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Share Your Story: Kelly Manz and Chloe

by Christy D. on Thursday, May 9, 2013

Kelly Manz Missouri

Chloe's Law, named after Kelly Manz’s daughter, will finally reach the Governor’s desk in 2013!

Kelly has worked long and hard to ensure that all Missouri hospitals will be required to screen newborn babies for congenital heart defects with Pulse Oximetry before they leave the hospital - it’s an easy, painless, fast and live-saving screening.

“When Chloe was born, she passed all of her newborn exams and was considered by all accounts a healthy baby. We would have taken her home 2 days later, but I had a feeling something wasn’t right. When Chloe was only nine hours old, she seemed as if she wasn’t breathing right so I asked the nurses to come in and re-examine her four different times. Each time they reassured me that everything was fine. I was finally able to convince a nurse to take Chloe back to the nursery. One of the first things they did was a pulse oximetry screening and Chloe scored a 65%. Anything under 94% is an indicator of an underlying health concern.

We are lucky that the pulse oximetry screening detected my daughter's rare heart defects shortly after birth and saved her life. It still haunts me to this day – the thought that we would’ve been sent home with Chloe and her four undetected heart defects and who knows what would have happened. I’ve read too much and heard too many personal stories and tragedies to stand back and not try to educate and help other families.”

Chloe inspired the law, but it’s not for her. It’s for all of the heart babies yet to come. For the babies born with CCHD that go undetected through the ultrasounds and the examinations at birth. Chloe’s Law is for them and now awaits the Governor’s signature!