increasing prices, Cindy Peterman decided it was time to quit and she credits the recent price increase for tobacco products in Nevada with helping her.

 

“Last year on July 4th weekend when I went to buy cigarettes I realized with the increase I can’t do this anymore; I have rent to pay. I am so grateful for the increase. It led to me quitting for good,” said Cindy.

In addition to the tax increase, Cindy’s can-do attitude and positive outlook on life made it easier for her to quit. Prior to moving to Las Vegas to be near her son and grandkids, she owned both a restaurant and home in Texas. When the recent recession hit, Cindy lost the restaurant and then her home.

 

“After going through all that change, I thought I can make another change in my life,” she said. 

Upon deciding to quit, Cindy visited her doctor and received the patch (covered by Medicaid). While the patch has four cycles, Cindy only used it for the first cycle.

 

“I have not smoked or used the patch since,” she said.

 

Her son is overjoyed that she quit and she notes how important it is to be a good example for her grandkids. In her job at checkout at Walgreens, Cindy has discovered many of her customers are quitting since the tobacco tax increase. She shares her story to encourage them and now they have formed a small support group. Cindy also hopes by sharing her story with the AHA/ASA, she can inspire even more people to quit.

 

Most of all, Cindy is enjoying her new smoke-free life.

 

“At age 65, I enjoy having the time to start my life over,” she said.

 

Thank you, Cindy, for sharing this wonderful example of how smart, strong public health policy can positively affect the lives of individuals and communities. Keep up the good fight, Cindy!

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How fate brought together three stroke survivors' families

The following article about You're the Cure advocate Ryley Williams and two other youths who survived strokes on the same day was published by AHA CEO Nancy Brown in the Huffington Post on July 6th, 2016. A link is provided at the end of the story.

In the community of Dartmouth in the Canadian province Nova Scotia, Nik Latter’s family is throwing what his mom promises will be “a big ol’ party.” Fist bumps and hugs will celebrate the fact he’s made it an entire year since his devastating July 8th.

One by one, over each of the last three July 8s, Ryley, Amber and Nik suffered a stroke. Yet the oddity of their shared date is only part of what led their moms to create a de facto support group.

What really brought them together is that Ryley, Amber and Nik were — and still are — teenagers.

Ryley was 15 and devoted to becoming the starting nose guard on his varsity football team. Amber was 13 and loved playing softball and hanging out with the two girls who’d been her best friends since kindergarten. Nik was a few days shy of 18 and had left school to work at a restaurant; he’d bought a car and aimed to become a voluntary firefighter following that upcoming birthday.

Now, well, their dreams are different.

As we approach July 8, the families allowed me to share their stories to send an important message: Stroke can attack anyone at any time.

***

Ryley Williams went into the summer following his freshman year at Bentonville (Arkansas) High with one goal. He wanted to draw the attention of the varsity football coaches.

So he ran and lifted weights. He ate six meals a day, devouring only foods that would expand his 6-foot, 242-pound frame the right way.

“Honey, you’re never late, you make good grades, you don’t cause any problems — trust me, the coaches notice you,” his mom, Terri Rose, told him. “They just won’t tell you they notice you.”

The morning of Monday, July 8, 2013, Ryley went to an indoor field for football practice. He was stretching when he grabbed his leg and collapsed. Everyone thought he’d pulled a muscle and overreacted. Then they realized there was more to it.

At the hospital, a brain scan showed a bigger problem than the facility could handle. He was flown by helicopter to Arkansas Children’s Hospital in Little Rock. It wasn’t easy fitting someone his size into the chopper.

When they landed, seizures began. Off he went for an MRI. Looking at the results, the doctor pointed to five spots.

“This is a stroke, this is a stroke, this is a stroke, this is a stroke and this is a stroke,” the doctor said. “We need to find out why he has so many blood clots in his brain.”

Around 3 a.m. Wednesday, they still didn’t know why. And now they had a new problem. Ryley’s brain was swelling.

He underwent an operation to remove part of his skull. With Ryley sedated, doctors also took a closer look at his heart. They found hair-like strands of a bacterial infection on the outside of two valves. A-ha! This was the source.

Next question: How much brain damage had he suffered? His right side didn’t function. Doctors cautioned he may never walk or talk.

As Ryley was coming out of his medically induced coma, some football players visited. Coaches, too. They brought a varsity jersey with his number, 99.

“The head coach drove down to Little Rock and stayed with us when Ryley had the skull surgery,” Terri said. “Other coaches came to visit, too. They told us they were watching him. They knew he was going to have a big year. Hearing that was bittersweet.”

Fast forward to today.

His right arm remains compromised. He also battles aphasia, a condition that sometimes makes it hard for him to get words out. Still, Ryley recently graduated high school, right on time. He even spent the last year working at a Walmart Neighborhood Market. And he’s become an advocate for the American Stroke Association. Last year, he and Terri encouraged a Congressional subcommittee in Washington, D.C., to support more funding for research and awareness about pediatric stroke.

He’s spending this summer at a facility that specializes in neuropsychology recovery for victims of strokes and traumatic brain injuries. He’s learning skills to live on his own, although he plans to spend two years at home while attending Northwest Arkansas Community College.

“He’s incredibly positive,” Terri said. “He’s accepted everything. He tells you, `This is who I am now.’”

***

The night of July 8, 2014, Amber Hebert was on first base when the next batter hit the ball to the outfield.

Amber ran to second base without anyone trying to get her out, then fell as if she’d been punched. She vomited and went into a seizure. Her 5-foot-3, 86-pound body thrashed so violently that four firefighters held her down while a fifth injected her with medicine.

The local hospital in Bellevue, Nebraska, ended up sending her to Children’s Hospital & Medical Center in Omaha. The seizures continued until 3 a.m.

“When she finally stopped seizing, she was able to see and talk and understand you,” said her mom, Tirzah Hebert. “But I could see the fear in her eyes.”

Tests — and seizures — continued throughout the next day. Finally, doctors declared she’d suffered a stroke.

The next day, Amber sat in a chair holding a cup and walked around her hospital floor. The following day, she had a bit more difficulty holding a cup but could still walk. That night, Tirzah asked if she understood what had happened.

“I don’t know,” Amber said.

The next day, a Saturday, Amber couldn’t walk, talk or hold up her head. This continued until Tuesday, when she finally underwent an MRI. It showed that her brain was swelling.

Doctors were able to reduce it with medicine. Then came the waiting game to determine the extent of brain damage. Soon, she began smiling and communicating with her left hand — fist for yes, open palm for no.

These days, Amber walks, but sometimes the toes on her right foot curl, causing her to drag her foot.

She can’t move her right hand or wrist. She also has aphasia. Therapists believe that with practice she’ll improve in every area. (Doctors never determined the cause of her stroke.)

Alas, there have been other obstacles.

Shortly after Amber made it home, her dad’s dad — with whom she was very close — died of cancer. Four months later, a lump in her dad’s neck was found to be cancerous. Early detection plus chemotherapy and radiation helped him beat it.

School proved no refuge. She went from being one of the most popular girls at school to getting bullied. Her two lifelong best friends “just disappeared,” Tirzah said. Amber switched to homeschooling until giving the classroom another try this summer.

“She’s a happy girl, for the most part, very loving and caring,” Tirzah said. “She still has some depression, but who wouldn’t? To have your life completely turned upside down like hers has?”

***

Even as a child, Nik Latter struggled with migraines. So, last June, when he had one that was bad enough to go to a hospital, nobody thought much of it.

Nor did anyone think twice when he left work complaining of a migraine on Sunday, July 5, 2015.

The next day, he endured what he described as the worst migraine he’d ever experienced. He wore sunglasses indoors and had his mom, Rhonda, drive him to a clinic. The next day, he slept at his grandparents’ house because it was quieter than being home with his two younger sisters.

Rhonda visited him Wednesday, he stared blankly. He tried talking, but nothing came out.

“He’s having a stroke,” she declared. “Call 911!”

A scan showed a mass on the right side of his brain. During an operation, doctors determined it was a stroke. Days later, it was determined the cause was a sinus infection gone severely wrong. The infection broke the barrier between the sinus and the brain, releasing a blood clot.

Nik’s recovery started great. He gave hugs, pulled his mom’s hair and played thumb wars with his sisters. Then, in the early hours of July 16, he had another stroke. On the other side of his brain.

Doctors said Nik may not survive. But the family wanted to give him every chance. Their faith was rewarded when he was weaned off the breathing tube.

He continued clearing hurdles, although he remained hospitalized until March. The long struggle seemed to deflate him; being home reinvigorated him. He now puts his right foot down and pushes his wheelchair. He fist bumps with his right hand, laughs, smiles and kicks.

He makes sounds and, sometimes, says words. Not enough to say he’s talking. But he’s trying.

“He’s very aware of his surroundings,” Rhonda said.

***

While each stroke story is different, every stroke shares similarities.

Time lost is brain lost. The sooner the stroke can be recognized, the sooner treatment can begin. The gold standard of treatment is called tPA. If this clot-busting drug is administered within three hours, and up to 4.5 hours in some cases, the extent of recovery can improve drastically.

That’s why the American Stroke Association urges everyone to remember the acronym FAST. When you see Face drooping, Arm weakness or Speech difficulty, it’s Time to call 911.

Stroke is the No. 2 killer worldwide and No. 5 in the United States. While it’s true that strokes usually happen to older people is true, Ryley, Amber and Nik are proof that’s not always the case.

The world of pediatric stroke is small enough — and the pull of the internet is strong enough — that families of survivors are bound to find each other.

For instance, Terri connected with Lea Chaulk, a Canadian mom whose son was about the same age as Ryley and had a stroke about the same time. Terri and Lea became like sisters as they helped their sons grieve over the lives they lost and learn to embrace their new reality. Lea later introduced Terri to Rhonda.

Meanwhile, Ryley got to know four teenagers from the Kansas City area who were featured by American Heart Association News after they overcame strokes during high school to graduate on time. One of those families had gotten to know the Heberts, and they connected Terri and Tirzah.

The three moms — Terri, Tirzah and Rhonda — lean on each other often. They’ve yet to meet in person, although Ryley and Amber have shared messages via Facebook.

“Knowing that I’m not alone has helped soooo much,” Tirzah said.

“If I didn’t have some of these moms, I think I’d go insane,” said Rhonda, laughing. “Sometimes I sit down and get lost in thought and get upset. Then I’ll send one of them a message saying `I need you to bring me back down to Earth.’”

Three families irrevocably altered, all on a July 8. It’s incredible. Yet from this coincidence comes strength.

“I’ve told my family, `Look, it happened to two other kids on the same day,’” Tirzah said. “It’s like, Wow. And we’ve all made it this far. And you know what? We’re going to keep on going.”

Read the rest of the story on the Huffington Post.

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Find the Heart Walk Near You

The Heart Walk is the American Heart Association’s premier community event, helping to save lives from heart disease and stroke. More than 300 walks across America raise funds to support valuable health research, education and advocacy programs of the American Heart Association in every state. Our You’re the Cure advocacy movement – and our public policy successes along the way – are all made possible by the funds raised by the Heart Walk. Whether it’s CPR laws passed to train the next generation of lifesavers or policy to regulate tobacco products and prevent youth smoking,  together we are building a world free of cardiovascular diseases and stroke. The Heart Walk is truly a community event, celebrating survivors, living healthy, and being physically active. We hope you’ll join us and visit the site today. If there is not a walk listed in your area soon,  it may be coming in the spring season or you can join a virtual event. And don’t forget to connect with your local advocacy staff and ask about your local Heart Walk day-of You’re the Cure plans - they may need your help spreading the word. Thanks for all you do, and happy Heart Walk season.

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What are you actually drinking?

We all know that certain drinks have added sugar in them but how easy is it to really know just how much?  Sometimes even when reading the nutrition label, understanding grams of sugar just doesn’t really make sense in practical terms. This graphic from the Center for Science in the Public Interest does a great job demystifying just how much sugar is in some of the most commonly consumed beverages.  For your heart health, make sure you know what you are drinking during these hot summer months. And remember, a glass of cold water is not only refreshing but it is sugar free!

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Knowing CPR Saved My Son

A lifesaving event retold by Kristy Stoner

In June 2014, my friend Erin and I planned a pool day together as we decided we would spend the afternoon together at her private community pool, where we could eat lunch and chat while the kids could swim. We both have 4 kids all under the age of 8. The day went pretty much as expected, perfect weather, kids got along and we were having a great time.

Towards the end of the day, I had a distinct thought “It’s quiet…” and in a home of 4 boys, quiet is NEVER a good thing, unless they are sleeping. I looked over and noticed only 3 boys, off to the side of the pool. And, after a quick scan of the pool I said “Where’s Max?” Almost immediately Erin yelled, “Kristy! He’s in the water!” I had noticed in the middle of the deep end a small, slightly darker area, all the way at the bottom. My heart dropped when I realized that tiny, hard to see figure was in fact my little boy’s body. What else could it be?!

I knew I had to get him out and I had to do it fast! All in a matter of seconds Erin had taken my 8 month old baby, Harry, from my arms and I jumped in the pool.  Mid jump I remember noticing how calm the water was. There were no signs of struggle on the water. Then I noticed his body-hunched over in an upside down U position, with his arms hanging down and his back at the highest point just like in the movies.

Once I grabbed him and made my way to the side of the pool, Erin called 911. When I got to the side, I tried to throw his body out, but again, I was brutally disappointed when I realized how heavy his lifeless body was.

Once I got him out of the water, I rolled him onto his back, I then realized the color, or lack thereof, of his face. His face, lips, and eyelids were completely bluish grey. All I remember thinking was, "Time to make him breathe.” So I took a large settling breath and proceeded with CPR techniques I learned 10 years ago!

I'm not sure how long I was working on him, we guess it was about 2 minutes, but I remember noticing when I would breathe for him, the color would come back to his face a little at a time.  At one point, Max's eyes flickered a little and I remember the sense of gratitude that rushed over me at that moment. Then all at once, his eyes opened as wide as they could possibly go. He tried to breathe, but he still couldn't, so I breathed for him a couple more times and then set him up to try and get him to breathe on his own!!

I could hear the water inside of his breath so Erin handed me the phone to talk to the 911 dispatcher. The dispatcher wanted me to calm him down, so his body would be able to throw up the remaining water in his lungs. Eventually, he threw up. It was 99% water.

The EMT's arrived a few moments later and started checking him. I'm so glad they brought a fire truck too, because that made Max happy and helped to cheer him up. He talks about it now when he tells the story. How he got to see a fire truck up close and ride in an ambulance!

In the ambulance, Max didn't want to talk much, but he did provide his explanation of events:  "I was swimming on the red floaty, my arms slipped off. I tried doing my scoops (swim strokes), got tired and then I sinked!” Once they knew he was stable they let him go to sleep.

At the hospital, I answered a lot of questions, but am still surprised how many people wanted to know "What did you do?" "How did you do it?" "How long did you do it?" Everyone was so encouraging, so positive, and so sweet to me. I consistently heard "Good job mom! You saved his life!"

Eventually, I was able to talk to the RN watching over Max. He told me "how lucky we were," and I asked him with a drowning like ours, what were the chances of full recovery. He replied with "It is a miracle he is alive." Alive?! A miracle that maybe he didn't have water in his lungs or any noticeable long-term damage, yes, but, a miracle he was alive? Really? Why wouldn't he be? I sat and thought about that for quite a while. Maybe I did do something right. Maybe, just maybe I did save his life! I had no idea! We later asked the doctor why people don't do CPR and the doctor said "either fear, panic, fear of doing something wrong and causing more problems, or the fact that it's gross." We were shocked! But, more importantly, I was so happy that the idea of not doing CPR had never even crossed my mind.

Truth is that 80% of sudden cardiac arrests (when the heart suddenly stops) happen out of a hospital setting, while only 40% of those victims receive CPR on the spot before EMT's arrive and only about 10% of sudden cardiac arrest victims survive the event.

Since the incident Max has made a full recovery; he even persuaded me to let him swim the NEXT DAY!! My lasting thoughts are that we cannot watch our kids 100% of the time. We can’t. We need to teach them to be smart and how to protect themselves. As parents, we also need to be prepared. Be prepared on how to respond in an emergency situation, learn CPR and first aid training that could save the life of a loved one!

If you want to refresh your knowledge of CPR techniques, please visit here.

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Recap of 2016 Regular Session and Sneak Peek into Special Session

Thanks for your support over the last few months. It has be an extremely busy legislative session and I wanted to provide a brief recap.

 

You may remember session starting off very fast and furious with us simultaneously working on two tobacco control policies: a $1 increase to the state’s tobacco tax and continued efforts on the smoke-free indoor workplaces bill.

 

At the beginning of this legislative session Governor Walker proposed Senate Bill 133 which would increase in the state tax on tobacco products by $1 per pack of cigarettes to reduce tobacco use and raise revenues.  SB 133 was heard in the Senate Labor and Commerce Committee, but was held prior to a vote.

 

SB 1, our Smoke-Free Workplaces bill, flew through Senate Committee hearings and passed off the Senate Floor with overwhelming support. Unfortunately, the bill didn’t make it out of committee before the end of regular session.

 

While the regular session ended without a number of issues being resolved (including SB 133 or SB 1). Governor Walker called the State of Alaska into special session to discuss a number of pending fiscal issues including a $1 increase to the state’s tobacco tax.

 

Please see here, specifically item 6, for the official proclamation from Governor Walker.

 

Special session is expected to move extremely fast.  To stay up-to-date and support our efforts, please click here to take action on pending alerts.  In this short, special session, your actions can be the difference between victory and defeat!

 

If you want to take your advocacy engagement to the next level, please contact me for more details.

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Help Protect PE for Kids Like Me!

Guest post from Reagan Spomer, 6th grader Alliance for a Healthier Generation Youth Advisory Board Member & You’re the Cure Advocate

I have two words for you… scooter hockey.  Sounds fun, doesn’t it?  That’s because it is!  Scooter hockey, along with cage ball and 3-way soccer are some of my favorite activities in gym class, which I have a few times a week.

I’m glad I have physical education for a number of reasons.  It keeps me active and teaches me to try new things.  It helps me focus on my school work.  It relieves my stress.  And most of all, it makes me feel great! 

But I know a lot of schools don’t have regular PE like my schools does.  That means a lot of kids are missing out on the benefits of being active during the school day.  I think this needs to change.   

Will you help?  As part of the nationwide campaign to protect PE in schools, Voices for Healthy Kids has created a photo petition map to show how many people across the country love PE like I do.  As people share their pictures, the map will change colors.  I’ve added my “I heart PE” photo for South Dakota.  Will you do the same for your state?  It’s really easy:

  1. Print an “I heart PE” sign (or make your own!)
  2. Take a picture of yourself holding the sign.
  3. Click on your state to share your photo.

Thanks for helping to protect PE for kids like me!
-Reagan

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Advocate Highlight - Claudette Kenmir

In December of 2006, I was a healthy 45 year old woman, newly divorced, with a high stress job and living by myself for the first time in my life. I started having severe headaches and couldn’t figure out why.  Two weeks before the onset of the headaches, I had begun to take birth control pills again for premenopausal symptoms.  I was in and out of the hospital and clinics for two weeks while trying to figure out what was going on. 

My youngest sister had come to stay with me to accompany me to my neurologists. On the morning of the appointment, I woke up, tripped getting into the shower and didn’t quite feel right. After dressing, I reached the top of the staircase and couldn’t figure out how to get down.  I ended up sliding down the staircase on my butt. My sister asked if we needed an ambulance but since I could still talk, I told her no. 

She quickly drove me to the doctor’s office and asked the doctor if I had had a stroke. He told my sister that I hadn’t but he was going to admit me to the hospital for some additional tests. 

A couple of days later, the doctor said I had actually had a stroke.  I spent that night crying myself to sleep unsure how I was going to be able to go home and live independently let alone return to work.  I couldn’t figure out how to work my Blackberry (this was 2006) or dial the phone that was next to my hospital bed. I couldn’t even wash my hair.

A few days later, I asked one of the wonderful nurses how a healthy 45 year old could have a stroke.  She said that it’s becoming more common. I was diagnosed with high blood pressure and high cholesterol.  My family genetics at work!  

As far as anyone can tell, my outcome was positive, no noticeable deficits.  I was lucky! My stroke was a wakeup call. It made me “Stop and Smell the Roses”.  Now I play as hard as I work.   

I’m thankful for the work the American Heart and American Stroke Association does to educate the public on what can be done to prevent heart disease and reduce stroke.  I’m also very thankful for the support of my family and friends who helped me through a very frightening time.

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Will you help influence scientific research?

We need to hear from consumers like you as the American Heart Association (AHA) and the Patient-Centered Outcomes Research Institute (PCORI) partner together on the future of research. Your experience could lead to the next research study to improve heart disease and stroke treatment.

As an advocate we’ve asked you to speak out for increased funding for medical research and you’ve answered by contacting lawmakers and sharing your personal stories as survivors, caregivers, and loved ones touched by heart and stroke disease. Now we invite you to share your experience, the decisions made in determining your or your loved one’s treatment plans and the factors that influenced those decisions. If we better understand your experience it can help guide the research that will lead to better care tailored to the specific needs of patients.

If you’ve had a heart attack, suffered a stroke, or you know a loved one who has, your unique understanding could help guide research to solve un-met care challenges faced by individuals like you and improve heart and stroke treatment.

Here are the details:

  • We are focused on un-met challenges faced by patients and caregivers like you. 
  • To join this challenge, you’ll be asked to provide a written submission of your first-hand experience after a heart disease or stroke event.
  • The story and description of the concerns you faced and the decisions you made should be personal and not a general case.
  • A team of scientific professionals and patient representatives with expertise in heart disease and stroke will review your story. Learning more about issues and concerns important to your decision-making can help them improve experiences and outcomes for patients in the future.
  • If your submission is chosen, you could win $1,000 and possibly help shape the future of cardiovascular research.
  • All submissions must be received by June 8, 2016.

Please take this important challenge and share your insights. Your story matters. Take the challenge today!

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