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Lobby Day MVPs in the Spotlight

There were SO many amazing stories surrounding this year’s Hill Day that it was hard to narrow down our annual lobby day award winners. Not a bad problem to have! Please join us in congratulating these You’re the Cure MVPs, and then learn more about their stories in this video.

 

  • Science Advocate of the year – Dr. David Yu-Yiao Huang: Dr. Huang has been involved with AHA advocacy since 2003. From submitting expert written testimony and attending in-district meetings, to speaking before lawmakers, his passion for policy and his belief in the positive change policy can achieve has contributed significantly to big wins in North Carolina.
  • Volunteer Advocate of the Year – Theresa Conejo: Theresa has been one of the key proponents of Pennsylvania’s comprehensive smoke-free law. Last year, she signed a smoke-free op-ed which was picked up by major news outlets across the state. She also aggressively advocated for the proposed Clean Indoor Law. In addition, she recruits new You’re the Cure advocates at every opportunity. In fact, just recently, she signed up an additional 35 volunteers to join her in Pennsylvania’s smoke-free fight.
  • Survivor Advocate of the Year – Jim Bischoff: Jim’s own struggle with heart disease, as well as his experience with his son-in-law’s stroke, gives him a unique perspective to share during state and federal lobby days and meetings with lawmakers. His family history inspired him to provide leadership on stroke systems of care legislation. He also dedicates his time to tobacco issues, and attends in-district meetings with his lawmaker to discuss both of these important issues.
  • Youth Advocate of the Year – Cassidy Collins: Cassidy uses her story as a congenital heart survivor to illustrate the importance of AHA’s policy issues. At the age of 16, her resume is already quite impressive – she’s met with U.S. Surgeon General Regina Benjamin to advocate for tobacco control funding; she has been a top fundraiser for the Roanoke Heart Walk for two years; and she has applied to work as a youth advocate for the Alliance for a Healthier Generation.

Check out a video highlighting our award winners below!

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How to Keep the Winning Game Going

You're the Cure on the Hill isn’t the only opportunity to connect with members of Congress! As their constituents, you have the power and the RIGHT to tell them at any time to step up to the plate on the heart and stroke issues you care about most.


Here are some tips for getting your lawmaker off the bench and into the game:

 

  • Follow them on social media and send them messages on issues you care about.
  • Sign up for their e-newsletters on their websites. This is a great way to learn about events where you can meet the lawmakers in person and stay informed.
  • Work with your local AHA advocacy staff to schedule an in-district meeting. Members of Congress come home throughout the year on recess breaks, so they use this time to meet with constituents back in the district. Take advantage of their time at home and schedule a meeting to discuss the heart and stroke issues that matter to you and your family.
  • Most importantly, take action year round. Watch your inbox for calls to action from You’re the Cure and continue engaging your lawmaker through emails, phone calls and tagging them in your social media posts.

We had a real impact this week, but we need to keep the momentum going. Let's keep reminding our members of Congress that they need to step up for heart health all year round!

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May is American Stroke Month

Anyone can have a stroke and everyone should be ready.

Every 40 seconds, someone in the U.S. suffers a stroke and every 4 minutes, someone dies from a stroke. That is why The American Heart Association/American Stroke Association is inviting all Americans to become Stroke Heroes by learning and sharing the warning signs of stroke, F.A.ST. (Face drooping, Arm weakness, Speech difficulty, Time to call 9-1-1).

Recognizing and responding to a stroke emergency immediately can lead to quick stroke treatment and may even save a life. Be ready!

Here is how you can participate in American Stroke Month

  • Share the F.A.S.T. acronym with your friends, family and loved ones throughout American Stroke Month.
  • Share our F.A.S.T. Quiz to test your stroke knowledge.
  • Download our free Spot a Stroke F.A.S.T. mobile app to prepare you in case of a stroke emergency and to have easy access.

Go to StrokeAssociation.org/StrokeMonth to learn more about how you can get involved.

 

 

 

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Thank You for Everything You Do!

It’s National Volunteer Appreciation Week this week (April 12 – 16) – and with that thought on our minds, we wanted to tell you how much we appreciate you, and all that you do for You’re the Cure initiatives all across the East Coast.

We appreciate every single alert response, every call, every visit you have made to your lawmakers and elected officials. We appreciate you joining us in conference rooms across our division as we train you on different state policies and how to be an engaged advocate. We appreciate those who serve on our Advocacy Committees, putting in long hours in meetings and on calls as you help us shape our grassroots plans.

We appreciate you, and we appreciate your time and all you do as a partner of the American Heart Association. In case you ever forget, every little thing – both large and small – makes a difference!

Every Little Thing you do

as a You’re the Cure advocate helps,

and we appreciate you!

 THANK YOU for all you do.

Just a note: If you haven't joined our advocacy network yet, it's never too late! Just visit us at www.yourethecure.org and become a You're the Cure member. It only takes a few moments to sign up, but you'll help make a difference that will last through the years!

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From the Bottom of our Hearts - Thank You!

National Volunteer Week (April 12-18) is right around the corner and we couldn’t let it pass without saying how much we appreciate all your contributions as a You’re the Cure advocate. It’s advocates like you who give their time, energy, and passion to help create healthier communities across the country.  We are deeply grateful for your commitment and talent as an advocate.

Since staff can’t always shake your hand and say thank you in person we’ve got a brief video to share. When you watch I am sure you too will be moved by all the great work happening in your states and communities and we look forward to more success in the future. Take a moment to check out the video and then encourage other to get involved and join in the fun.

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If You Build It, They Will Come: Relationships with Lawmakers

There’s a saying often used when referencing the act of sales which can also be applied to advocacy: It all comes down to relationships.

As an advocate, building relationships with elected officials is the number one way you can ensure that lawmakers across your state are educated on the issues most important to you. You’re the Cure advocates are given opportunities to strengthen their skills at building relationships with decision makers through the various advocacy activities offered while promoting AHA’s policy goals.

One key to building relationships with legislators is to understand their preferred method of receiving information. What are the best ways to reach out to them, communicate with them, and follow up with them? Sometimes, the timing of communication can be one of the more important variables. VA Delegate Christopher Peace [R – New Kent] suggests that getting in touch with him at his local office is best: "Usually, setting a meeting in my Mechanicsville District Office prior to session sets a more relaxed environment in which a citizen advocate may express to me their thoughts on issues of importance to them and about legislative matters that may arise during the impending session."

Not sure what your legislator prefers? Make a call to their legislative assistant—not only will they be able to direct you, but developing a relationship with this "gatekeeper" can also help you form a better relationship with your lawmaker!

Additionally, sometimes your elected officials will be the ones to reach out to you directly.  NC Representative Becky Carney [D-Mecklenburg] said that in her opinion, the best way to communicate with her constituents is for them to "set up a meeting to talk about the issues that people have, or their concerns.  I prefer talking with people – communicating with me through email is a great way, [including] phone numbers so that I can call them back. Personal dialogue is sometimes better than written dialogue."

Your legislators know that advocates are vital for them to keep a finger on the pulse of their communities back home.

Councilmember-At-Large David Grosso [I-District of Columbia] shared his perspective: "Advocates are a major driving force in the legislative process. They are boots on the ground and know intricately those issues that impact different populations and communities. I want to know what their specific concerns are. As a member of the legislative body, sometimes we have a 30,000 ft. view of issues, but the advocates help us to focus on the nuance and intricacies of various matters. Having that perspective is invaluable because it enables us to tailor laws and regulations to the specific needs of the communities that we serve. Through our relationship with advocates, we are able to identify the areas where we can have the greatest impact, ensuring that we are serving a wide demographic in the most effective and efficient ways possible."

Through the voice of their constituents, elected officials are in a much better position to stay updated with a focused view of what's happening in their communities.

From DC, Maryland, Virginia, and into the Carolinas, our legislative bodies may look different; however, at the end of the day we are all people, one and the same. Our elected officials have important jobs where they represent us by making decisions that ultimately affect our daily life – but their main focus is their constituents.

If you’re up to it today, we would like to challenge you to use this information and take action. Send an email, make a phone call, or schedule a time to meet with your legislator today! Your elected officials are ready and willing to get to know you and what is important to you and your community!

A special thanks to Councilmember-At-Large Grosso [I-District of Columbia], VA Delegate Christopher Peace [R – New Kent], and NC Representative Becky Carney [D-Mecklenburg] for their contributions to this piece.

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Dr. Amie Hsia

Dr. Amie Hsia, Mid-Atlantic Affiliate

How do you build a passion for stroke?  Dr. Amie Hsia is absolutely driven to reduce the gap in knowledge about stroke awareness. As a stroke fellow at Stanford University, Hsia was asked to work on stroke issues in the community. She was staggered by the lack of understanding about stroke in the community, and has since worked to reduce those disparities.

Hsia now serves as Medical Director of the MedStar Washington Hospital Center Stroke Center, and has partnered with American Heart Association/American Stroke Association (AHA/ASA) in their shared mission to increase stroke awareness and to assist community members in utilizing available resources. Hsia hopes that community members can gain a basic level of awareness before they are faced with an emergency situation. She says, “Even if people think they aren’t at risk, it may affect people around them, whether that is family members, coworkers, or friends.”

In addition to the great challenge of increasing awareness in the community, Dr. Hsia quickly realized the importance of improving health policies locally. Her passion has made her a key AHA/ASA advocate for important legislation in the District. Her credentials and extensive knowledge base allow her to contribute reliable testimony to legislators as they evaluate policies related to cardiovascular disease and stroke. She recently testified at a D.C. City Council hearing in support of the Telehealth Reimbursement Act. “It was a key opportunity to have a voice,” Hsia said of the experience.

Along with AHA/ASA, Dr. Hsia has celebrated the victories achieved in increasing stroke awareness and level of care. These successes have encouraged her to continue working with AHA/ASA and to devote her time and resources to make positive changes in the community. 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Hsia and colleagues running a stroke awareness event for the community

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Help secure funding for this life-saving AED program today!

This is a critical time in Congress. Lawmakers are deciding on their funding priorities and the next round of budget negotiations are beginning. Even in this difficult economy, there are several federally-funded programs that are vital to the heart community, and we need to let our lawmakers know they must be a priority.

One such program helps buy and place automated external defibrillators (AEDs) in rural communities. The program also trains first responders and others in the community to use and operate these devices. The Rural and Community Access to Emergency Devices Program ensures those who live in rural areas or small towns have access to the tools they need for the best chance of surviving a cardiac arrest. Unfortunately, the program currently only has the resources to operate in 12 states.

Please contact your lawmaker today and ask them to prioritize funding to save lives from cardiac arrest!

People in every state should be given the best shot at surviving a cardiac arrest. Communities with aggressive AED placements have increased survival rates from about 11% to nearly 40%, which is an incredible improvement. But 38 states are still waiting for funds for this life-saving program.

Deadlines in Congress are looming, so please contact your elected officials TODAY!

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It's Nice to Share

  

Sharing is nice, we learned in kindergarten, and here’s where it can really count.  It’s super-easy to share our grassroots network with your friends and family, so their voices can help support CVD legislation too. 

We seriously need to reach the people who understand something about cardiovascular diseases and/or stroke – and, think about it, who do you know who does not have a connection somehow to someone directly impacted?  The people in your social networks care about you, and you can help inspire them to care about our mission.    

Simply post our video on your social media with this text, or something similar of your own:

Please help me build healthier lives, free of cardiovascular diseases and stroke, through grassroots advocacy.  It’s for us and our loved ones.  Please join and support the cause – I’ll appreciate it personally.  You could easily wind up helping someone you know.  It’s fast, and it’s easy to be an active part of the American Heart Association’s You’re the Cure network: www.yourethecure.org

 

 

 

 

  

 

 

 

 

 

 

 

 

 

 

And you know how quickly a post disappears down the queue …please bookmark this and consider re-posting periodically so more of your network has a chance to respond. 

You can also click the Share button that pops up on our website after you’ve taken action on an alert to effortlessly push the message to social media. Every time!

Please don’t think this is not important just because it’s not driving a particular policy.  Our impact as a grassroots network is only as strong as its number of active voices: the people willing to take the time to help drive messages to their legislators. 

Share to help our mission!  This act helps significantly to make our network a force to be reckoned with. 

  

 

<Picture credit: https://www.flickr.com/people/76535310@N00>

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Juddson Rupp

Juddson Rupp, Mid-Atlantic Affiliate

I didn’t remember anything from my week in the hospital, but when a friend brought in a copy of the six o’clock news from October 27, 2000 I quickly realized that either that was a slow news day or that I was one lucky miracle survivor with an important story to share.

"Being at the right place at the right time and near the right equipment may have been a real life saver for a man working out at the YMCA,” the TV anchor began. Her co-anchor added, "Judd Rupp, not your typical heart attack victim - he's in his 30's and was at the gym.  Thanks to some people who knew exactly what to do, he's alive today."

Reporter Steve Litz brought the story to a close saying: "Two important notes to add- It was difficult identifying Judd Rupp as he was not wearing any kind of I.D.  Everything worked in Rupp's favor at the YMCA because so many know CPR there.  Another note, Juddson Rupp is an employee here at WSOC-TV.  We all wish him well in his recovery."

After getting choked up watching news clips like the one above a decade ago, I knew that internally and externally my life had changed.  I could no longer be a just a private citizen.   I had to share my story publicly for several reasons.  I now strongly believe that being and advocate and sharing your story is an important duty as a survivor.

The American Heart Association approached me to ask if they could use my story for the upcoming Heart Ball.  The Marketing Director told me that sharing my story could help save hundreds, if not thousands of lives through the years.  Then the publicity became a 'no-brainer' for me.  Why wouldn't I help save others by informing people to learn CPR or by encouraging them to purchase AED's and stop cardiovascular disease with added research and funding?

After the initial Heart Ball work in 2001, I was asked to be in a Public Service Announcement (PSA) that ran on Charlotte TV stations and throughout the Carolinas in a commercial also featuring my wife and two children urging people to 'Learn CPR...it can save lives!'  I became the poster boy for the American Heart Association, as my wife had joked.  She also knew that I was honored to do this and practically anything to help AHA grow its cause...and be the cure.

My volunteer time and work became even more empowering after meeting Betsy Vetter in 2004.  She asked me to join You’re the Cure, and become an advocate for AHA.  My initial role had me traveling to Washington, DC and visiting with Federal Legislators on Capitol Hill.  I am proud to say that I have not missed an AHA Federal Lobby Day since.

Since then I have held multiple roles including communications/media chair for the NC AHA Advocacy Coordinating Committee, a member of the AHA Charlotte Mission Committee, and co-chair of the Smoke-free Mecklenburg Advocacy Committee. I have also been active with Emergency Cardiovascular Care and the Heart Ball, and attended numerous state lobby days at the General Assembly in Raleigh where I share my personal experience with state lawmakers to help them better understand the importance of supporting strong public health policies.

Speaking with countless legislators and their staff to put a face on heart disease, and fight for so many who are not with us anymore is the most empowering reason I do this.  

*On December 14, 2013 Juddson was the recipient of the 2013 Dr. Robert Blackburn Award for Advocacy Excellence which honored all of his advocacy work at the American Heart Association.

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