Written By: Sara Stout, Business Development Director
Heart disease hits close to home for Missoula’s Johnson family. Amber, a mother of three beautiful and creative children survived 32 years and two normal pregnancies only to find out while eight months
pregnant, she had been born with not one but two potentially life-threatening congenital heart conditions: Long QT Syndrome (a Sudden Cardiac Arrest electrical disorder) and Junctional Bradycardia (an arrhythmia disorder).
As the cardiologist who diagnosed her explained, Amber defied the odds for three decades, simply by staying alive. In 2013, Amber underwent surgery to have a pacemaker implanted which takes just seconds to shock her heart back to life when her heart malfunctions. Amber shares her story of survival to inspire others to take charge of their heart health and is thankful that she thrives today because of the research developed by the American Heart Association.
Unfortunately Amber’s eldest daughter, Laurelei, has the same potentially life-threatening congenital heart disease. Ten-year-old Laurelei shares her mother’s passion and energy for life knowing that one day she will be able to receive the same surgery as Amber. Until then, Laurelei will continue to carry her portable AED with her wherever she goes because it will save her life.
Amber and Laurelei shared their powerful story at the Go Red For Women Luncheon in Missoula on February 13th, reminding the 170 people in attendance that life is precious and to live every moment to the fullest. The Johnson family devotes their time to learning, creating, dancing, supporting each other and advocating for the American Heart Association.
Nearly 1 out of every 100 births a child is born with some form of heart disease. Join the Go Red movement for families like the Johnson’s and in support of friends, family and other loved ones in the community who battle heart disease. www.goredforwomen.org