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Nevada Lobby Day 2015 Recap

On Tuesday, March 31st, American Heart Association staff, business leaders, survivors, and You’re the Cure advocates joined together in Carson City at the Capitol to support heart-healthy legislation.  In addition, dozens of advocates supported their efforts by taking action online.

To those of you who joined us in Carson City or took online action, the Nevada Advocacy Team wants to say THANK YOU!  

In case you didn’t attend Lobby Day, here’s how we did it:  

  • We hosted a Hand-Only CPR demonstration in the morning.  If you don’t know Hand-Only CPR or would like a 2 minute refresher, please click here!
  • We met face-to-face with legislators in the Assembly Education, Assembly Health and Humans Services Committees as well as members of the Senate Finance Committee.
  • We dropped off informational packets to all remaining legislators who were unavailable to meet due to previous engagements.

And if you missed this year’s Lobby Day, don’t worry! You can still support our efforts online by clicking here and there will be additional opportunities to take action in the coming months. We’ll need every single one of you along the way! 

Please email Ben Schmauss at Ben.Schmauss@heart.org or Josh Brown at Josh.Brown@heart.org if you are interested in future volunteer opportunities, or if you have any additional questions. 

Thank you again for being a critical part of the You’re the Cure team!

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American Heart Association Celebrates National Walking Day

By Violet Ruiz, Government Relations Director

The American Heart Association celebrated National Walking Day on Wednesday, April 1st! National Walking Day is celebrated on the first Wednesday in April and is meant to help Americans actualize ideal cardiovascular health. Even though National Walking Day is over – take time to tie up your sneakers, take a walk and celebrate your health every day!

On National Walking Day, Americans are encouraged to lace up their sneakers and take at least 30 minutes out of their day to get up and walk. Statistics show people stick to walking plans more than any other form of physical activity and walking is one of the easiest and cheapest things you can do to reduce your risk of heart disease and stroke – the nation’s No. 1 and No. 5 killers.

The other amazing thing about walking is that you don't have to wait until next year to get moving again. National Walking Day celebrations will come and go, but walking should be part of your daily exercise routine. Regular physical, such as walking, gardening, cycling, and climbing stairs can help you:

  • Lower your risk of heart disease and stroke.
  • Maintain a healthy weight.
  • Reduce or control blood pressure.
  • Raise HDL ("good") cholesterol.
  • Reduce your risk of diabetes and some kinds of cancer.
  • Sleep better.
  • Have more energy to do the things you love.

The American Heart Association recommends at least 150 minutes (2.5 hours) a week of moderate intensity aerobic physical activity. Walking has the lowest dropout rate of any other physical activity. If you can't carve 30 minutes out of your day to walk, just taking a few more steps in your day is a simple and effective place to start. It's really that easy. Or be creative and break up your activity into 10- or 15-minute increments. For example:

  • In the morning, park or get off the bus/train 10 minutes away from your job and walk briskly to work.
  • At lunch, walk for 10 minutes around where you work, indoors or outdoors.
  • At the end of the day, walk briskly for 10 minutes back to your car or station.

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Advocate Spotlight: Kathy McCormick

When I woke up at 6:30 AM on October 22, 2013 I knew something was terribly wrong. I tried to get out of bed and found it difficult to walk. I called for my husband, who had just returned from the gym, he found me slumped on the bed and with the slurred voice I said, "I think I'm having a stroke."  I convinced him to not call for an ambulance,   - I didn't want the fanfare- instead, I asked him to drive me to the hospital. Not a smart move!

My ride to the hospital was very difficult because my equilibrium was off and with every turn and bump in the road I began to feel more nauseous and it also seemed to take forever to get to the hospital.  Once in the hospital I was told I had a mild stroke due to the long-term effects of hypertension.  I knew I had high blood pressure - and I was even on medication for it. My doctor had even increased my dosage a few months earlier, but a small vessel in the base of my brain, called the Pons area, ruptured and a piece of plaque was released.

After three days in the hospital I was sent home with strict instructions: change my diet, take a daily reading of my blood pressure, get plenty of sleep and begin physical therapy. Now the hard work would really begin.

For the next several months my life took on a new normal for me. Friends brought food, family members took turns coming to help care for me and strenuous physical therapy sessions helped to awaken my muscles. I had to learn to do many things all over again. I struggled with walking, speaking, reading, and even writing legibly.  I had to also re-learn how to swallow liquids and learn to drive a car again.

Once I was able to return to my gym I used a personal trainer to help me continue working on my strength, balance and coordination.  Today, I feel healthier than I did before my stroke.  I am working each day to continue my improvement both physically and mentally.

I used to think strokes happened only to older people; however, I now know that's not true. They can happen to anyone at any age. I have learned so much from the American Heart/Stroke Association and will continue to pledge my support for them and I am willing to lend support to fellow stroke survivors.

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Help secure funding for this life-saving AED program today!

This is a critical time in Congress. Lawmakers are deciding on their funding priorities and the next round of budget negotiations are beginning. Even in this difficult economy, there are several federally-funded programs that are vital to the heart community, and we need to let our lawmakers know they must be a priority.

One such program helps buy and place automated external defibrillators (AEDs) in rural communities. The program also trains first responders and others in the community to use and operate these devices. The Rural and Community Access to Emergency Devices Program ensures those who live in rural areas or small towns have access to the tools they need for the best chance of surviving a cardiac arrest. Unfortunately, the program currently only has the resources to operate in 12 states.

Please contact your lawmaker today and ask them to prioritize funding to save lives from cardiac arrest!

People in every state should be given the best shot at surviving a cardiac arrest. Communities with aggressive AED placements have increased survival rates from about 11% to nearly 40%, which is an incredible improvement. But 38 states are still waiting for funds for this life-saving program.

Deadlines in Congress are looming, so please contact your elected officials TODAY!

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Friendly Reminder: Nevada Lobby Day is March 31st Register Today

During this busy time of the year, I wanted to friendly remind you that Nevada’s Lobby Day is around the corner on March 31st! Can we count on you to be there?

Registration is free, but space is limited, so register today!

At the event, advocates from across the state will gather at the Capitol in Carson City to lobby for heart healthy legislation.  This legislation includes legislation to improve Stroke systems of care, support for CPR in Schools and many other health related issues. No advocacy experience is necessary; training will be provided. It promises to be an exciting day of advocacy. We hope you’ll join us!

For more information on our legislative priorities or ways to get involved, please contact Ben Schmauss or Josh Brown.

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Go Red For Women this Heart Month

Go Red For Women is about much more than wearing red on National Wear Red Day. It’s about making a change. Here are a few ways you can make a change today: Go to GoRedForWomen.org to learn what you can do to reduce your risk of heart disease and stroke. Encourage your family and friends to take small steps toward healthy lifestyle choices to reduce their risk for heart disease and stroke, too.

Explain “What it means to Go Red” by sharing the following acronym:

  • Get Your Numbers: Ask your doctor to check your blood pressure, cholesterol and glucose.
  • Own Your Lifestyle: Stop smoking, lose weight, be physically active and eat healthy.
  • Raise Your Voice: Advocate for more women-related research and education.
  • Educate Your Family: Make healthy food choices for you and your family. Teach your kids the importance of staying active.
  • Donate: Show your support with a donation of time or money.

Cardiovascular diseases cause one in three women’s deaths each year, killing approximately one woman every minute. An estimated 43 million women in the U.S. are affected by cardiovascular diseases. 90% of women have one or more risk factors for heart disease or stroke. 80% of heart disease and stroke events could be prevented. Cardiovascular diseases kill more women than men. Unfortunately, fewer women than men survive their first heart attack and women have a higher lifetime risk of stroke than men. Each year, about 55,000 more women than men have a stroke.

For more information, please visit GoRedForWomen.org.

The facts show that women who are involved with the Go Red movement live healthier lives.

  • Nearly 90% have made at least one healthy behavior change.
  • More than one-third has lost weight.
  • More than 50% have increased their exercise.
  • 6 out of 10 have changed their diets.
  • More than 40% have checked their cholesterol levels. One third has talked with their doctors about developing heart health plans.
  • More than 620,000 women have been saved from heart disease and stroke over the past 10 years.

About 300 fewer women are dying per day

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Advocate Spotlight: Ron Drouin

STROKE – some things you may not know and were afraid to ask!

My name is Ron Drouin and I am a stroke survivor. There are two types of strokes, namely: Ischemic (which account for 87% of all strokes) and Hemorrhagic. There are many contributing factors: genetics, STRESS and Health habits. My factors were 40-plus years of smoking two packs of cigarettes a day, along with lots of job-related STRESS.  

My stroke was Ischemic and it occurred during the night of my 62nd birthday in 2002. “Happy Birthday Ron”. After an unknown time at home, I spent another 4 to 6 hours in the ER before undergoing an MRI that determined I did in fact have a serious stroke.

After two weeks in intensive care, working with my bedside therapist, I was able to move two fingers in my left hand. I cried a good deal with that experience. I have always been a typical ―”macho man” and you are not supposed to do that, (cry that is), but since the stroke, I now find myself crying at sad parts of movies and sad stories, etc. My experience is that there are many stroke-related side effects.

I spent three months in a rehab hospital and one of the therapists jokingly said: “You won’t be able to go home until you can tie your shoelaces. I said: “You’ve got to be kidding, here let me show you.” Guess what! I couldn’t tie my shoelaces and had to learn how to do that as well.

I spent about a year in a wheel chair and many sessions working with physical therapists.  There is kind of a rule of thumb that therapy can help you recover some of your abilities for the first six months after the stroke.

There is another stroke- related category called TIA’s (Transient Ischemic Attack). These should be taken seriously as well. I experienced one of these recently and it was discovered that my heart would actually stop beating for 3, 4 or even 5 seconds on occasion. A neurologist at the hospital told me that the heart pauses would cause the blood to thicken for a short period and produce stroke symptoms. So doctors installed a pacemaker and my heart is beating fine now.

I would be remiss if I didn’t acknowledge someone who has been “my rock” and demonstrated the quintessence of “in sickness and in health”; it is namely my wife Sharon. We just celebrated our Golden Wedding Anniversary - 50 years - this past July. We are looking forward to better times and “happily ever after” In 2015 and the years to come.  

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Meet the New Surgeon General

Dr. Vivek Murthy was confirmed by the U.S. Senate in December to serve as the next surgeon general of the United States. The surgeon general is America’s top public health official, and his responsibilities range from managing disease to promoting prevention and a healthy start for our kids.

At 37, Vivek Murthy is the youngest person and the first Indian-American to hold the post of Surgeon General.

Since this position was created in 1871, just 18 people have held the job. Dr. Murthy, the 19th, replaces an Acting Surgeon General who has filled the role since 2013. Dr. Murthy’s confirmation was delayed for nearly a year due to political issues, but in that time he received the endorsement of more than 100 public health groups, including the American Heart Association.

Dr. Murthy has both business and medical degrees from his studies at Harvard and Yale. He completed his residency at Boston’s Brigham and Women’s Hospital, where he most recently served as an attending physician. He has created and led organizations to support comprehensive healthcare reform, to improve clinical trials so new drugs can be made available more quickly and safely, and to combat HIV/AIDS.

His resume is remarkable, and we look forward to working closely with Dr. Murthy to improve the health of all Americans.

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CPR in Schools and Update: Success with work still to do!

Guest Blogger: Ben Schmauss, Government Relations Director, Nevada

In 2012, the American Heart Association began advocating for a CPR training requirement in our Nevada Schools and prior to the 2013 Legislative Session we presented on this issue to the leadership of many of our districts, as well as the state board of education.

With the support of many survivors and advocates statewide the CPR in Schools Bill, AB 414, became State Law NRS 389.0185 on July 1st 2013. This law does not mandate, but rather allows for schools to teach Hands-Only CPR, including a psychomotor skill-based component and the use of an AED, to the extent funding is available.

Following the passage of AB 414 American Heart Association staff worked diligently with the Clark County School District (CCSD), to implement the law as written with funds they had available. CCSD purchased 500 CPR mannequins and 70 Friends and Family CPR DVDs and facilitator guides in early 2013 to begin a soft roll out of the new CPR in Schools law. We worked with CCSD to connect with local Emergency Medical Services (EMS) staff to provide professional development.  Subsequently, over 43 middle school health teachers were trained on how to teach Hands-Only CPR and were provided access to the resources and materials they needed.

The CCSD health leadership team received a lot of positive feedback in the spring of 2014 about their efforts to implement this lifesaving law. After meeting with AHA staff and looking back on their efforts over the past school year, CCSD decided to add Hands-Only CPR to their mandatory curriculum for eighth-grade health. In addition to CCSD, the Washoe County School District (WCSD) and others have made strides to comply with this law, to the extent they have resources available.  But many of the schools and communities that need this training the most are still without.

It is estimated that approximately half a million students will become trained to respond to a cardiac event utilizing Hands-Only CPR over the next 12 years if we effectively support and fund the CPR in Schools effort. We are striving to remove the resource barrier to this important lifesaving skill by obtaining sustainable funding in the state budget. The national guidelines for CPR in Schools funding is $5 per student in one grade. In Nevada, if we look at eighth grade, that would bring us to a yearly funding line item of only $171k. Last year, Utah added CPR in School funding to their budget at $5.73 per student. The extra 73 cents per student was to account for the growing student population.

We have taken giant steps in the right direction when it comes to preparing our students to respond and contribute to a healthier community. The next essential step is obtaining the yearly funding needed for our students and schools. Our communities are already safer places to live thanks to the great work that has gone into CPR in Schools. Thank You.

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Advocate Spotlight: Kami Sutton

As a survivor, volunteer, advocate and staff member – I wanted to share my story. 

I was recently featured on a Children’s Health Link special on our local NBC affiliate, KING5, with a story that highlights me as an 11 year old volunteer and fast forwards to where I am today. Please take a look and how far I have come and what the future holds!

Twenty-six years ago, I was born with a severe congenital heart defect (CHD). My parents were told that I might not survive the 30 minute ambulance ride from Everett to Seattle Children’s Hospital. As would become my goal in life, I did my best to prove the doctors wrong and to this day I still try to prove them wrong in the way I accomplish things they never believed possible. And always by my side, helping me achieve this was medical research and technology.

It seems that over the years, technology has always been one step behind me, as soon as I would need a new repair, it was found to be possible for pediatric use right in the nick of time. I have always been in the right place and the right time of technology and my next procedure is no different.

As I transition from pediatric to adult care at the University of Washington Medical Center, we are looking at my condition with fresh sets of eyes and new technology possibilities in hopes of avoiding a heart transplant which I have been awaiting for the past five years. A new pacemaker to improve my heart function could be the answer, but with my complex anatomy, my doctor thought it might be more difficult to place a new wire to the opposite side of my heart.

I had recently heard about research using patient-specific 3D heart models to practice cardiac ablations, so I asked the doctor if it might be helpful in my case. He was quite excited that I had suggested this and about a month ago, I underwent a cardiac CAT scan to start the process. I should be receiving my new pacemaker sometime early next year once he masters the procedure.

This technology and the possibility of me having better heart function and quality of life has been eye-opening and I again realize just how important the work we do at the AHA is. I have always had a passion for our cause but knowing that advances in medicine every day could lead to a better outcome for patients like me is what drives me.

Thank you to each and every one of you for supporting our mission, it means the world to me and every other CHD, heart and stroke patient out there!

For the full story, please click here.

Sincerely,

Kami Sutton

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