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Spotlight: Paula and Ella Marie Hatten, West Virginia

by You're C. on Monday, May 13, 2013

Paula and Ella Marie Hatten West Virginia

On May 6, 2011, our beautiful daughter, Ella Marie, was born. On May 7th, we found out Ella Marie was among the 1 in 100 children born with a congenital heart defect. Ella's CHD is called Tetralogy of Fallot and required her to have open heart surgery at 8 weeks old. She also will need more corrective surgeries in the future.

Of all the worries that new parents have, our daughter having a CHD was not even on our radar. We had never heard of Tetralogy of Fallot or any other CHD for that matter. We did not know any warning signs to look for or any questions to ask our doctor. Our goal as a family is to raise more awareness of congenital heart defects.

We were very happy about Corbin's Bill passing and West Virginia being one of the first states that will now require Pulse Ox to be included in newborn screenings. Our family and friends participated in the Charleston American Heart Walk on September 8th in honor of Ella and hope to do much more to raise awareness for Ella and her other heart warriors!

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