The Greater Southeast Affiliate Advocacy Team fights heart disease and stroke in Alabama, Florida, Georgia, Louisiana, Mississippi, Tennessee and Puerto Rico.
Aimee Jones was 20 weeks pregnant with identical twins when she went into pre-term labor. Put on restricted bed rest for the remainder of her pregnancy, ultrasounds by a perinatologist were performed up to 2 times per week until twins Charlie and Blake arrived at just under 37 weeks. Their arrival was deemed premature and a visit to the NICU followed. Charlie’s vitals were normal, his coloring and appetite were fine, and he gained weight appropriately. But his nurse heard what she suspected might be a heart murmur and said "let's double check this." She called in a cardiologist from Children’s Healthcare of Atlanta Sibley Heart Center to do further testing. Normally, Charlie would have been discharged and a follow up appointment would have been made.
A congenital heart defect (CHD) was never detected before birth despite the frequent sonograms.
The cardiologist found a moderate hole in Charlie’s heart called a Ventricular Septal Defect. Further evaluation also revealed pulmonary valve stenosis. Sibley became the Jones’ second home with twice-weekly visits, follow ups, and open heart surgery when Charlie was just shy of 5 months of age. Surgery repaired the hole in his heart, his valves now work properly, and he is now a normal, active toddler with no ill-effects of his CHD.
Charlie and Blake turn 3 this July.