American Heart Association - You’re the Cure
WELCOME! PLEASE LOGIN OR SIGN UP

LoginLogin with Facebook

Remember me Forgot Password

Be the Cure, Join Today!

  • Learn about heart-health issues
  • Meet other likeminded advocates
  • Take action and be heard
SIGN UP
Thank You for Everything You Do!

It’s National Volunteer Appreciation Week this week (April 12 – 16) – and with that thought on our minds, we wanted to tell you how much we appreciate you, and all that you do for You’re the Cure initiatives all across the East Coast.

We appreciate every single alert response, every call, every visit you have made to your lawmakers and elected officials. We appreciate you joining us in conference rooms across our division as we train you on different state policies and how to be an engaged advocate. We appreciate those who serve on our Advocacy Committees, putting in long hours in meetings and on calls as you help us shape our grassroots plans.

We appreciate you, and we appreciate your time and all you do as a partner of the American Heart Association. In case you ever forget, every little thing – both large and small – makes a difference!

Every Little Thing you do

as a You’re the Cure advocate helps,

and we appreciate you!

 THANK YOU for all you do.

Just a note: If you haven't joined our advocacy network yet, it's never too late! Just visit us at www.yourethecure.org and become a You're the Cure member. It only takes a few moments to sign up, but you'll help make a difference that will last through the years!

Read More

If You Build It, They Will Come: Relationships with Lawmakers

There’s a saying often used when referencing the act of sales which can also be applied to advocacy: It all comes down to relationships.

As an advocate, building relationships with elected officials is the number one way you can ensure that lawmakers across your state are educated on the issues most important to you. You’re the Cure advocates are given opportunities to strengthen their skills at building relationships with decision makers through the various advocacy activities offered while promoting AHA’s policy goals.

One key to building relationships with legislators is to understand their preferred method of receiving information. What are the best ways to reach out to them, communicate with them, and follow up with them? Sometimes, the timing of communication can be one of the more important variables. VA Delegate Christopher Peace [R – New Kent] suggests that getting in touch with him at his local office is best: "Usually, setting a meeting in my Mechanicsville District Office prior to session sets a more relaxed environment in which a citizen advocate may express to me their thoughts on issues of importance to them and about legislative matters that may arise during the impending session."

Not sure what your legislator prefers? Make a call to their legislative assistant—not only will they be able to direct you, but developing a relationship with this "gatekeeper" can also help you form a better relationship with your lawmaker!

Additionally, sometimes your elected officials will be the ones to reach out to you directly.  NC Representative Becky Carney [D-Mecklenburg] said that in her opinion, the best way to communicate with her constituents is for them to "set up a meeting to talk about the issues that people have, or their concerns.  I prefer talking with people – communicating with me through email is a great way, [including] phone numbers so that I can call them back. Personal dialogue is sometimes better than written dialogue."

Your legislators know that advocates are vital for them to keep a finger on the pulse of their communities back home.

Councilmember-At-Large David Grosso [I-District of Columbia] shared his perspective: "Advocates are a major driving force in the legislative process. They are boots on the ground and know intricately those issues that impact different populations and communities. I want to know what their specific concerns are. As a member of the legislative body, sometimes we have a 30,000 ft. view of issues, but the advocates help us to focus on the nuance and intricacies of various matters. Having that perspective is invaluable because it enables us to tailor laws and regulations to the specific needs of the communities that we serve. Through our relationship with advocates, we are able to identify the areas where we can have the greatest impact, ensuring that we are serving a wide demographic in the most effective and efficient ways possible."

Through the voice of their constituents, elected officials are in a much better position to stay updated with a focused view of what's happening in their communities.

From DC, Maryland, Virginia, and into the Carolinas, our legislative bodies may look different; however, at the end of the day we are all people, one and the same. Our elected officials have important jobs where they represent us by making decisions that ultimately affect our daily life – but their main focus is their constituents.

If you’re up to it today, we would like to challenge you to use this information and take action. Send an email, make a phone call, or schedule a time to meet with your legislator today! Your elected officials are ready and willing to get to know you and what is important to you and your community!

A special thanks to Councilmember-At-Large Grosso [I-District of Columbia], VA Delegate Christopher Peace [R – New Kent], and NC Representative Becky Carney [D-Mecklenburg] for their contributions to this piece.

Read More

Dr. Amie Hsia

Dr. Amie Hsia, Mid-Atlantic Affiliate

How do you build a passion for stroke?  Dr. Amie Hsia is absolutely driven to reduce the gap in knowledge about stroke awareness. As a stroke fellow at Stanford University, Hsia was asked to work on stroke issues in the community. She was staggered by the lack of understanding about stroke in the community, and has since worked to reduce those disparities.

Hsia now serves as Medical Director of the MedStar Washington Hospital Center Stroke Center, and has partnered with American Heart Association/American Stroke Association (AHA/ASA) in their shared mission to increase stroke awareness and to assist community members in utilizing available resources. Hsia hopes that community members can gain a basic level of awareness before they are faced with an emergency situation. She says, “Even if people think they aren’t at risk, it may affect people around them, whether that is family members, coworkers, or friends.”

In addition to the great challenge of increasing awareness in the community, Dr. Hsia quickly realized the importance of improving health policies locally. Her passion has made her a key AHA/ASA advocate for important legislation in the District. Her credentials and extensive knowledge base allow her to contribute reliable testimony to legislators as they evaluate policies related to cardiovascular disease and stroke. She recently testified at a D.C. City Council hearing in support of the Telehealth Reimbursement Act. “It was a key opportunity to have a voice,” Hsia said of the experience.

Along with AHA/ASA, Dr. Hsia has celebrated the victories achieved in increasing stroke awareness and level of care. These successes have encouraged her to continue working with AHA/ASA and to devote her time and resources to make positive changes in the community. 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Hsia and colleagues running a stroke awareness event for the community

Read More

Stroke System of Care Act Passes in Washington DC

 

 

 

 

 

 

We are happy to announce the Stroke System of Care Act became official law in Washington, DC on March 10, 2015! This important law establishes a coordinated system of care for stroke patients by:

   !!!   Recognizing three tiers of stroke facilities – Comprehensive, Primary, and Acute Stroke Ready

   !!!   Requiring EMS authorities to develop and implement transport protocols for acute stroke patients

   !!!   Requiring creation of a centralized stroke registry where all facilities will report data

Stroke is one of the leading causes of death and disability in DC. While not all strokes are the same, they do have one thing in common: the race against time. The moment a stroke hits, the clock starts. Each minute a stroke patient is left untreated, two million brain cells die. This destruction of brain cells contributes to disability including paralysis, memory loss, vision and speech impairment, and sometimes death.

Since every stroke patient is different, it’s essential that government, hospitals, and emergency responders work together to coordinate care. Pre-hospital care protocols including assessment, treatment, and transport of stroke patients, will be implemented to ensure patients are taken to the hospital with the best available care, not necessarily the closest. In doing this, stroke patients will receive the best care at the right hospital. A registry will be established to evaluate care, enhance quality, and improve outcomes.

The American Heart Association thanks hundreds of its You’re the Cure advocates for working so hard to make this law happen. Special thanks to Dr. Amie Hsia, Dr. Richard Benson, and Survivor Lori Greene.

The American Heart Association supports policies that improve health and wellness in Washington, DC.   Learn more about advocating with You’re the Cure and how you can make a real difference.

 

 

 

 

 

 

 

 

 

 

 

 

<Thanks to YTC intern Kassie Crook for development of this blog post>

Read More

Help secure funding for this life-saving AED program today!

This is a critical time in Congress. Lawmakers are deciding on their funding priorities and the next round of budget negotiations are beginning. Even in this difficult economy, there are several federally-funded programs that are vital to the heart community, and we need to let our lawmakers know they must be a priority.

One such program helps buy and place automated external defibrillators (AEDs) in rural communities. The program also trains first responders and others in the community to use and operate these devices. The Rural and Community Access to Emergency Devices Program ensures those who live in rural areas or small towns have access to the tools they need for the best chance of surviving a cardiac arrest. Unfortunately, the program currently only has the resources to operate in 12 states.

Please contact your lawmaker today and ask them to prioritize funding to save lives from cardiac arrest!

People in every state should be given the best shot at surviving a cardiac arrest. Communities with aggressive AED placements have increased survival rates from about 11% to nearly 40%, which is an incredible improvement. But 38 states are still waiting for funds for this life-saving program.

Deadlines in Congress are looming, so please contact your elected officials TODAY!

Read More

It's Nice to Share

  

Sharing is nice, we learned in kindergarten, and here’s where it can really count.  It’s super-easy to share our grassroots network with your friends and family, so their voices can help support CVD legislation too. 

We seriously need to reach the people who understand something about cardiovascular diseases and/or stroke – and, think about it, who do you know who does not have a connection somehow to someone directly impacted?  The people in your social networks care about you, and you can help inspire them to care about our mission.    

Simply post our video on your social media with this text, or something similar of your own:

Please help me build healthier lives, free of cardiovascular diseases and stroke, through grassroots advocacy.  It’s for us and our loved ones.  Please join and support the cause – I’ll appreciate it personally.  You could easily wind up helping someone you know.  It’s fast, and it’s easy to be an active part of the American Heart Association’s You’re the Cure network: www.yourethecure.org

 

 

 

 

  

 

 

 

 

 

 

 

 

 

 

And you know how quickly a post disappears down the queue …please bookmark this and consider re-posting periodically so more of your network has a chance to respond. 

You can also click the Share button that pops up on our website after you’ve taken action on an alert to effortlessly push the message to social media. Every time!

Please don’t think this is not important just because it’s not driving a particular policy.  Our impact as a grassroots network is only as strong as its number of active voices: the people willing to take the time to help drive messages to their legislators. 

Share to help our mission!  This act helps significantly to make our network a force to be reckoned with. 

  

 

<Picture credit: https://www.flickr.com/people/76535310@N00>

Read More

Juddson Rupp

Juddson Rupp, Mid-Atlantic Affiliate

I didn’t remember anything from my week in the hospital, but when a friend brought in a copy of the six o’clock news from October 27, 2000 I quickly realized that either that was a slow news day or that I was one lucky miracle survivor with an important story to share.

"Being at the right place at the right time and near the right equipment may have been a real life saver for a man working out at the YMCA,” the TV anchor began. Her co-anchor added, "Judd Rupp, not your typical heart attack victim - he's in his 30's and was at the gym.  Thanks to some people who knew exactly what to do, he's alive today."

Reporter Steve Litz brought the story to a close saying: "Two important notes to add- It was difficult identifying Judd Rupp as he was not wearing any kind of I.D.  Everything worked in Rupp's favor at the YMCA because so many know CPR there.  Another note, Juddson Rupp is an employee here at WSOC-TV.  We all wish him well in his recovery."

After getting choked up watching news clips like the one above a decade ago, I knew that internally and externally my life had changed.  I could no longer be a just a private citizen.   I had to share my story publicly for several reasons.  I now strongly believe that being and advocate and sharing your story is an important duty as a survivor.

The American Heart Association approached me to ask if they could use my story for the upcoming Heart Ball.  The Marketing Director told me that sharing my story could help save hundreds, if not thousands of lives through the years.  Then the publicity became a 'no-brainer' for me.  Why wouldn't I help save others by informing people to learn CPR or by encouraging them to purchase AED's and stop cardiovascular disease with added research and funding?

After the initial Heart Ball work in 2001, I was asked to be in a Public Service Announcement (PSA) that ran on Charlotte TV stations and throughout the Carolinas in a commercial also featuring my wife and two children urging people to 'Learn CPR...it can save lives!'  I became the poster boy for the American Heart Association, as my wife had joked.  She also knew that I was honored to do this and practically anything to help AHA grow its cause...and be the cure.

My volunteer time and work became even more empowering after meeting Betsy Vetter in 2004.  She asked me to join You’re the Cure, and become an advocate for AHA.  My initial role had me traveling to Washington, DC and visiting with Federal Legislators on Capitol Hill.  I am proud to say that I have not missed an AHA Federal Lobby Day since.

Since then I have held multiple roles including communications/media chair for the NC AHA Advocacy Coordinating Committee, a member of the AHA Charlotte Mission Committee, and co-chair of the Smoke-free Mecklenburg Advocacy Committee. I have also been active with Emergency Cardiovascular Care and the Heart Ball, and attended numerous state lobby days at the General Assembly in Raleigh where I share my personal experience with state lawmakers to help them better understand the importance of supporting strong public health policies.

Speaking with countless legislators and their staff to put a face on heart disease, and fight for so many who are not with us anymore is the most empowering reason I do this.  

*On December 14, 2013 Juddson was the recipient of the 2013 Dr. Robert Blackburn Award for Advocacy Excellence which honored all of his advocacy work at the American Heart Association.

Read More

Emilie Singh

Emilie Singh, Virginia-District of Columbia

"When Chloe Saved Gracie’s Life"

It was a busy Sunday in 2013 and no one realized my 8 year old daughter Gracie wasn’t feeling well.  She woke up late and asked to take a bath but we told her we wanted to go to Costco first.  We went out to Costco and ran a few other errands.  June in Arizona …it was a hot day. 

When we got home Gracie again asked if she could take a bath. She’s old enough to take baths on her own, and she got it started by herself.  I was upstairs while she was in the tub for a bit, but then went downstairs to change the laundry, and I would occasionally yell “Grace are you ok?” and she would answer “yes”.  My other daughter Chloe (age 11 at the time) was in her room next to the upstairs bathroom watching a show. 

On my way back upstairs with the laundry I again yelled “Grace are you ok?”  But this time she didn’t answer.  I just had a weird feeling, I dropped the laundry, raced into the bathroom and found Gracie blue under the water not breathing.

I started screaming at the top of my lungs “Call 911, call 911!”  As I grabbed Gracie and pulled her out of the tub and put her on the floor, Chloe pushed past me and started performing CPR, pushing on her chest hard with both hands. 

By the time my husband got upstairs with the phone and 911 on the line, Gracie was coughing and spitting up water.  In a few minutes we had her on her bed, covered with a towel and there were 10 firemen and police men in her room.  She was disoriented but thank God she was breathing. 

Gracie lost consciousness so she really doesn’t remember what happened, but she has heard us talk about it.  We just call it “When Chloe Saved Gracie’s Life.”  It seems like the best way to describe the event. 

It turned out that it had been a febrile seizure because, unknown to us, she was already sick and then went into a hot bath. It just made her fever go up higher.  Gracie spent 3 days in the hospital, and Chloe didn’t want to leave her side.  

I can’t even express how grateful I am that Chloe learned CPR in her classroom.  I wish every kid would…you just never know when it could turn them into someone else’s hero.  Chloe was certainly Gracie’s.

See the family retell the gripping story here

 

Read More

Pulse Oximetry Hearing Wows

Everyone in the chamber for DC’s pulse ox hearing listened incredulously as parent after parent shared heart wrenching stories of newborns diagnosed with critical congenital heart disease (CCHD) and how use of a simple test called pulse oximetry saves lives. Every year, more than 6,000 babies are born with some form of a critical congenital heart defect. In the District of Columbia alone, up to 10 infants may die or go undiagnosed every year due to a lack of screening.

“Every baby deserves the best chance of survival,” said mother Hilary Mehrkam, who testified in support of the Healthy Hearts of Babies Act of 2015 in the DC Council Committee on Health and Human Services on February 2.

Young CCHD survivors stole the show as they expressed their thankfulness for the use of pulse oximetry, without which they might not be alive today. Eleven-year-old Mirabel told Councilmember Yvette Alexander because of pulse ox she can now grow up to be an animal nutritionist. Tristan expressed his excitement about doing well in school and participating in cub scouts. Several others, too young to talk, were silent witnesses supporting the lifesaving assessment.

DC Bill 21-6, the Healthy Hearts of Babies Act of 2015 appeals to both parents and medical practitioners since, according to You’re the Cure Advocate Lisa Hom of Children’s National Medical Center, “No doctor wants to be the one who sends a baby home undiagnosed.”

Pulse ox screening is simple, painless, inexpensive, and non-invasive. Research suggests that by pairing this test with already routine prenatal measures, over 90% of newborn CCHD cases can be detected. Over 40 other states have already passed legislation mandating the use of pulse oximetry screening.

This legislation was co-introduced by the majority of the DC Council, but it is still important to write, call, or email your Councilmembers and tell them you support pulse oximetry screening. There are many benefits of this bill, but according to mom Amy Shalawylo, “the peace of mind is priceless.”

Click here to tell your legislators how important this bill is! 

 Pictured are invested parents and their children who testified before the DC Council at the hearing for pulse ox screening.

Take a moment and view this video our team put together from the day of the hearing.

<Special thanks to You’re the Cure Intern Kassie Crook for help developing this blog post>

Read More

The American Heart Association's Go Red For Women Red Dress Collection 2015 Livestream

Join us for this exclusive virtual event where top designers and celebrities demonstrate their support for women's heart health during Mercedes-Benz Fashion Week. Heart disease is not just a man's disease. Each year, 1 in 3 women die of heart disease and stroke. We can change that--80 percent of cardiac events can be prevented with education and lifestyle changes. Help break barriers against heart disease and stroke by joining us for the Go Red For Women Red Dress Collection 2015 live online at GoRedForWomen.org/RedDressCollection on Thursday, February 12 at 8 p.m. Eastern. See you there!

Read More

[+] Blogs[-] Collapse