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Lori Valencia Greene

Lori Valencia Greene, Maryland

Lori Valencia Greene is a woman of many hats: mother, daughter, friend, student, and an advocate for change in her community. She was surprised at the young age of 47 to also find herself a stroke survivor!

Lori has always had a desire to make a difference. Because of this she volunteered in her native District of Columbia since she was a teenager.

Lori first became involved with advocacy work in 1985 when she took a job as a legislative assistant on the Hill where she worked for 10 years, including two stints as Legislative Director. She fell in love with the work and eventually took jobs lobbying for Planned Parenthood Federation of America, the National Black Women's Health Project, and the American Psychological Society (APA). While working for the APA, Lori was an advocate for a bill that would eliminate race and ethnic health disparities. One of her proudest moments was seeing this bill turned into law. She says, “I like advocacy work because I feel like I am making a difference, particularly when I am advocate for people who can't advocate for themselves.”

Lori’s stroke experience brought her many challenges, but it also gave her a new drive for advocacy work. “After going through the whole process I realized that there is still a lot of work to be done. I had great care, but there were things that could have been improved and there is still a lot that isn't known about why people have strokes.” After her stroke, Lori stumbled on the American Heart Association web page where she happily signed up for advocacy volunteer work, and has been an active advocate for You're the Cure ever since. She is currently serving on an advisory committee for You’re the Cure.

Of all of the experiences that Lori has had, she says she is most gratified by her advocacy work. Lori’s advice to advocates is to have passion and patience. “Don't give up. Just don't give up. Its' easy to give up, but don't do it. The people you are advocating for need you.”

Are you passionate about advocacy? Tell us your story HERE.

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Healthy Corner Stores Video Released!

Today the North Carolina Alliance for Health (NCAH) released a video featuring the stories of three corner store owners in North Carolina who participated in a pilot program to stock and sell healthy and local produce in their neighborhoods. The video shows how the program has benefited the store owners, local farmers, and their communities. With more widespread funding to implement this initiative across the state, more store owners would be able to stock and sell more nutrient-dense food, providing healthier choices for customers all across the state.

The video can be accessed here.

NCAH urges members and partners to use this video in your efforts to promote the Healthy Corner Store Initiative! Share this link with your staff, board members, listservs and social media outlets. For additional information about the video or ideas about how to promote it, please contact NCAH’s Healthy Food Access Coordinator, Sarah Jacobson, at sarah@ncallianceforhealth.org.

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Join us as we rev up F. A. S. T!

With strokes affecting thousands of Americans every day, we’d like to invite you to join us as we rev up awareness about this medical condition. To help with that, today we’d like to share some startling statistics with you:

· 2,150 Americans die each day from Stroke and Heart disease.
· About one person dies from stroke every 40 seconds
· Stroke is the No. 5 killer of all Americans
· Stroke is the leading cause of adult disability among Americans

We’d also like to invite you to watch an exciting video about F.A.S.T. - and ask you to also win the gold by sharing the link with at least 10 of your friends. Whether through Twitter or Facebook, emails or instant messages – this video has some great information about the campaign, and we hope you’ll race our other advocates in spreading the word.

We’d like to spread the word about F.A.S.T. with at least 2,150 Americans across the country, and we sincerely appreciate your help in getting us to the finish line!

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Yolanda Dickerson

Yolanda Dickerson, Mid-Atlantic Affiliate

I am the product of my village.  When I received the AHA Survivor Advocate of the Year award in DC two years ago, I knew it was really not about me. The award is a culmination of those who invested in me and what I’ve learned up to this point. For more than 11 years now I have raised money for heart walks, volunteered for American Heart Association (AHA) in booths at various events, and been a guest speaker to parents, survivors and even AHA staff.  I have helped train other advocates, spoken to countless legislators, and been featured in Public Service Announcements, but these things didn’t start with me.

My advocacy story started with my mother who encouraged all four of her children to not let adversity stop their dreams and to help others along the way.  I learned the power of resolve in the face of limitations from my brother Darrell; of working smart (not hard) from my brother Rodney; and to stay focused on family from both my younger brother Willie and Cousin Charles. My daughter, Ilana, has taught me the benefits of (sometimes) being silly and enjoying the moment.

These lessons have been honed and sharpened by AHA/YTC staff and volunteers through trainings and practice sessions. How could I begin to thank Sloan Garner, Betsy Vetter, Kacie Kennedy all the other AHA/YTC folks who have put time, trust, and support in my success as an advocate and as a person. Every survivor, caretaker, and medical provider I meet leaves their mark and positive influence on my resolve to continue volunteering. I can’t run cross country, but I can effect change that reaches beyond my community one volunteer effort at a time.

 To all those named and unnamed members of my ‘village’ I say thank you and I will continue to honor you by using my abilities to help others.

 Yolanda Dickerson, You’re the Cure Survivor-Volunteer-Advocate

 

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You Don't Have to Face This Alone

 

If you, a family member, or a loved one has been affected by heart disease or stroke, it is important to remember that you are not alone. That’s why we want you to know about the American Heart Association/American Stroke Association Support Network, a new, free online resource where you can connect with others who are facing the same challenges you are facing.

The Support Network is a sounding board to express your concerns and ask questions, and also to find encouragement, inspiration, and practical advice from others who are sharing your journey. Look at a few of the key topics people are discussing at the Support Network:

  • You’ve recently had a heart attack or stroke, or been diagnosed with heart failure, coronary artery disease, or another condition
  • Your child was born with or diagnosed with a congenital cardiovascular defect
  • You are about to undergo surgery, or begin cardiac rehabilitation
  • You would like rehabilitation advice from others on lifestyle modifications or medication adherence

The network provides opportunities for empathy and understanding, as well as education and resources for coping with change. Studies have shown that having support can affect physical as well as emotional healing, reducing depression and improving the quality of life. 

Whether you’re a patient, a caregiver, or want to learn how you can help someone you care about, we hope you’ll become a part of our community.

By sharing your voice, you won’t only be receiving the support you need, you’ll also be providing it to others. All online conversations are professionally moderated and confidential.

Together we are living with courage.  Join the community and meet others who are healing from heart diseases or stroke:

 

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Lobby Day MVPs in the Spotlight

There were SO many amazing stories surrounding this year’s Hill Day that it was hard to narrow down our annual lobby day award winners. Not a bad problem to have! Please join us in congratulating these You’re the Cure MVPs, and then learn more about their stories in this video.

 

  • Science Advocate of the year – Dr. David Yu-Yiao Huang: Dr. Huang has been involved with AHA advocacy since 2003. From submitting expert written testimony and attending in-district meetings, to speaking before lawmakers, his passion for policy and his belief in the positive change policy can achieve has contributed significantly to big wins in North Carolina.
  • Volunteer Advocate of the Year – Theresa Conejo: Theresa has been one of the key proponents of Pennsylvania’s comprehensive smoke-free law. Last year, she signed a smoke-free op-ed which was picked up by major news outlets across the state. She also aggressively advocated for the proposed Clean Indoor Law. In addition, she recruits new You’re the Cure advocates at every opportunity. In fact, just recently, she signed up an additional 35 volunteers to join her in Pennsylvania’s smoke-free fight.
  • Survivor Advocate of the Year – Jim Bischoff: Jim’s own struggle with heart disease, as well as his experience with his son-in-law’s stroke, gives him a unique perspective to share during state and federal lobby days and meetings with lawmakers. His family history inspired him to provide leadership on stroke systems of care legislation. He also dedicates his time to tobacco issues, and attends in-district meetings with his lawmaker to discuss both of these important issues.
  • Youth Advocate of the Year – Cassidy Collins: Cassidy uses her story as a congenital heart survivor to illustrate the importance of AHA’s policy issues. At the age of 16, her resume is already quite impressive – she’s met with U.S. Surgeon General Regina Benjamin to advocate for tobacco control funding; she has been a top fundraiser for the Roanoke Heart Walk for two years; and she has applied to work as a youth advocate for the Alliance for a Healthier Generation.

Check out a video highlighting our award winners below!

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How to Keep the Winning Game Going

You're the Cure on the Hill isn’t the only opportunity to connect with members of Congress! As their constituents, you have the power and the RIGHT to tell them at any time to step up to the plate on the heart and stroke issues you care about most.


Here are some tips for getting your lawmaker off the bench and into the game:

 

  • Follow them on social media and send them messages on issues you care about.
  • Sign up for their e-newsletters on their websites. This is a great way to learn about events where you can meet the lawmakers in person and stay informed.
  • Work with your local AHA advocacy staff to schedule an in-district meeting. Members of Congress come home throughout the year on recess breaks, so they use this time to meet with constituents back in the district. Take advantage of their time at home and schedule a meeting to discuss the heart and stroke issues that matter to you and your family.
  • Most importantly, take action year round. Watch your inbox for calls to action from You’re the Cure and continue engaging your lawmaker through emails, phone calls and tagging them in your social media posts.

We had a real impact this week, but we need to keep the momentum going. Let's keep reminding our members of Congress that they need to step up for heart health all year round!

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Pulse Oximetry is Two Years Old!

While to some, May 8 may just seem like any other day – to North Carolina advocates, this is a day to celebrate an anniversary. On May 8, 2013, the Pulse Oximetry bill was signed into law by Governor McCrory.

Even though the policy journey is never easy, knowing that lives will be saved make it all worthwhile.

Valerie King, NC Advocacy Coordinating Committee member, YTC advocate – and most importantly, mom to 7 year old Greta who, shown here, was born with a congenital heart defect, shared her thoughts on this two year anniversary: "The Pulse Ox bill was not the easiest to convince our legislators to work for but we have some persuasive stories. These little heroes go through so much in their small lives how can we not fight for them?  Two years ago today, 2 dear friends and parents of CHD warriors got to stand with Gov. McCrory and watch him sign this bill into law. I have spoken to a number of families that are thankful for the work that was put forth by a wonderful team. I am simply proud to have been a part of it, and have the opportunity to know that these babies will have a better chance of survival by these defects being detected sooner!"

Kathryn Rose, another NC resident and parent, wants others to know how much of a difference this law has made in her life and to her family: "Even after having great prenatal care, high-tech ultrasounds, an uneventful delivery and perfect newborn assessment, our son had absolutely no sign of health concerns. He was a healthy baby boy ready to go home after twenty-four hours, but the pulse oximetry test results sent him to the NICU. … This simple pulse oximetry check bought him time to grow a little stronger and gave the doctors two days to observe all of his little parts. Thanks to this legislation, more North Carolina newborns with heart defects will be identified early and interventions started under the care of great medical staff. Our son has had a chance to grow up into a strong and courageous toddler!"

While at times the policy process can seem long and drawn out, as we celebrate May 8th all across North Carolina, we want to take this opportunity to thank our advocates for helping us save lives. Your advocacy is making a difference. Thank you for being a lifesaver.

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May is American Stroke Month

Anyone can have a stroke and everyone should be ready.

Every 40 seconds, someone in the U.S. suffers a stroke and every 4 minutes, someone dies from a stroke. That is why The American Heart Association/American Stroke Association is inviting all Americans to become Stroke Heroes by learning and sharing the warning signs of stroke, F.A.ST. (Face drooping, Arm weakness, Speech difficulty, Time to call 9-1-1).

Recognizing and responding to a stroke emergency immediately can lead to quick stroke treatment and may even save a life. Be ready!

Here is how you can participate in American Stroke Month

  • Share the F.A.S.T. acronym with your friends, family and loved ones throughout American Stroke Month.
  • Share our F.A.S.T. Quiz to test your stroke knowledge.
  • Download our free Spot a Stroke F.A.S.T. mobile app to prepare you in case of a stroke emergency and to have easy access.

Go to StrokeAssociation.org/StrokeMonth to learn more about how you can get involved.

 

 

 

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Thank You for Everything You Do!

It’s National Volunteer Appreciation Week this week (April 12 – 16) – and with that thought on our minds, we wanted to tell you how much we appreciate you, and all that you do for You’re the Cure initiatives all across the East Coast.

We appreciate every single alert response, every call, every visit you have made to your lawmakers and elected officials. We appreciate you joining us in conference rooms across our division as we train you on different state policies and how to be an engaged advocate. We appreciate those who serve on our Advocacy Committees, putting in long hours in meetings and on calls as you help us shape our grassroots plans.

We appreciate you, and we appreciate your time and all you do as a partner of the American Heart Association. In case you ever forget, every little thing – both large and small – makes a difference!

Every Little Thing you do

as a You’re the Cure advocate helps,

and we appreciate you!

 THANK YOU for all you do.

Just a note: If you haven't joined our advocacy network yet, it's never too late! Just visit us at www.yourethecure.org and become a You're the Cure member. It only takes a few moments to sign up, but you'll help make a difference that will last through the years!

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