American Heart Association - You’re the Cure
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They Want to Hear From You!

Even though Connecticut is indeed a small state, it still consists of no fewer than 169 towns and cities. Within those towns and cities are 151 state representatives and 36 state senators, all of whom are re-elected every two years. You are a constituent to one particular state representative and state senator, and their job is to represent you in Hartford. As an advocate of the American Heart Association, it is important that you know who your own legislators are, and just as important that they know who you are. 

To create this relationship requires little of your time and could start as easily as you sending them a short email introducing yourself as a constituent and letting them know about an issue that you are passionate about, such as heart disease, childhood obesity, unhealthy school marketing or tobacco use.  Once you have exchanged an email or two with your legislators, follow it up periodically with a short note, such as wishing them a fun and relaxing summer, luck in their upcoming elections in November, and a happy holidays. This way they will remember your name and when you need a word with them, their door will be open. Remember, they represent you and really do want to hear from their constituents!

To find your legislator go to https://www.cga.ct.gov/asp/menu/CGAFindLeg.asp. You will be asked to pick your town and to enter your street address and will then be provided with a link to their bio’s containing contact information. You can also email me at james.williams@heart.org, and I am happy to help set up and facilitate meetings.

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You’re the Cure at the Capitol State Lobby Day: Issues At A Glance

State Lobby Day is almost here!  These are the issues that we will be discussing with our lawmakers. 

We will have two asks this year, and have included talking points for each issue below.  We know that State Lobby Day this year will be as successful as all of our other years, and we cannot wait for our advocates to join us!

Ask One: Support HB 250/SB 296: Healthy Food Small Retailer/Corner Store Act with full funding

  • North Carolina has at least 349 food deserts across 80 counties, impacting over 1.5 million North Carolina residents in both rural and urban areas.
  • Communities without access to healthy foods are disproportionately impacted by diet-related diseases such as diabetes, cardiovascular diseases, and cancer.
  • Without easy access to healthy ingredients, families have a harder time meeting dietary guidelines for good health, such as eating fruits and vegetables and lowering fat intake.
  • North Carolinians across the state overwhelmingly support this effort: A recent poll found over 70% of registered voters support a state-funded Healthy Corner Store Initiative. After learning more information, support rose to 76%.
  • A healthy corner store initiative would: help make healthier food options more accessible, provide small business owners with marketing and technical assistance to stock and sell healthy foods, and create new markets for farmers and fisherman. 

Ask Two: Support increasing access to health care

  • Heart disease is the second and stroke the fourth leading cause of death in North Carolina.
  • Of adults (aged 18-64) who report having heart disease, hypertension or stroke, approximately 15% are uninsured.
  • Nearly half of the uninsured with cardiovascular disease cite cost as the reason they lack coverage; 36% cite a lost job or new employer.
  • The uninsured also report being unable to afford prescription drugs nearly four times more often than those who are insured (43% versus 11%).
  • Providing health insurance coverage will help people gain access to the care they need, which improves health outcomes.

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Little Tikes with a Big Message

Sometimes it doesn’t take much to get the message across. Sawyer Daniels and Jack Towle stole the show at our April legislative reception.

Sawyer is here today because his heart defect was able to be detected early thanks to a pulse oximetry test given shortly after birth – a defect that likely would have been fatal had he gone home without it being discovered.

Jack’s defect was not discovered right away as he did not receive a pulse oximetry test as a newborn and suffered the health consequences for months.

You can hear more about their story here. http://www.mychamplainvalley.com/news/parents-push-for-mandatory-pulse-oximetry-testing-on-vermont-newborns

Sawyer and Jack’s parents – Tessa and Elijah Daniels and Katie and Michael Towle -- also spoke and met with legislators at the legislative reception to encourage them to pass legislation requiring this test be given to al newborns. It made a difference.

That very week, the House Health Care Committee passed legislation instructing the Commissioner of Health to undertake a rulemaking to ensure all infants are screened for critical congenital heart defects. The House followed suit shortly thereafter and the Senate passed the legislation this week! This means the Vermont Department of Health will soon take steps to ensure all newborns are screened for heart defects.

Stay tuned as we will need your help once the rulemaking process is underway to stress the importance of pulse oximetry as the standard. Thanks!

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State Lobby Day: A Day to Remember

We are excited that you are joining us May 10th for the 2016 NC AHA You’re the Cure at the Capitol State Lobby Day.   To help you feel ready, we want to provide some important information about Lobby Day.

Lobby Day Schedule:

  • Registration check-in will open at 8:30 am at the Legislative Building Auditorium (link to map below). 
  • The training program will begin promptly at 9:00 am and conclude by 10:30 am so that you will be able to visit with your lawmakers. During the training we will go over the day’s events, our "asks" for the day, divide into your Lobby Day meeting groups, and have time to practice with your group. 
  • Lunch will be at the General Assembly Cafeteria in the Legislative Building. 
  • Rest area during the day is in the 1200 Court of the Legislative Building. Here you will find AHA staff, have a place to complete meeting evaluations, and take a break. 
  • All activities will conclude by 3:30 pm. 

What to wear and bring with you:

  • Visiting the legislature is an active day.  So wear comfortable shoes! 
  • Business attire is recommended, and we request that you wear something red. 
  • Also – don’t forget to check the weather – if it is supposed to rain, bring your umbrella! (Our event is rain or shine!)

Visiting the Legislature (Parking and Directions):

Staying in Raleigh:
If you prefer to come to Raleigh the evening before, here are some hotels in the downtown area that are convenient to the Legislature:

  • Marriot City Center: 500 Fayetteville Street, Raleigh NC 27601 - Phone: (919) 833-1120
  • Sheraton: 421 South Salisbury Street, Raleigh NC 27601 - Phone: (919) 834-9900
  • Holiday Inn (least expensive and closest to the Legislative Complex): 320 Hillsborough St, Raleigh, NC 27603 - Phone: (919) 832-0501

We know that was a lot of information to digest!  That is why we will wait until next week to send out information about the issues we will be talking with our legislators about.  When that information is up, you will be able to read about it by checking back with us on this post.

If you have questions about the logistical information, please contact Kacie Kennedy for more information.

 

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Governor Haley Signs Lifesaving Hands-On CPR in Schools Bill into Law

Governor Nikki Haley signed House Bill 3265 into law on Thursday, April 21, requiring all South Carolina students to learn hands-on cardiopulmonary resuscitation (CPR). This essential life skill will be incorporated into the already required high school health education curriculum and will ultimately benefit countless families by increasing the number of people with CPR proficiency.  Far too many people die suddenly from cardiac arrest who might have been saved if only those around them were trained to administer CPR.

Coleman Maness, a young, sudden cardiac arrest survivor and American Heart Association volunteer shared his thoughts. "We have been working so hard on this legislation for the past four years, and it is great to finally see the result of our hard work today. My life was saved by Bailey Barnes who performed bystander CPR, and this bill will ensure that other cardiac arrest victims will have a greater chance at survival." Coleman’s story of survival motivated a close friend, at the time a high school student, Sally Sheppard, to take action by working with a local legislator to have CPR in Schools legislation introduced during the 2012 session.

House Bill 3265 was sponsored by over 20 representatives and passed the House unanimously in 2015. The Joint Citizens and Legislative Committee on Children endorsed the CPR in Schools legislation.

Thank your lawmakers for passing this livesaving measure.

Nearly 424,000 people have cardiac arrest outside of a hospital every year, and only 10.4 percent survive, most likely because bystanders simply don’t know what to do. When administered right away, CPR doubles or triples survival rates. Teaching students CPR will fill the state with lifesavers, giving sudden cardiac arrest victims the immediate help they need to survive making our communities safer and improving South Carolina’s survival rates.

South Carolina becomes the 30th state to require hands-on CPR joining Alabama, Arkansas, Connecticut, Delaware, Georgia, Idaho, Illinois, Indiana, Iowa, Kentucky, Louisiana, Maryland, Minnesota, Mississippi, New Jersey, New Mexico, New York, North Carolina, North Dakota, Oklahoma, Oregon, Rhode Island, Tennessee, Texas, Utah, Vermont, Virginia, Washington, and West Virginia—all of which require CPR be taught to students in middle or high school.

The legislation was endorsed by 14 national and statewide organizations including the American Heart Association, South Carolina State Association of Fire Chiefs, South Carolina State Firefighters Association, and the South Carolina chapter of the American College of Emergency Physicians.

Be sure to send your thank you now.

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Fresh Food for Strong Kids

Why do we need a Healthy Corner Store Initiative?  This week, Valerie King, from Yadkinville, shares her thoughts.

Help us bring healthy foods to all NC communities this year – tell your lawmaker today.

"My little diva was born with a congenital heart defect. She has had 5 open heart surgeries and is the strongest kid I know. As we shuffle about from one after school activity to another, I get upset when I realize I have forgotten any snacks for her. When you live in rural North Carolina there aren’t many options available to stop and pick her up a quick healthy snack.

Her heart disease is something we couldn’t prevent. Now that she is here we want to be able to make sure she fuels her body with what she needs."

We all deserve the right to make a healthy choice. As legislative session is just around the corner, tell your lawmakers today that healthy food should be accessible in all communities, and ask them to support HB 250, the Healthy Small Food Retailer Act.

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Advocate Spotlight - TJ Haynes

For TJ Haynes it was a matter of time. TJ recently threw out the first pitch at a Mustangs game in Dehler Park to promote the AHA’s Raise the Roof in Red campaign after suffering a heart attack just a few months before.

On May 25, 2015 TJ had gone to the local shooting range in preparation for the annual Quigley Buffalo Match. The days leading up to the 25th he had experienced heartburn and back pain but didn’t think much of it. But after a short period of time at the range he found himself short of breath and in pain.

He called his wife to tell her he wasn’t feeling well and asked her to come pick him up. While he waited another shooter at the range noticed his condition and quickly dialed 911 when he told them he was short of breath and experiencing chest pain.

Thanks to the quick actions of those around him TJ was rushed to the hospital in an ambulance containing a 12 lead EKG machine that sent a snapshot of his heart ahead to the Billings clinic. By sending this snapshot ahead the hospital was able to know what they were dealing with and how to treat it as soon as he arrived. This allowed his clogged artery to be opened just 46 minutes from the onset of the attack.

This amazing equipment had been installed just one day earlier as part of the Mission Lifeline initiative that is largely funded by a grant from the Leona M. and Harry B. Helmsley Charitable Trust.

Today TJ is doing much better. He is in cardiac rehab, is working on his diet and is overall doing well.

TJ is thankful for the actions of those around him and the technology that was available to help him when he needed it most.

 

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You're Invited: Advocate for Heart at the Texas Capitol!

We’re recognizing American Stroke Month with a gathering of advocates and survivors at the Texas State Capitol. Please join us on Tuesday, May 17 from 11:00 a.m. to 2:00 p.m. for a dynamic event featuring advocates that have come together to share their stories of survival.  

We invite you to join us to hear about the policy efforts of the American Heart Association and how YOU are the key to advancing those campaigns!  We look forward to seeing you at the Capitol, and would love to save a place for you!  Please click here to RSVP.

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We Want You... To Come To State Lobby Day

Don’t worry!  There is still time to register for NC AHA You're the Cure State Lobby Day on Tuesday, May 10, 2016. But if you haven't already signed up - don't delay! Sign up here.

The event will begin promptly at 9am with an issues overview and advocacy training at the legislative building. The rest of the day will be spent meeting face to face with lawmakers and watching the House and Senate in action. We anticipate the day ending around 3:30pm.

This year, we will be advocating for the following policy initiatives:

  • Passage of the Healthy Corner Store Initiative with full funding.
  • Sharing the vital importance of accessing healthcare.

Register now! It's easy - just click here. Please register by Monday, April 25, as space is limited.

Final event details will be emailed in late April.

If you have any questions, please contact Kacie Kennedy.

We look forward to an exciting day with our advocates!

Sincerely,

Kim Chidester, Sarah Jacobson, & Betsy Vetter
Your North Carolina Advocacy Team

*PS - Want to make your registration easier? On the "detailed information" page, check the box beside the statement "carry forward" and your information will auto-fill on the next page of the registration form.

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Psst ... We Want To Tell You Something Big!

Throughout the year, we reach out with a "THANK YOU!" message to our advocates because we want you to know that your efforts are making a difference and saving lives.

We appreciate you every moment of every day.  We value those times when you rush through dinner with your family to make to make a council meeting in your community, and when you stand up and share your reasons for supporting an AHA policy. 

It means so much to us when you dedicate your time to State Lobby Day, meeting with legislators to reinforce support for active legislation.  And we can’t forget to thank you for driving to in-district Congressional offices to thank lawmakers for their support on AHA’s federal issues.  When you click to send a letter online it is incredibly valuable to our efforts and we genuinely appreciate your efforts. 

We know you have a choice about how you spend your time.  The fact that you invest in You're the Cure honors us - so this week, National Volunteer Appreciation Week, we honor you. Because YOU are our "why."

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