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Advocate Spotlight - TJ Haynes

For TJ Haynes it was a matter of time. TJ recently threw out the first pitch at a Mustangs game in Dehler Park to promote the AHA’s Raise the Roof in Red campaign after suffering a heart attack just a few months before.

On May 25, 2015 TJ had gone to the local shooting range in preparation for the annual Quigley Buffalo Match. The days leading up to the 25th he had experienced heartburn and back pain but didn’t think much of it. But after a short period of time at the range he found himself short of breath and in pain.

He called his wife to tell her he wasn’t feeling well and asked her to come pick him up. While he waited another shooter at the range noticed his condition and quickly dialed 911 when he told them he was short of breath and experiencing chest pain.

Thanks to the quick actions of those around him TJ was rushed to the hospital in an ambulance containing a 12 lead EKG machine that sent a snapshot of his heart ahead to the Billings clinic. By sending this snapshot ahead the hospital was able to know what they were dealing with and how to treat it as soon as he arrived. This allowed his clogged artery to be opened just 46 minutes from the onset of the attack.

This amazing equipment had been installed just one day earlier as part of the Mission Lifeline initiative that is largely funded by a grant from the Leona M. and Harry B. Helmsley Charitable Trust.

Today TJ is doing much better. He is in cardiac rehab, is working on his diet and is overall doing well.

TJ is thankful for the actions of those around him and the technology that was available to help him when he needed it most.

 

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Have a Heart Healthy Summer

Guest Blogger: Kami Sutton, Grassroots Advocacy Coordinator

Happy Summer, You’re the Cure Advocates! As the temperatures are rising and we are all preparing for the fun activities of summertime, I thought I would share with you my favorite low sodium summertime recipe! As a congenital heart defect survivor and someone who is in a constant battle against Congestive Heart Failure, I have learned how to eat a healthy low sodium diet.

Even for healthy hearts it is important to eat a well-balanced diet to prevent heart disease and that includes a diet low in sodium and processed foods. Choose and prepare foods with little or no salt. To lower blood pressure, aim to eat no more than 2,400 milligrams of sodium per day. Reducing daily intake to 1,500 mg is desirable because it can lower blood pressure even further.

With that in mind I present to you a delicious low sodium recipe to take to your next summer picnic or BBQ!

Black Bean Salad (or Salsa)

6 servings

 

About $0.84 per serving

 

1 15.5-ounce can no-salt-added or low-sodium black beans, drained

1 15-ounce can no-salt added or low-sodium kernel corn, drained or ¾ cup frozen corn, thawed

1 medium red bell pepper or 1 tomato diced

1/2 cup red onion, diced

1 teaspoon minced garlic from jar

2 tablespoon chopped cilantro

2 tablespoons cider vinegar

3 teaspoons extra virgin olive oil

Juice of 1 lime

 

Toss all together, chill at least one hour.

TIP: Serve this as a side salad to a meal or warm in microwave and use as a filling for tacos!

For nutrition facts and links to more healthy recipes, visit: http://www.heart.org/HEARTORG/GettingHealthy/NutritionCenter/HealthyCooking/Black-Bean-Salad-or-Salsa_UCM_429539_Article.jsp

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Jocelyn Gomez

August 7th, 2015 was the start of the most life-changing event of our lives. My father, mother, and I were sitting in the emergency room that night waiting to be called on. As the minutes went by a tragedy was about to occur without even knowing. My father was at the emergency room for the pain he had on his left foot. His pinky was swelled up, bruised, and a very bright red mark was on the top part of his foot. 

That night my father found out he was diabetic when his blood sugar level was at 750. My father was already a survivor of three heart attacks and the news of him being diabetic was just another thing to add to the plate. Unfortunately, my father has a rare condition where he creates blood clots very easily. This became a massive problem to his foot. The pain was due to the lack of blood circulation and the different techniques that the doctor’s applied were just not enough. After the unsuccessful peripheral bypass surgery, there was no other option than to have an amputation below the knee.

Recovery is and will always be difficult because it is not only a physical recovery, but a mental recovery as well. His loving family and friends always surround him, which is a huge support. Today, my father is slowly adapting to his new lifestyle with a very optimistic attitude. Being diabetic has given him a different view to life and is thankful that he is still alive to tell his story.

My experience at the American Heart Association as an advocacy volunteer has been one of a kind. I’ve learned remarkable things and became part of a community that works very hard to prevent serious health conditions such as diabetes. Working on the SSB campaign has helped me gain more understanding on how much sugar we are consuming without even knowing. Avoiding sugar sweetened beverages and learning how to prevent health conditions such as heart disease and diabetes is extremely important. My father did not care much about his health until his unfortunate amputation. After this life experience, my interest in working in the public health arena has skyrocketed. Educating my own family on healthier choices to prevent any further health conditions is just the beginning. It is never too late to live a healthy lifestyle!

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AHA President Says: The Science is Clear on Sodium Reduction

Check this out! In a new video, the President of the AHA, Dr. Mark Creager, explains that the science behind sodium reduction is clear. He says that robust evidence has linked excess sodium intake with high blood pressure, which increases the risk of heart attack, stroke, and heart failure. And, he points out that you can do something about it: join AHA’s efforts to demand change in the amounts of sodium in our food supply.

“Nearly 80 percent of the sodium we eat comes from processed, prepackaged, and restaurant foods” says AHA president Dr. Mark Creager. The video shows the 6 foods that contribute the most salt to the American diet: breads & rolls, cold cuts and cured meats, pizza, poultry, soup, and sandwiches."

To see the video, head over to our Sodium Breakup blog!

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Helping Heart Attack Victims in Montana

Guest Blogger: Amanda Cahill, Montana Government Relations Director

When someone has a heart attack, every second counts.  Mission: Lifeline works to help EMS providers diagnose and transport heart attack patients in much faster times, resulting in higher survival and less disability. 

A key part of Mission: Lifeline is giving ambulance companies and fire departments 12-Lead EKG machines, so that they can effectively treat heart attack patients and immediately send a report to the hospital regarding what type of heart attack someone experienced.  This advanced notice for hospitals saves precious time and ensures that patients get the best treatment when they arrive at the hospital. Prior to the project, 30 agencies had 12 lead EKG machines, but only 8 had them and were using them to their fullest capability.  Now 102 agencies have the equipment and the capability to use them to speed up hospital arrival and heart treatment times. 

Before:

After:

To hear more about this life-saving project, contact Amanda Cahill; amanda.cahill@heart.org

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Take the You're the Cure Advocate Survey

2015 was a great year for You're the Cure advocates and the many policy efforts that you work on. We have big plans for 2016, and we want to hear from you and what you want to see in the future for You're the Cure.

So take the survey now and let your voice be heard.

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Update on Christian Lybbert

Aimee Lybbert, Mother of CHD (Congenital Heart Defect) Survivor, Christian, updates us on his life now and what she sees every day as a “Heart Mom”

You can catch up on Christian’s story from nearly two years ago here.

Christian will be three at the end of next month. He's been through two more open heart surgeries and four open abdomen surgeries and one surgery through his ribs on his diaphragm. He's now living at Seattle Children's and is currently on the waiting list for a heart transplant.

He has quite the collection of scars. We as his parents do too.

We have been at Seattle Children's for almost 5 months now with most of our time spent in the Cardiac Intensive Care Unit (CICU).

We have seen our share of families and children go through the CICU.

I've seen parents waiting anxiously for their surgery pagers as they wait for any update, I've seen parents hugging surgeons. I've seen rooms that have one little body in the room surrounded by scores of machines and staff working together to get the child through it all. I've seen parents cry with joy as their child had the breathing tube removed and they start to talk again. I've walked past rooms where moms are holding their children for the first time in forever as the nurse takes pictures. I've watched as they get transferred to the recovery floor, and I've watched parents take video of their toddler as he walked out the front door of the hospital after he conquered heart surgery. I've seen such joy at the many triumphs and miracles that happen here. 

I've also seen complete and utter despair. Sometimes things don't go as anticipated or as hoped.

Christian was like that. He had several emergency surgeries and he once bled out from a Gastrointestinal bleed and he had to be intubated and scoped while they transfused almost the entire volume of his blood. There were days that I didn't know how I could go on.

When my son headed off to one of his emergency surgeries I was a complete mess and was sobbing in the elevator on my way to the cafeteria. Another heart mom saw me. She asked me my son's name and told me that she saw me crying and couldn't leave me alone like that. She gave me a hug and said she'd pray for me.

She got off on her floor and I kept traveling down. The next day a card arrived with a note and a Starbucks gift card from her.

She had her own troubles and she took the time to look out for another person in need.

There are a surprising amount of kids and parents whose journey includes a hospitalization and or surgery in order to keep their CHD in check. Congenital Heart Defects are the most common birth defect. Approximately 25% of kids with a CHD will require a surgery or other intervention to survive. If you're on the outside looking in the most important thing to do is just to listen and quietly let them know you love them. If you're on the inside of the CHD storm it is important to realize that you're not alone.

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Heart Month in Montana - Are we doing enough for our littlest hearts?

Guest Blogger: Amanda Cahill, Montana Government Relations Director

February is Heart Month which has me thinking about the health of Montana kids’ hearts.  One way to help children stay healthy is through the Physical Education (PE) classes taught in schools.  Did you know that there’s no requirement for elementary schools to have any minimum amount of PE time?  That means some kids in MT are only getting 30 minutes of PE per week.  This number is too low for many reasons. 

Physical activity is essential for children, and PE offers a structured way to teach them how to be active.  Studies show that school-based physical activity correlates with improved academic performance and leads to overall healthier children with lower risks of heart disease, diabetes, and obesity.  Additionally, increased activity leads to better academic performance. 

When children sit too long, their brains simply aren’t getting enough oxygen to stay active and enable them to learn.  According to the Society of Behavioral Medicine, “exercise increases the levels of neurotransmitters associated with increased mood and decreased stress, along with improving the neuroplasticity (the ability to learn) of brain cells.”  Montana children deserve a better chance at staying healthy, active, and increasing their ability to learn. 

What can we do about it?  Professional health organizations, including the AHA, advocate for at least 60 minutes of physical activity per day.  In order to help children achieve that level, it would be ideal for schools to offer at least 150 minutes of Physical Education per week. 

You can get involved in several ways; encouraging your local school boards to enact a policy to ensure 150 minutes of PE in elementary schools per week, talking to principals about gradually increasing the number of PE minutes in schools near you, or writing to the Board of Public Education and asking them to make this a state-wide requirement.  The AHA, along with SHAPE Montana (The Society of Health and Physical Educators), have been working on this issue by asking health leaders around Montana to write letters of support with the intent of taking the request to the Board of Public Education and the Office of Public Instruction.  If you’d like to get involved please email Amanda Cahill; amanda.cahill@heart.org.

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Join Us in Missoula on February 19th

On February 19th, 2016, American Heart Association of Missoula is hosting the Annual Go Red For Women Luncheon. The Luncheon is designed dispel myths and raise awareness of heart disease as the number one killer of women. The Luncheon will focus on educating, honoring survivors, and inspiring lifestyle changes.

February’s event, to be held at the DoubleTree by Hilton, will feature a program highlighting local survivors who will share their experiences to break the stereotypes around heart disease.  Keynote speaker Joey Traywick, R.N., will motivate, educate and provide tools to help guests take control over their health no matter how busy their lives.

The American Heart Association is determined to break gender inequality in heart related research. Funding from Go Red For Women Missoula will help increase gender-specific research which will help close the gap in information physicians need to treat women. Currently, only 24% of participants in heart-related research are women.

We are hard at work across the state of Montana with a focus on identify gaps that lead to slower and less effective cardiac patient care. A generous grant from the Helmsley Charitable Trust, Mission: Lifeline is helping healthcare providers to close those gaps through changes in protocols.

Maureen Buke will share her story of survival. Maureen suffered from a STEMI heart attack in Stevensville, MT days before the local emergency service was granted a 12-lead. While Maureen did not benefit from the life-saving equipment, she is thankful for the program that now covers 98% of the state:

“My community now has one. I am so thrilled as now many lives will be saved through this generous gift. If the ambulance would have had one last year when I started having problems, I probably would not have had a heart attack and my story would be much different.” 

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Advocate Highlight - Sara Hoffman

Hi my name is Sara and I am 37 years old. This year should have been one of the happiest times of my life. On April 18, 2015, I was married on a beach in Mexico. Like any bride, I spent months planning the wedding and could not wait to celebrate with our friends and family. The shocking part of this story is that I suffered a major heart attack during the flight on my way to Mexico.

I felt fine in the morning and for the first four hours of the flight. All of the sudden I started experiencing burning in my chest, jaw and arm pain. I instantly knew something was wrong. After about 20 minutes of experiencing symptoms, I asked the flight crew to land the plane. I knew that my age and the fact that we were on the way to our wedding could make people think I was just having a panic attack so speaking up for myself felt more important than ever.  I was later told by my cardiologist that I would have died on the plane that day if we had not landed the plane.

We did an emergency landing in Louisiana where I was wheeled into the ER with my wedding dress in tow. I had an Angioplasty and a stent placed in my left anterior descending artery. My heart stopped twice during my procedure and I had to be defibrillated both times. My poor husband thought he was going to be a widower and we weren’t even married yet.  Amazingly, I was cleared to fly to Mexico just two days after my procedure. The day of our wedding was amazing but and I felt so lucky just to be alive and standing there.

We cancelled our honeymoon so I could come home and recover. I had not felt well while in Mexico and ended up getting re-hospitalized the day after we came home. I was in congestive heart failure and was experiencing terrible side effects from my medication.

My recovery has been hard but I am learning so much about heart disease along the way. I knew my father had a heart attack at age of 36, but I can honestly say I never considered myself to be at risk. I was healthy, I used to run full and half marathons, I don’t smoke, and I am a vegetarian. I thought everything I was doing would counteract my family history.  I didn’t understand the power of genetics.

I hope my story can encourage other women to schedule a Well-Woman Visit and talk to their doctor about their family history and personal risk.

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