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Advocate Spotlight - TJ Haynes

For TJ Haynes it was a matter of time. TJ recently threw out the first pitch at a Mustangs game in Dehler Park to promote the AHA’s Raise the Roof in Red campaign after suffering a heart attack just a few months before.

On May 25, 2015 TJ had gone to the local shooting range in preparation for the annual Quigley Buffalo Match. The days leading up to the 25th he had experienced heartburn and back pain but didn’t think much of it. But after a short period of time at the range he found himself short of breath and in pain.

He called his wife to tell her he wasn’t feeling well and asked her to come pick him up. While he waited another shooter at the range noticed his condition and quickly dialed 911 when he told them he was short of breath and experiencing chest pain.

Thanks to the quick actions of those around him TJ was rushed to the hospital in an ambulance containing a 12 lead EKG machine that sent a snapshot of his heart ahead to the Billings clinic. By sending this snapshot ahead the hospital was able to know what they were dealing with and how to treat it as soon as he arrived. This allowed his clogged artery to be opened just 46 minutes from the onset of the attack.

This amazing equipment had been installed just one day earlier as part of the Mission Lifeline initiative that is largely funded by a grant from the Leona M. and Harry B. Helmsley Charitable Trust.

Today TJ is doing much better. He is in cardiac rehab, is working on his diet and is overall doing well.

TJ is thankful for the actions of those around him and the technology that was available to help him when he needed it most.

 

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Jocelyn Gomez

August 7th, 2015 was the start of the most life-changing event of our lives. My father, mother, and I were sitting in the emergency room that night waiting to be called on. As the minutes went by a tragedy was about to occur without even knowing. My father was at the emergency room for the pain he had on his left foot. His pinky was swelled up, bruised, and a very bright red mark was on the top part of his foot. 

That night my father found out he was diabetic when his blood sugar level was at 750. My father was already a survivor of three heart attacks and the news of him being diabetic was just another thing to add to the plate. Unfortunately, my father has a rare condition where he creates blood clots very easily. This became a massive problem to his foot. The pain was due to the lack of blood circulation and the different techniques that the doctor’s applied were just not enough. After the unsuccessful peripheral bypass surgery, there was no other option than to have an amputation below the knee.

Recovery is and will always be difficult because it is not only a physical recovery, but a mental recovery as well. His loving family and friends always surround him, which is a huge support. Today, my father is slowly adapting to his new lifestyle with a very optimistic attitude. Being diabetic has given him a different view to life and is thankful that he is still alive to tell his story.

My experience at the American Heart Association as an advocacy volunteer has been one of a kind. I’ve learned remarkable things and became part of a community that works very hard to prevent serious health conditions such as diabetes. Working on the SSB campaign has helped me gain more understanding on how much sugar we are consuming without even knowing. Avoiding sugar sweetened beverages and learning how to prevent health conditions such as heart disease and diabetes is extremely important. My father did not care much about his health until his unfortunate amputation. After this life experience, my interest in working in the public health arena has skyrocketed. Educating my own family on healthier choices to prevent any further health conditions is just the beginning. It is never too late to live a healthy lifestyle!

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Legislative Session is Over

The 2016 legislative session is officially over. The short session was very busy for legislators and they had a lot to accomplish in a short period of time. While we weren’t successful in passing legislation to raise the tobacco purchase age to 21, we made a lot of progress on the issue.

I’d like to extend an especially big thank you to advocates who attended our annual lobby day/Heart of Washington Day at the Capitol on February 9th. The meetings with legislators and staff gave us valuable feedback on where they stood on the issue. This information will be helpful next legislative session when we are back and working on this issue again. Because of the great seeds you planted, 2017 is going to be our year for Tobacco to 21!

Thank you to everyone who supported this legislation in other ways as well. If you took action on one of our alerts, know it made a difference. We heard from committee chairs that they got the message loud and clear from you.

Though the Legislature did not move on Tobacco to 21, they did pass legislation to regulate the e-cigarette market and further protect against youth access to these products. Now retailers will be licensed just like tobacco retailers, products must be in child-resistant packaging and carry both nicotine content and warning labels, and use is restricted where children often gather. Funds related to the regulation of the market will be used to fund youth tobacco and e-cigarette prevention work throughout the state.

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AHA President Says: The Science is Clear on Sodium Reduction

Check this out! In a new video, the President of the AHA, Dr. Mark Creager, explains that the science behind sodium reduction is clear. He says that robust evidence has linked excess sodium intake with high blood pressure, which increases the risk of heart attack, stroke, and heart failure. And, he points out that you can do something about it: join AHA’s efforts to demand change in the amounts of sodium in our food supply.

“Nearly 80 percent of the sodium we eat comes from processed, prepackaged, and restaurant foods” says AHA president Dr. Mark Creager. The video shows the 6 foods that contribute the most salt to the American diet: breads & rolls, cold cuts and cured meats, pizza, poultry, soup, and sandwiches."

To see the video, head over to our Sodium Breakup blog!

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The healthy difference a month can make

March is Nutrition Month, and a perfect time to get more involved with the AHA’s ongoing efforts to promote science-based food and nutrition programs that help reduce cardiovascular disease and stroke.

Every day, we’re seeing new initiatives: to make fruits and vegetables more affordable; to reduce the number of sugar-sweetened beverages that our kids are drinking; and of course, to ensure students are getting the healthiest school meals possible, all with the same goal: to help families across the country lead the healthiest lives they possibly can.

It’s also a great opportunity to lower your sodium intake. The average American consumes more than 3,400 milligrams of sodium per day – more than twice the AHA-recommended amount. Excessive sodium consumption has been shown to lead to elevated blood pressure, which increases the risk of heart disease and stroke. Visit www.heart.org/sodium for tips on to lower your intake and to get heart-healthy recipes.

However you choose to celebrate, Nutrition Month gives us all the chance to take control of our diets; to recommit to eating fresh, healthy foods; and to remember all month long that you’re the cure.

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Update on Christian Lybbert

Aimee Lybbert, Mother of CHD (Congenital Heart Defect) Survivor, Christian, updates us on his life now and what she sees every day as a “Heart Mom”

You can catch up on Christian’s story from nearly two years ago here.

Christian will be three at the end of next month. He's been through two more open heart surgeries and four open abdomen surgeries and one surgery through his ribs on his diaphragm. He's now living at Seattle Children's and is currently on the waiting list for a heart transplant.

He has quite the collection of scars. We as his parents do too.

We have been at Seattle Children's for almost 5 months now with most of our time spent in the Cardiac Intensive Care Unit (CICU).

We have seen our share of families and children go through the CICU.

I've seen parents waiting anxiously for their surgery pagers as they wait for any update, I've seen parents hugging surgeons. I've seen rooms that have one little body in the room surrounded by scores of machines and staff working together to get the child through it all. I've seen parents cry with joy as their child had the breathing tube removed and they start to talk again. I've walked past rooms where moms are holding their children for the first time in forever as the nurse takes pictures. I've watched as they get transferred to the recovery floor, and I've watched parents take video of their toddler as he walked out the front door of the hospital after he conquered heart surgery. I've seen such joy at the many triumphs and miracles that happen here. 

I've also seen complete and utter despair. Sometimes things don't go as anticipated or as hoped.

Christian was like that. He had several emergency surgeries and he once bled out from a Gastrointestinal bleed and he had to be intubated and scoped while they transfused almost the entire volume of his blood. There were days that I didn't know how I could go on.

When my son headed off to one of his emergency surgeries I was a complete mess and was sobbing in the elevator on my way to the cafeteria. Another heart mom saw me. She asked me my son's name and told me that she saw me crying and couldn't leave me alone like that. She gave me a hug and said she'd pray for me.

She got off on her floor and I kept traveling down. The next day a card arrived with a note and a Starbucks gift card from her.

She had her own troubles and she took the time to look out for another person in need.

There are a surprising amount of kids and parents whose journey includes a hospitalization and or surgery in order to keep their CHD in check. Congenital Heart Defects are the most common birth defect. Approximately 25% of kids with a CHD will require a surgery or other intervention to survive. If you're on the outside looking in the most important thing to do is just to listen and quietly let them know you love them. If you're on the inside of the CHD storm it is important to realize that you're not alone.

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Little Hats Big Hearts

February is Heart Month and thanks to dedicated volunteers we are participating in the Little Hats, Big Hearts program for the first time.

This program originally started in 2013 in Chicago. It was launched in the Puget Sound last fall and became so popular that we received over 2,000 red hats from volunteers in Washington and other states.

Each newborn born at a participating hospital will receive a red hat lovingly knitted by a volunteer for the American Heart Association. The hospitals participating include Evergreen Health, Kirkland; Overlake Hospital Medical Center, Bellevue; and Swedish Ballard, Edmonds, First Hill and Issaquah, St. Joseph Medical Center, Tacoma, St. Elizabeth Hospital, Enumclaw, St. Francis Hospital, Federal Way, Harrison Medical Center, Silverdale and Harrison Medical Center, Burien.

The program is part of an effort to raise awareness about heart disease and encourage families to choose heart-healthy lifestyles. Heart disease is the leading killer of Americans and congenital heart defects are the deadliest type of birth defects.

Thanks to hard work during the 2015 legislative session all babies born in Washington are now screened for congenital heart defects using noninvasive, pain-free pulse oximetry screening that measures the oxygen saturation in the blood. The screening is now a requirement in the state of Washington.

Thank you again to the volunteers who knitted these wonderful hats. We hope everyone has a great Heart Month!

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Update on Tobacco to 21 Legislation

The 2016 legislative session has started and things are moving quickly. A bill to raise the tobacco and electronic smoking device purchase age to 21, House Bill 2313, which the American Heart Association is supporting received its first hearing in the House Healthcare and Wellness Committee on January 21st.

During the hearing, AHA volunteers also participated in a press conference held by the Attorney General on this legislation. Numerous health organizations including the American Cancer Society and the American Lung Association also participated.

Four bills were heard in the committee on the 21st with HB 2313 being last. Our dedicated volunteer Eric Rothenberg testified in support of the bill. Because the bill was heard last not everyone who signed in to testify was able to but Eric did a great job representing the AHA.  Overall, the majority of those in attendance at the committee hearing testified in support.

On Friday February 29th the bill was formally voted on by the House Healthcare and Wellness Committee passing with a vote of 9 ayes. 

As of today, February 8, when this post is being written we are still hoping for a hearing in the Appropriations Committee which is necessary for the bill to progress through the House. On Friday, February 5, the Senate version of the legislation died when it failed to get a vote in committee.

The American Heart Association believes HB 2313 is an important piece of legislation that will drive down smoking rates in Washington. In fact it was the focus of our annual lobby day this year on February 9th.

We hope that this issue will receive the necessary hearing and votes to keep progressing during the 2016 legislative session and that we can count on your support. Please keep your eyes open for our emails on the issue and take action when we call upon you to message your lawmakers.

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Advocate Highlight - Sara Hoffman

Hi my name is Sara and I am 37 years old. This year should have been one of the happiest times of my life. On April 18, 2015, I was married on a beach in Mexico. Like any bride, I spent months planning the wedding and could not wait to celebrate with our friends and family. The shocking part of this story is that I suffered a major heart attack during the flight on my way to Mexico.

I felt fine in the morning and for the first four hours of the flight. All of the sudden I started experiencing burning in my chest, jaw and arm pain. I instantly knew something was wrong. After about 20 minutes of experiencing symptoms, I asked the flight crew to land the plane. I knew that my age and the fact that we were on the way to our wedding could make people think I was just having a panic attack so speaking up for myself felt more important than ever.  I was later told by my cardiologist that I would have died on the plane that day if we had not landed the plane.

We did an emergency landing in Louisiana where I was wheeled into the ER with my wedding dress in tow. I had an Angioplasty and a stent placed in my left anterior descending artery. My heart stopped twice during my procedure and I had to be defibrillated both times. My poor husband thought he was going to be a widower and we weren’t even married yet.  Amazingly, I was cleared to fly to Mexico just two days after my procedure. The day of our wedding was amazing but and I felt so lucky just to be alive and standing there.

We cancelled our honeymoon so I could come home and recover. I had not felt well while in Mexico and ended up getting re-hospitalized the day after we came home. I was in congestive heart failure and was experiencing terrible side effects from my medication.

My recovery has been hard but I am learning so much about heart disease along the way. I knew my father had a heart attack at age of 36, but I can honestly say I never considered myself to be at risk. I was healthy, I used to run full and half marathons, I don’t smoke, and I am a vegetarian. I thought everything I was doing would counteract my family history.  I didn’t understand the power of genetics.

I hope my story can encourage other women to schedule a Well-Woman Visit and talk to their doctor about their family history and personal risk.

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Youth and e-cigarette exposure

About 18 million U.S. middle and high school students – 70 percent – are exposed to e-cigarette (also known as e-cigs) advertising online, in stores, newspapers, magazines and movies, and on television, according to a report released by the U.S. Centers for Disease Control and Prevention.

E-cigarettes deliver a nicotine-containing aerosol popularly called vapor by heating a solution usually made of glycerin, nicotine and flavoring agents. An American Heart Association policy statement said that e-cigarettes target young people and can hook people on nicotine and threaten to “re-normalize” tobacco use.

In a recent statement, AHA CEO Nancy Brown said:  “The tried-and-true methods to attract a new generation to tobacco must be reined in,” “Otherwise, more and more young Americans will put themselves at risk for heart disease, stroke or even an early death as a result of taking up tobacco in any form.”

The e-cig ads are following a familiar tobacco marketing playbook of old with themes of independence and rebellion that are aimed specifically to addict the next generation.  E-cig advertising to young people “is like the old time Wild West,” said CDC Director Tom Frieden in a media briefing. With no regulations and growing ad budgets, spending nearly tripled in one year from $6.4 million in 2011 to $18.3 million in 2012, according to a study in the American Journal of Preventive Medicine.

The CDC said that manufacturers of e-cigarettes also target youth through advertising on social networks. Online ordering makes it easier for kids to purchase e-cigs and related products.

In 2014, e-cigs became the most common tobacco product used by middle and high school students. The most recent CDC data shows that from 2011-2014 e-cig use by high school students increased from 1.5 percent to 13.4 percent. Among middle school students it rose from 0.6 percent to 3.9 percent. This sudden and dramatic rise in youth use sadly illustrates the effectiveness of unregulated advertising for these products. 

For the full story, please visit here.

We are working to raise awareness on the issue at the local, state and federal levels on this growing public health issue.  If you want to get involved locally, please contact Josh Brown for more information.

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