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Will you advocate for stroke victims?

The American Heart Association/American Stroke Association will be holding our first ever Stroke Awareness Advocacy Day in Albany on May 27th to raise awareness of stroke.  ASA will set-up meetings and provide a training for all.  Participants will then meet with lawmakers and staff to discuss:

  • Stroke Incidence and Mortality
  • Stroke Disparities
  • Stroke Warning Signs and Treatment                   

If you would like to attend, register here: https://www.surveymonkey.com/s/T6GGPZX

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New Leadership in Albany

This week we saw a major shift in leadership at the state's Capitol. Senator Dean Skelos stepped down as New York State Senate Majority Leader amidst rising pressure from lawmakers and good government groups.

New York State Senator John Flanagan was selected by his colleagues as the new Senate Majority Leader.  Senator Flanagan was first elected to represent part of Suffolk County in 2002.  Prior to serving in the Senate, he served for 16 years in the New York State Assembly.  The American Heart Association worked closely with Senator Flanagan in our efforts to get students trained in CPR prior to graduation.  And we look forward to working with him to combat heart disease and stroke, the state's No. 1 and No. 5 killer of New Yorkers.

Please join us in welcoming Senator Flanagan to his new position and ask him to help in the fight against heart disease and stroke by clicking below:

http://yourethecure.org/aha/advocacy/composeletters.aspx?AlertID=36732

 

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#StepUp4HeartHealth

Hundreds of You’re the Cure advocates are in Washington, D.C. today!   And we have a great group of NYers making the trip!  So what's everyone talking about?

Advocates will be telling lawmakers to support healthy school meals - Kids don't need junk food in schools. 

And we'll also be fighting for funding for medical research - it has the power to save lives.

You can help our advocates gathered in Washington, D.C. today in delivering a strong message to Congress – we can’t afford cuts to National Institutes of Health research. Take action here: http://p2a.co/9aEU5aY

Lets all #StepUp4HeartHealth

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Pulse Oximetry is Two Years Old!

While to some, May 8 may just seem like any other day – to North Carolina advocates, this is a day to celebrate an anniversary. On May 8, 2013, the Pulse Oximetry bill was signed into law by Governor McCrory.

Even though the policy journey is never easy, knowing that lives will be saved make it all worthwhile.

Valerie King, NC Advocacy Coordinating Committee member, YTC advocate – and most importantly, mom to 7 year old Greta who, shown here, was born with a congenital heart defect, shared her thoughts on this two year anniversary: "The Pulse Ox bill was not the easiest to convince our legislators to work for but we have some persuasive stories. These little heroes go through so much in their small lives how can we not fight for them?  Two years ago today, 2 dear friends and parents of CHD warriors got to stand with Gov. McCrory and watch him sign this bill into law. I have spoken to a number of families that are thankful for the work that was put forth by a wonderful team. I am simply proud to have been a part of it, and have the opportunity to know that these babies will have a better chance of survival by these defects being detected sooner!"

Kathryn Rose, another NC resident and parent, wants others to know how much of a difference this law has made in her life and to her family: "Even after having great prenatal care, high-tech ultrasounds, an uneventful delivery and perfect newborn assessment, our son had absolutely no sign of health concerns. He was a healthy baby boy ready to go home after twenty-four hours, but the pulse oximetry test results sent him to the NICU. … This simple pulse oximetry check bought him time to grow a little stronger and gave the doctors two days to observe all of his little parts. Thanks to this legislation, more North Carolina newborns with heart defects will be identified early and interventions started under the care of great medical staff. Our son has had a chance to grow up into a strong and courageous toddler!"

While at times the policy process can seem long and drawn out, as we celebrate May 8th all across North Carolina, we want to take this opportunity to thank our advocates for helping us save lives. Your advocacy is making a difference. Thank you for being a lifesaver.

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Evidence Shows Stroke System Working on Hemorrhagic Strokes

Check out this great article from the AHA / ASA Newsroom, our Stroke System work is so focused around ischemic stroke (because it’s more common), but the evidence is starting to show that the same approach improves outcomes for hemorrhagic strokes too.

People with hemorrhagic strokes (brain bleeds) are more likely to survive if they are treated at a comprehensive stroke center, according to research published in the Journal of the American Heart Association.

Hemorrhagic strokes, which account for about 13 percent of all strokes, are caused when a weakened blood vessel in the brain ruptures and bleeds in the surrounding brain.  Comprehensive stroke centers typically have the specialists and trained personnel to deal with patients with these ruptures or other types of bleeding in the brain.  They also can provide neurological intensive care and 24-hour access to neurosurgery.  The American Heart Association, in conjunction with the Joint Commission, accredits Comprehensive Stroke Centers that meet standards to treat the most complex stroke cases.

" Clinicians, especially emergency-room physicians, need to be aware of the severity and potential implications of hemorrhagic stroke and try to transfer patients to the hospital most capable of providing the full complement of care.  When a person is diagnosed with a hemorrhagic stroke, loved-ones should ask about the possibility of a transfer, " said James S. McKinney, M.D., lead author and assistant professor of neurology at the Rutgers-Robert Wood Johnson Medical School in New Brunswick, New Jersey. Continue reading here

 

 

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CPR SMART Schools Take Off in NYC!

It all started with Staten Island's Port Richmond High School back in February...they were honored as New York City's first CPR Smart school during American Heart Month.  Then came the Juan Morel Campos Secondary School in Brooklyn.  Not to be outdone, Manhattan achieved their first CPR Smart designation in April when Gregorio Luperon High School for Science and Mathematics made their promise to train every student in basic CPR.  (See a great article here from our friends at El Diario - I've never sounded better! - http://www.eldiariony.com/estudiantes-secundaria-aprenden-salvar-vidas)  Then last week, two more schools from Brooklyn and Manhattan joined our growing list of city schools who are prioritizing this lifesaving training for all of their students.  Congratulations to the School for Human Rights (Brooklyn) and Cascades High School (Manhattan)! 

Here are some great photos of the presentation to these schools when they participated in our recent meeting of the NYC Board of Directors:

(Left - Board Chair, David Lefkowitz presents the CPR Smart recognition to The School for Human Rights representative Ariana Covington)

(Left - Board President, Dr. Larry Chinitz presents the CPR Smart designation to teacher James Walther of Cascades High School.)

And in case you missed them, here are links to the press coverage from our first two CPR Smart Schools:

Port Richmond - http://www.silive.com/northshore/index.ssf/2015/02/port_richmond_high_school_beco.html

Juan Morel Campos - http://brooklyn.news12.com/news/williamsburg-school-teaches-students-cpr-1.10175530

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Join Us: NYS Stroke Advocacy Day

 

Stroke. Preventable. Treatable. Beatable.

Join us in Albany on May 27th as we talk to lawmakers about treating and beating stroke.

No experience?  No worries.  We'll make it easy for you.

We will kick off the day with a morning training session.  And we will set up legislative meetings for all participants.

Speak up for stroke victims.  To join us in Albany, simply register here:

https://www.surveymonkey.com/s/T6GGPZX

 

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Thank You for Everything You Do!

It’s National Volunteer Appreciation Week this week (April 12 – 16) – and with that thought on our minds, we wanted to tell you how much we appreciate you, and all that you do for You’re the Cure initiatives all across the East Coast.

We appreciate every single alert response, every call, every visit you have made to your lawmakers and elected officials. We appreciate you joining us in conference rooms across our division as we train you on different state policies and how to be an engaged advocate. We appreciate those who serve on our Advocacy Committees, putting in long hours in meetings and on calls as you help us shape our grassroots plans.

We appreciate you, and we appreciate your time and all you do as a partner of the American Heart Association. In case you ever forget, every little thing – both large and small – makes a difference!

Every Little Thing you do

as a You’re the Cure advocate helps,

and we appreciate you!

 THANK YOU for all you do.

Just a note: If you haven't joined our advocacy network yet, it's never too late! Just visit us at www.yourethecure.org and become a You're the Cure member. It only takes a few moments to sign up, but you'll help make a difference that will last through the years!

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Nevada Lobby Day 2015 Recap

On Tuesday, March 31st, American Heart Association staff, business leaders, survivors, and You’re the Cure advocates joined together in Carson City at the Capitol to support heart-healthy legislation.  In addition, dozens of advocates supported their efforts by taking action online.

To those of you who joined us in Carson City or took online action, the Nevada Advocacy Team wants to say THANK YOU!  

In case you didn’t attend Lobby Day, here’s how we did it:  

  • We hosted a Hand-Only CPR demonstration in the morning.  If you don’t know Hand-Only CPR or would like a 2 minute refresher, please click here!
  • We met face-to-face with legislators in the Assembly Education, Assembly Health and Humans Services Committees as well as members of the Senate Finance Committee.
  • We dropped off informational packets to all remaining legislators who were unavailable to meet due to previous engagements.

And if you missed this year’s Lobby Day, don’t worry! You can still support our efforts online by clicking here and there will be additional opportunities to take action in the coming months. We’ll need every single one of you along the way! 

Please email Ben Schmauss at Ben.Schmauss@heart.org or Josh Brown at Josh.Brown@heart.org if you are interested in future volunteer opportunities, or if you have any additional questions. 

Thank you again for being a critical part of the You’re the Cure team!

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Thank You for Supporting House Bill 2605 - Stroke Systems of Care Legislation

Thanks to your consistent and tremendous support over the last few weeks, House Bill 2605 was signed into law by Governor Ducey on March 31st!  You’re the Cure Advocates accounted for over 400 online actions and countless offline actions to persuade Arizona’s lawmakers to pass HB 2605 this session.  HB 2605 will protect all of Arizona’s citizens by establishing a statewide comprehensive, coordinated system of care that can save lives by providing seamless transitions from one stage of stroke care to the next. 

In Arizona, stroke is the 5th leading cause of death and accounts for over 45 hospitalizations a day. Many hospitals do not have the necessary personnel, equipment, and systems to effectively and rapidly treat stroke patients. HB 2605 will improve stroke care in numerous ways including: improved infrastructure, improved clinical tools and resources, improved patient education resources, increased access to the most up-to-date research, and require regular performance reporting for continuous quality improvement. 

Simply put, HB 2605 will encourage hospitals to adhere to the latest scientific treatment guidelines which will dramatically improve patient outcomes.

For more information on the details of comprehensive stroke systems of care, please visit here.

Thank you once again for your support. You are the cure!

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