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Thank You for Everything You Do!

It’s National Volunteer Appreciation Week this week (April 12 – 16) – and with that thought on our minds, we wanted to tell you how much we appreciate you, and all that you do for You’re the Cure initiatives all across the East Coast.

We appreciate every single alert response, every call, every visit you have made to your lawmakers and elected officials. We appreciate you joining us in conference rooms across our division as we train you on different state policies and how to be an engaged advocate. We appreciate those who serve on our Advocacy Committees, putting in long hours in meetings and on calls as you help us shape our grassroots plans.

We appreciate you, and we appreciate your time and all you do as a partner of the American Heart Association. In case you ever forget, every little thing – both large and small – makes a difference!

Every Little Thing you do

as a You’re the Cure advocate helps,

and we appreciate you!

 THANK YOU for all you do.

Just a note: If you haven't joined our advocacy network yet, it's never too late! Just visit us at www.yourethecure.org and become a You're the Cure member. It only takes a few moments to sign up, but you'll help make a difference that will last through the years!

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Nevada Lobby Day 2015 Recap

On Tuesday, March 31st, American Heart Association staff, business leaders, survivors, and You’re the Cure advocates joined together in Carson City at the Capitol to support heart-healthy legislation.  In addition, dozens of advocates supported their efforts by taking action online.

To those of you who joined us in Carson City or took online action, the Nevada Advocacy Team wants to say THANK YOU!  

In case you didn’t attend Lobby Day, here’s how we did it:  

  • We hosted a Hand-Only CPR demonstration in the morning.  If you don’t know Hand-Only CPR or would like a 2 minute refresher, please click here!
  • We met face-to-face with legislators in the Assembly Education, Assembly Health and Humans Services Committees as well as members of the Senate Finance Committee.
  • We dropped off informational packets to all remaining legislators who were unavailable to meet due to previous engagements.

And if you missed this year’s Lobby Day, don’t worry! You can still support our efforts online by clicking here and there will be additional opportunities to take action in the coming months. We’ll need every single one of you along the way! 

Please email Ben Schmauss at Ben.Schmauss@heart.org or Josh Brown at Josh.Brown@heart.org if you are interested in future volunteer opportunities, or if you have any additional questions. 

Thank you again for being a critical part of the You’re the Cure team!

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Thank You for Supporting House Bill 2605 - Stroke Systems of Care Legislation

Thanks to your consistent and tremendous support over the last few weeks, House Bill 2605 was signed into law by Governor Ducey on March 31st!  You’re the Cure Advocates accounted for over 400 online actions and countless offline actions to persuade Arizona’s lawmakers to pass HB 2605 this session.  HB 2605 will protect all of Arizona’s citizens by establishing a statewide comprehensive, coordinated system of care that can save lives by providing seamless transitions from one stage of stroke care to the next. 

In Arizona, stroke is the 5th leading cause of death and accounts for over 45 hospitalizations a day. Many hospitals do not have the necessary personnel, equipment, and systems to effectively and rapidly treat stroke patients. HB 2605 will improve stroke care in numerous ways including: improved infrastructure, improved clinical tools and resources, improved patient education resources, increased access to the most up-to-date research, and require regular performance reporting for continuous quality improvement. 

Simply put, HB 2605 will encourage hospitals to adhere to the latest scientific treatment guidelines which will dramatically improve patient outcomes.

For more information on the details of comprehensive stroke systems of care, please visit here.

Thank you once again for your support. You are the cure!

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If You Build It, They Will Come: Relationships with Lawmakers

There’s a saying often used when referencing the act of sales which can also be applied to advocacy: It all comes down to relationships.

As an advocate, building relationships with elected officials is the number one way you can ensure that lawmakers across your state are educated on the issues most important to you. You’re the Cure advocates are given opportunities to strengthen their skills at building relationships with decision makers through the various advocacy activities offered while promoting AHA’s policy goals.

One key to building relationships with legislators is to understand their preferred method of receiving information. What are the best ways to reach out to them, communicate with them, and follow up with them? Sometimes, the timing of communication can be one of the more important variables. VA Delegate Christopher Peace [R – New Kent] suggests that getting in touch with him at his local office is best: "Usually, setting a meeting in my Mechanicsville District Office prior to session sets a more relaxed environment in which a citizen advocate may express to me their thoughts on issues of importance to them and about legislative matters that may arise during the impending session."

Not sure what your legislator prefers? Make a call to their legislative assistant—not only will they be able to direct you, but developing a relationship with this "gatekeeper" can also help you form a better relationship with your lawmaker!

Additionally, sometimes your elected officials will be the ones to reach out to you directly.  NC Representative Becky Carney [D-Mecklenburg] said that in her opinion, the best way to communicate with her constituents is for them to "set up a meeting to talk about the issues that people have, or their concerns.  I prefer talking with people – communicating with me through email is a great way, [including] phone numbers so that I can call them back. Personal dialogue is sometimes better than written dialogue."

Your legislators know that advocates are vital for them to keep a finger on the pulse of their communities back home.

Councilmember-At-Large David Grosso [I-District of Columbia] shared his perspective: "Advocates are a major driving force in the legislative process. They are boots on the ground and know intricately those issues that impact different populations and communities. I want to know what their specific concerns are. As a member of the legislative body, sometimes we have a 30,000 ft. view of issues, but the advocates help us to focus on the nuance and intricacies of various matters. Having that perspective is invaluable because it enables us to tailor laws and regulations to the specific needs of the communities that we serve. Through our relationship with advocates, we are able to identify the areas where we can have the greatest impact, ensuring that we are serving a wide demographic in the most effective and efficient ways possible."

Through the voice of their constituents, elected officials are in a much better position to stay updated with a focused view of what's happening in their communities.

From DC, Maryland, Virginia, and into the Carolinas, our legislative bodies may look different; however, at the end of the day we are all people, one and the same. Our elected officials have important jobs where they represent us by making decisions that ultimately affect our daily life – but their main focus is their constituents.

If you’re up to it today, we would like to challenge you to use this information and take action. Send an email, make a phone call, or schedule a time to meet with your legislator today! Your elected officials are ready and willing to get to know you and what is important to you and your community!

A special thanks to Councilmember-At-Large Grosso [I-District of Columbia], VA Delegate Christopher Peace [R – New Kent], and NC Representative Becky Carney [D-Mecklenburg] for their contributions to this piece.

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Urge Senators to Lift the Cap on Charitable Donations!

Please tell Senate Finance Committee members that limiting the amount of funds non-profit organizations can raise in Vermont to fund their missions is the wrong way to raise revenue.

The Vermont House has passed legislation that would cap itemized deductions at 2.5 percent of the state standard deduction ($15,500/individual; $31,000/couple). The bill, which reportedly raises $33.2 million, is now before the Senate Finance Committee. Please contact members of the Senate finance Committee at http://legislature.vermont.gov/committee/detail/2016/25 and tell them that such a cap could have an adverse effect on the good work the AHA is doing in Vermont.

In a response to Vermont’s non-profit community recently Senate Finance Committee Chair Tim Ashe stated the following, “…one thing is clear – Vermont’s tax system is in need of change. We currently tax the things that are not growing, and we do not tax the things that are growing. I am in no jag whatsoever to merely raise new taxes to “get us through this year.” We really do need a long-term approach so that both government and our non-profit partners have stable funding for planning and operational purposes.”

We agree. Please tell committee members that implementing excise taxes on tobacco and sugary drinks could raise significant revenue for the state but more importantly, deter unhealthy behaviors that lead to diseases such as heart disease, stroke and cancer that are costing the state millions.

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Countdown to CPR in Schools Report

The countdown has begun...The NYS Department of Education is required to issue a report to the NYS Board of Regents by April 19th.  Many of you have taken actions to help get us where we are - we've reached out to lawmakers, the Governor; we've tweeted and posted on Facebook; we've shared our stories with friends, family and the media; we've called, emailed and written letters...and we're in the final stretch.  We know CPR in Schools will save lives and that is why we keep sending messages to the Board of Regents.  One person that has bravely shared her story is Katarina Weigel. 

On July 15th, 2010, Katarina was at her high school volleyball practice.  She doesn't know what happened next but the people around her remember.  She went into sudden cardiac arrest.  Her coaches performed CPR and used the automatic external defibrillator. She doesn't  look like the face of sudden cardiac arrest.  She was just 15.  Since that time she has learned that sudden cardiac arrest can happen to anyone, anytime. The faces of sudden cardiac arrest will surprise you.  

Now she has educated her high school about the importance of CPR, shared her story with elementary school children and adults, used social media to push for CPR in schools an attended numerous events explaining how easy CPR can be learned and preformed. 

And this week...she reached out to each and every member of the Board of Regents to tell them to say YES to CPR in Schools.

If you want to help NYS become the 22nd state to have CPR training in our schools, please email Julianne Hart at julianne.hart@heart.org.

 

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AmandaJean Beaulieu Speaks on Capitol Steps in D.C.!

One of our top advocacy volunteers and stroke survivor, AmandaJean Beaulieu spoke at U.S. House Speaker Nancy Pelosi's press conference on the Capitol Steps in D.C. yesterday morning in honor of the 5th Anniversery of the signing of the Affordable Care Act!

Here is a link to AmandaJean’s full remarks that she delivered during the event!

Learn more about AmandaJean's story HERE

 

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Stroke Bill Considered in the Oklahoma Legislature

An important bill that will help stroke patients get faster quality treatment is being considered in the Oklahoma Legislature.  We need your help to ask lawmakers to vote YES on HB1463!

Take Action Now!

This bill will allow for the development of emergency medical service protocols related to the care of stroke patients. Stroke is the leading cause of long term disability in our state and is the #5 killer.

The development of these protocols will help to help stroke patients receive quality care in a timely manner and improve outcomes. We strongly endorse this legislation because it will help get stroke patients the fast treatment and quality of care that is so essential.

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Stroke Bill Considered in the New Mexico Legislature

An important bill that will help stroke patients get faster quality treatment is being considered in the New Mexico Legislature.  We need your help to ask lawmakers to vote YES on SB 81!

Take Action Now!  https://yourethecure.org/aha/advocacy/composeletters.aspx?AlertID=36384#Ind_ID] 

This bill will allow for the development of emergency medical service protocols related to the care of stroke patients. Stroke is the leading cause of long term disability in our state and is the #5 killer.

The development of these protocols will help to help stroke patients receive quality care in a timely manner and improve outcomes. We strongly endorse this legislation because it will help get stroke patients the fast treatment and quality of care that is so essential.                 

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